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Citizen Engagement for Better Innovation
Maria Zolotonosa Ecsite
RRI in the health Industry
Brussels 18 May 2017
Overview of presentation
- Sparks project
- 3 examples of citizens
working with industry
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Citizen Engagement for Better Innovation Maria Zolotonosa Ecsite - - PowerPoint PPT Presentation
Citizen Engagement for Better Innovation Maria Zolotonosa Ecsite - - PowerPoint PPT Presentation
RRI in the health Industry Brussels 18 May 2017 Citizen Engagement for Better Innovation Maria Zolotonosa Ecsite Overview of presentation Sparks project 3 examples of citizens working with industry 2 WWW.SPARKSPROJECT.EU Sparks in
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Sparks in a nutshell
Sparks is about promoting and communicating the concept of RRI to citizens. With a focus on technology shifts in healthcare
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Beyond the Lab: the DIY Science Revolution
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Beyond the Lab: the DIY Science Revolution
- Personal stories of ordinary
citizens doing science outside the lab
- Topics: health hackers, DIY
biologists and citizen scientists
- Artworks
- Local RRI case studies
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Participatory activities
- Reversed Science Café
- Science Espressos
- Pop-up science shop
- Scenario workshop
- Hackathons
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Example 1: DIÁLISIS 24H APP
Nurses and computer engineers, in collaboration with renal patients, joined forces to create an innovative mobile application aligned with the needs of dialysis patients.
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Example 1: DIÁLISIS 24H APP
Before development:
- Patients were asked about
their daily routines/diets/habits
- Patients were asked about
their needs
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Patients involvement
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Example 1: DIÁLISIS 24H APP
During development:
- Patients were involved in
testing the app and providing feedback After development:
- Patients were teaching other
patients to use the app
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Example 1: DIÁLISIS 24H APP
- The app is being used by many doctors as well as
nutritionists in Andalucía
- App is being translated into English
- Working with patients has been very rewarding
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Outcomes:
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Example 2: hackathon leading to research project
To improve a surgical procedure performed in order to save the lives of fetus affected by congenital diaphragmatic hernia. Currently requires two surgeries.
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Challenge:
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Example 2: hackathon leading to research project
- Copernicus science centre
- rganised a hakathon
- Doctors, designers, engineers,
material scientists got together
- Non-formal setting fosters
creativity and experimentation
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Process:
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Example 2: hackathon leading to research project
- The winning project led
towards a collaboration of a startup company with the university
- Currently the company is
moving the research forward using its own resources
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Outcomes
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Example 3: The expert patient
Sara Riggare was diagnosed with Parkinson’s disease in
- 2003. To stay fit and healthy,
she has become an expert in her disease and shares her experiences with other patients online.
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Example 3: The expert patient
- Consortia of patient
associations, hospitals, pharma company, electronics company
- Workshops with patients
and other stakeholders
- How can we make
healthcare more tuned to knowledgeable patients?
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Lead Patients project
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Example 3: The expert patient
- Patients need to be involved
from the start of the process
- Educating patients in self
care is key
- The habit of doing things to
patients rather than with patients is a big barrier
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Main learnings
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Thank you!
Maria Zolotonosa mzolotonosa@ecsite.eu
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