BC AGM WELCOME! COORDINATORS SESSION O C T O B E R 2 7 , 2 0 1 2 - - PowerPoint PPT Presentation
Stroke Recovery Association of BC AGM WELCOME! COORDINATORS SESSION O C T O B E R 2 7 , 2 0 1 2 9 : 0 0 - 1 2 : 0 0 A Big Thank You! Thank You for all your hard work, commitment and involvement in helping improve the quality of
COORDINATOR’S SESSION
O C T O B E R 2 7 , 2 0 1 2 9 : 0 0 - 1 2 : 0 0
for all your hard work, commitment and involvement
in helping improve the quality of life of Stroke Survivors and Caregivers in BC!
for your contributions this past year in better
understanding where we’re at and where we need to go to become a stronger support for stroke survivors and their caregivers in BC!
9:00-9:30: Arrive & mingle; Icebreakers 9:30-10:20: Presentation re defining 'Stroke
Recovery'; summary of Branch Profiling/Regional Coordinator Project & future direction; Q & A
10:20-10:30: Coffee/Snack Break 10:30-11:15: "Neuro-Rehabilitation in Stroke" by
11:15-12:00: Coordinator Brainstorm Session on
Practical Ways to Promote Stroke Recovery
STROKE
Sudden death of brain cells in a localized area due to
inadequate blood flow/oxygen (due to blood clot or hemorrhage)
RECOVERY
The act or process of recovering Restoration to a former or better condition
ASSOCIATION
A group of people organized for a joint purpose
BRITISH COLUMBIA
Population: 4, 631, 362; 944,735 sq km; Multi-Cultural; ~6500
strokes/year
Stroke Recovery is the process by which people who have had a stroke recover to the best of their ability; improve their independence and quality of life and have respect, inclusion and support as they become reintegrated into their home community.
A process of improving a Stroke Survivor’s…
1. Independence: a lack of reliance on another for physical existence or emotional needs; freedom from control of another 2. Quality of Life: well-being (multi-faceted), environment, physical & mental health, education, recreation & leisure, social belonging; Reduction of disability and increase in function, participation & activity 3. Community Reintegration: the ability to share in community life- physically, culturally, socially; and be valued
Long-term community based support Education and supportive counseling to help
Provide opportunities to participate in community
Physical recovery Aphasia and other speech, language and
Needs such as memory, communication,
socialization and productivity Volunteers:
Education and support of involved volunteer leaders
Every stroke survivor in BC has respect, inclusion,
and support in their home community. MISSION STATEMENT
Through its local Stroke Recovery Branches, SRABC
is committed to assisting stroke survivors and their caregivers throughout the province to improve their
1.Through its local stroke recovery branches, to assist stroke survivors and their caregivers throughout the province to improve their overall quality of life and remain living independently.
the province to stroke survivors and their caregivers.
cerebro-vascular accidents on individuals and their families.
survivors in British Columbia.
Reference: Constitution of Stroke Recovery Association of BC
HOW DO WE KNOW?
What did we collect?
Branch Membership, Demographics, Programming,
Governance, Volunteers, Coordinator’s Role, Fundraising, Location, Contracted services, etc.
Community stakeholder opinions re gaps
Why collect information?
To provide a baseline of what & how things are done now To know where support is needed To know what’s working well & what’s not To understand where there are gaps in our service model
SRABC serves only ~600 of the >6500 new stroke
survivors/year in BC
2000 4000 6000 8000 10000 12000 14000 1 Year 3 Years Stroke Survivors who do NOT use SRABC services Stroke Survivors served by SRABC
Declining & aging membership & attendance
Stroke survivors: 750 in 2010 to 605 in 2012. Caregivers: 183 in 2010 to 161 in 2012.
Our membership average age seems to be increasing. There is a general lack of understanding of what the Stroke Recovery
Association is and its relationship with its members and the Stroke Recovery Branches.
There is no consistency in program delivery, in terms of intake criteria and
process, length of programs, frequency, content or qualifications of person delivering the programs.
There has been no standardized program model to follow for content and no
written guidelines on how to deliver the program.
Responsibility for Branch program delivery varies greatly Branch by Branch.
Branches rarely set annual goals, develop a budget or plan for programs. Most
Ultimately, program delivery at Branches is based upon the individual culture,
history, programming of each Branch rather than a set of standardized delivery models for each component.
Very few of our Branches have Governing Committees as described in our
a majority say they want to do.
Higher expectations of all involved stakeholders (re the services/programs we
provide) , including funders
Guidelines on community reintegration
Standard 14.0-17.0: Integrated & coordinated partnership
between Health Regions & Community Service Providers to help support transition into community
Standard 18.0: Community stroke service providers will
maintain a data collection system that includes key indicators that measure effectiveness of their services
Programs should promote life participation in social & community
activities
Examples of wellness focused rehab groups: SR Support groups,
chronic disease self-management groups, MOST programs, exercise programs, stroke education programs
How do we know what best practice standards are in
stroke recovery?
Use up-to-date research & knowledge to guide SRABC
programming via Professional Advisory Committee
How can we use those standards in planning &
programming?
Support branch programming through goal setting, budgeting
& implementation of standards
How can we assess needs and measure outcomes?
Through surveys & interviews with BC stroke survivors & their
caregivers & various community partners
provide expert counsel and strategic advice to
in matters regarding content and delivery of
regarding international, national, provincial
Casey Crawford – President, Stroke Recovery Association of BC; media
& marketing specialist with Canada Wide Media
Dr. Barbara Purves – Assistant Professor UBC School of Audiology and
Speech Sciences
Deborah Rusch - Manager, Patient Programs, Research & Health
Promotion - BC & Yukon, Heart and Stroke Foundation of Canada
Dr. Jennifer Yao - Medical Manager, Acquired Brain Injury Program
and the Adolescent Young Adult Program at GF Strong Rehab Centre / Clinical Assistant Professor Division of Physical Medicine & Rehabilitation, Residency Program Director
Sacha Arsenault –Regional Stroke Strategy Leader, VCH/PHC Tim Readman - Executive Director, Stroke Recovery Association of BC
/ OT Clinical Instructor, UBC Faculty of Medicine, Rehabilitation Sciences
Assist Branch personnel with branch goal-setting Provide support in reaching established goals Assist in setting an annual budget Increase quantity and quality of Branch volunteers
for program delivery and branch administration/organization
To be similar to 7-Point Branch Program Outline 1.
Maintain and improve mobility
2.
Maintain and improve communication and memory
3.
Provide an accepting environment for social interaction and recreation
4.
Create opportunities for peer support
5.
Support caregivers
6.
Increase awareness of stroke risk and impairment after stroke
7.
Provide system navigation services to stroke survivors and caregivers
Questions we must address:
What is a stroke and how can it affect you? What is recovery and what can we do to encourage it?
Branch Support Increase volunteer base Provide ‘Stroke Education’ within communities Explore other creative avenues (i.e. standardized
Become a unified force seeking to better understand
& promote stroke recovery in BC
Only serving ~600 stroke survivors Meeting SRABC Purpose
stroke recovery
Major Funders:
Require renewal of service model
Increased Expectations:
stroke survivors, caregivers, health care system
to this challenge
‘Therapeutic’ programs:
maximizes potential for recovery
Need to evolve into unified Provincial Association