Addressing Health Literacy Issues - A Constant Challenge Ruchi - - PowerPoint PPT Presentation

addressing health literacy issues a constant challenge
SMART_READER_LITE
LIVE PREVIEW

Addressing Health Literacy Issues - A Constant Challenge Ruchi - - PowerPoint PPT Presentation

Addressing Health Literacy Issues - A Constant Challenge Ruchi Gupta, MD, MPH Associate Professor of Pediatrics & Medicine Director, Science and Outcomes of Allergy and Asthma Research Director, Program for Maternal and Child Health


slide-1
SLIDE 1

Addressing Health Literacy Issues - A Constant Challenge

Ruchi Gupta, MD, MPH Associate Professor of Pediatrics & Medicine Director, Science and Outcomes of Allergy and Asthma Research Director, Program for Maternal and Child Health Institute for Public Health and Medicine, Northwestern Medicine Clinical Attending, Ann and Robert H. Lurie Children's Hospital of Chicago

slide-2
SLIDE 2

What is Asthma?

Wikipedia Commons. N.p., 10 Nov. 2016. Web. 20 June 2017.

slide-3
SLIDE 3

What is Asthma?

Oral Pathology Links for Dentists and Dental Students. N.p., 5 June 2008. Web. 20 June 2017.

slide-4
SLIDE 4

Background

❖> 9 million children have asthma in US ❖Disparities on the rise ➢ Asthma rates disproportionately higher among black vs. white children ❖Urban environment often implicated ➢ Little attention paid to contributions at the community level within the inner-city

Source: Gupta RS, Zhang X, Sharp LK, Shannon JJ, Weiss KB. Geographic variability in childhood asthma prevalence in Chicago. The Journal of Allergy and Clinical Immunology. 2008 Mar;121(3):639-45 e1 Wikipedia Commons. N.p., 24 Nov. 2016. Web. 20 June 2017.

slide-5
SLIDE 5

Geographic Variability of Asthma in Chicago

1. Rates in Chicago - Childhood asthma prevalence, hospitalizations, & mortality rates above national average (13.9% in Chicago vs. 8% in US) 2. Geographic Variability: Asthma prevalence varies within and between Chicago neighborhoods 3. Positive & Negative Factors: Neighborhood assets and vulnerabilities explain a significant degree of variability

Source: Gupta RS, Zhang X, Sharp LK, Shannon JJ, Weiss KB. Geographic variability in childhood asthma prevalence in

  • Chicago. The Journal of Allergy and Clinical
  • Immunology. 2008 Mar;121(3):639-45 e1
slide-6
SLIDE 6
  • Average childhood asthma rate → 13.9%
  • 12% for White children
  • 20% for Black children
  • 12% for Hispanic children
  • Rates vary among neighborhoods → 0% - 44%
  • Black neighborhoods 4%-44%
  • White neighborhoods 2%-30%
  • Hispanic neighborhoods 0%-29%

Geographic Variability of Asthma in Chicago

Source: Gupta RS, Zhang X, Sharp LK, Shannon JJ, Weiss KB. Geographic variability in childhood asthma prevalence in

  • Chicago. The Journal of Allergy and Clinical
  • Immunology. 2008 Mar;121(3):639-45 e1
slide-7
SLIDE 7

Geographic Variability of Asthma in Chicago

Prevalence

Source: Gupta RS, Zhang X, Sharp LK, Shannon JJ, Weiss KB. Geographic variability in childhood asthma prevalence in

  • Chicago. The Journal of Allergy and Clinical
  • Immunology. 2008 Mar;121(3):639-45 e1
slide-8
SLIDE 8
slide-9
SLIDE 9

What is Health Literacy?

❖The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions ❖Health literacy requires the ability to apply skills such as analytical, listening, reading and, decision-making to health situations ❖Low health literacy is likely to contribute to poor management of child’s asthma

U.S. Department of Health and Human Services. 2000. Healthy People 2010. Washington, DC: U.S. Government Printing Office. Originally developed for Ratzan SC, Parker

  • RM. 2000. Introduction. In National Library of Medicine Current Bibliographies in Medicine: Health Literacy. Selden CR, Zorn M, Ratzan SC, Parker RM, Editors. NLM Pub.
  • No. CBM 2000-1. Bethesda, MD: National Institutes of Health, U.S. Department of Health and Human Services.
slide-10
SLIDE 10

Health Literacy & Asthma

❖Asthma management has led to the development of national and international asthma treatment guidelines which include the recommendation of a written asthma action plan

