and managing information in the community following spinal cord - - PowerPoint PPT Presentation

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and managing information in the community following spinal cord - - PowerPoint PPT Presentation

Sep 29, 2023 26 likes •248 views

SCHOOL OF PUBLIC HEALTH AND PREVENTIVE MEDICINE Experiences with navigating and managing information in the community following spinal cord injury Presenter: Alyse Lennox BPsych(Hons) BACKGROUND OSTEOPOROSIS 40% PRESSURE AREAS SPASTICITY

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Experiences with navigating and managing information in the community following spinal cord injury

Presenter: Alyse Lennox

BPsych(Hons)

SCHOOL OF PUBLIC HEALTH AND PREVENTIVE MEDICINE

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BACKGROUND UTIs

BOWEL COMPLICATIONS

PRESSURE AREAS

CHRONIC PAIN AUTONOMIC DYSREFLEXIA

SPASTICITY

THERMOREGULATION OSTEOPOROSIS 40%

  • f Victorian patients readmitted to

hospital with a secondary condition within two years

$5.6M

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AIM To describe, from the perspective of people living with SCI, their experiences with navigating and managing information in the community

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METHODS

22 participants ▪ In-depth semi-structured interviews ▪ September-October 2015 ▪ Analysed using a qualitative thematic framework approach

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DEMOGRAPHICS

73% male 55% over 50 68% lived in a metro location 50% had transport- related injuries

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RESULTS

▪ Sources of information ▪ Using SCI information ▪ Issues encountered

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SOURCES OF INFORMATION

  • Multiple sources of information
  • Desire to act as a source of information

and share knowledge

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8 MULTIPLE SOURCES OF INFORMATION

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9 MULTIPLE SOURCES OF INFORMATION

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10 DESIRE TO ACT AS A SOURCE OF INFORMATION AND SHARE KNOWLEDGE

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USING SCI INFORMATION

  • Appraisal of SCI related information
  • Learning to appraise information
  • Delivery of information in a useful format
  • Information used as a springboard for

further searching

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12 APPRAISAL OF SCI-RELATED INFORMATION

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13 APPRAISAL OF SCI-RELATED INFORMATION

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14 LEARNING TO APPRAISE INFORMATION

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ISSUES ENCOUNTERED

  • Feeling isolated
  • Difficulties encountered with access to

information through health professionals

  • Lack of information led to missed
  • pportunities
  • Frustration at the uncertainty surrounding SCI
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16 FEELING ISOLATED

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17 DIFFICULTIES WITH ACCESS TO INFORMATION THROUGH HEALTH PROFESSIONALS

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18 DIFFICULTIES WITH ACCESS TO INFORMATION THROUGH HEALTH PROFESSIONALS

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19 FRUSTRATION AT THE UNCERTAINTY SURROUNDING SCI

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CONCLUSION

▪ Provision of support to people with SCI early after injury to navigate and manage information ▪ Education to improve health literacy ▪ Greater linkage with GPs prior to rehabilitation discharge

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ACKNOWLEDGEMENTS

▪ Sandra Braaf ▪ Belinda Gabbe ▪ Andrew Nunn ▪ Peter Trethewey ▪ Participants

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THANK YOU

Alyse.Lennox@monash.edu