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Advocacy Involvement: Accomplishments & Looking Ahead Joan Venticinque Senaida Poole, Ph.D. CBCRP Council Meeting 10/ 21/ 16 Context This is an ad hoc committee: Committee formed on an as-needed basis to address specific,


  1. Advocacy Involvement: Accomplishments & Looking Ahead Joan Venticinque Senaida Poole, Ph.D. CBCRP Council Meeting 10/ 21/ 16

  2. Context  This is an ad hoc committee:  Committee formed on an as-needed basis to address specific, time-limited tasks  In December 2010, Council identified a growth area for the program  How investigators involved advocates in their projects (IDEAs and Translational Awards)

  3. Context  Specifically there were concerns that  Advocates were not being compensated for their time  Same advocates were named in applications repeatedly  Advocacy Involvement Committee formed in Spring 2011

  4. Charge of the Committee  To improve advocate participation in CBCRP research  This committee will oversee development of resources to assist advocates and investigators and revision of grant application and implementation procedures

  5. Current Members and Staff  Current committee includes:  Joan Ventecinque (Chair)  Rose Marie Corbin  Lori Marx-Rubiner  Staffed by:  Senaida Poole & Katie McKenzie

  6. 2011 – 2013: Development of Resources  Webinars for investigators and advocates  Implemented each cycle, after accepted LOI notifications go out  Advocate registration  For interested advocates  To allow CBCRP to connect investigators and advocates  Frequently Asked Questions Documents  For advocates and investigators  Staff Resources

  7. 2011 – 2013: Revision of Procedures: Changes in Application Requirements Over Time 2 0 1 1 & 2 0 1 2 2 0 1 3  Mtg betw een PI and  Advocate qualifications  Advocate biosketch advocate prior to  Advocacy Involvement section subm ission  Detailed description of in application  Line to name advocate(s) how advocates w ill be  Letter of commitment/ MOU involved  Letter of support  Advocate compensation and  Com pensation justification included in budget

  8. Additional Accomplishments  Staff pulled together and Committee reviewed evaluation data from 2011-2014  Developed and implemented Advocate and Scientist reporting forms and instructions – included in yearly progress and final scientific reports for projects  2015-2017: Develop Investigator Training  to shift thinking about value of advocate involvement in research

  9. Placeholder  Slide(s) on Progress: Developing Investigator Training

  10. Focus for this year  New members!  Staff, with Committee Guidance  Develop training for investigators  Committee:  Determine what would be a good end point for the Committee

  11. Questions?

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