National Asthma Education and Prevention Program Expert Panel Report 3. Guidelines for the Diagnosis and Management of Asthma (NIH Publication Number 08-5864). Bethesda, MD: National Heart, Lung, and Blood Institute; 2007 National Asthma Council Australia. Asthma Management Handbook. Melbourne, Australia: National Asthma Council Australia Ltd; 2006 British Thoracic Society, Scottish Inter- collegiate Guidelines Network. British Guide- line on the Management of Asthma: A national clinical guideline. Edinburgh, Scot- land: NHS Quality Improvement Scotland; 2009

slide-11
SLIDE 11

Inadequate Literacy is a Barrier to Asthma Knowledge and Self-Care (1998)

❖Objective ➢ Determine the relationship between the ability to use a meter-dosed inhaler (MDI) and the knowledge of asthma

Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and self-care. Chest.1998;114:1008-1015.

slide-12
SLIDE 12

Inadequate Literacy is a Barrier to Asthma Knowledge and Self-Care (1998)

❖Results ➢ Two thirds of the patients reported to be high school graduates, but

  • nly 27% of the patients read at a high school level

■ 33% read at a 7th to 8th grade level ■ 27% read at a 4th to 6th grade level ■ 13% read at/below the 3rd grade level ➢ Poor MDI technique was observed in 89% of the patients reading at the 3rd grade level

Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and self-care. Chest.1998;114:1008-1015.

slide-13
SLIDE 13

Inadequate Literacy is a Barrier to Asthma Knowledge and Self-Care (1998)

❖Conclusions ➢ Inadequate literacy was strongly correlated with poor knowledge of asthma and improper MDI use

Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and self-care. Chest.1998;114:1008-1015.

slide-14
SLIDE 14

Tailored Education May Reduce Health Literacy Disparities in Asthma Self-Management (2005)

❖Objective ➢ Examine the relationship between inadequate health literacy and difficulties learning and retaining instructions about discharge medications and appropriate use of meter-dosed inhalers in adults hospitalized for severe asthma

Passche-Orlow MK, et al. Tailored education may reduce health literacy disparities in asthma self-management. Am J Respir Crit Care Med. 2005;172:980–986.

slide-15
SLIDE 15

Tailored Education May Reduce Health Literacy Disparities in Asthma Self-Management (2005)

❖Results ➢ A total of 73 patients were enrolled; 16 (22%) had inadequate health literacy ■ Inadequate health literacy was associated with less knowledge about asthma medication and incorrect MDI technique ➢ Inadequate health literacy was not correlated to difficulty learning or retaining knowledge of discharge regimen or MDI techniques

Passche-Orlow MK, et al. Tailored education may reduce health literacy disparities in asthma self-management. Am J Respir Crit Care Med. 2005;172:980–986.

slide-16
SLIDE 16

Tailored Education May Reduce Health Literacy Disparities in Asthma Self-Management (2005)

❖Conclusions ➢ Inadequate health literacy is a conquerable barrier to learning and remembering important asthma self-management skills

Passche-Orlow MK, et al. Tailored education may reduce health literacy disparities in asthma self-management. Am J Respir Crit Care Med. 2005;172:980–986.

slide-17
SLIDE 17

Impact of Health Literacy of Longitudinal Asthma Outcomes (2006)

❖Objective ➢ Measure the relationship between health literacy and asthma

  • utcomes and to evaluate how outcomes are affected by health

literacy through covariate

Howard, D.H., Gazmararian, J., & Parker, R.M. ( 2005). The impact of low health literacy on the medical costs of Medicare managed care enrollees. American Journal of Medicine , 118, 371-377.

slide-18
SLIDE 18

Impact of Health Literacy of Longitudinal Asthma Outcomes (2006)

❖Results ➢ Lower health literacy was correlated with: ■ Worse quality of life ■ Worse physical function ■ More emergency visits due to asthma over a period of 2 years

Howard, D.H., Gazmararian, J., & Parker, R.M. ( 2005). The impact of low health literacy on the medical costs of Medicare managed care enrollees. American Journal of Medicine , 118, 371-377.

slide-19
SLIDE 19

Impact of Health Literacy of Longitudinal Asthma Outcomes (2006)

❖Conclusion ➢ Lower health literacy was related to poor longitudinal asthma

  • utcomes

➢ To improve asthma outcomes, focus on literacy skills that are required to understand, learn, and implement effective self- management

Howard, D.H., Gazmararian, J., & Parker, R.M. ( 2005). The impact of low health literacy on the medical costs of Medicare managed care enrollees. American Journal of Medicine , 118, 371-377.

slide-20
SLIDE 20

Asthma Action Plan Library. National Asthma Council Australia, Feb. 2017. Web. 20 June 2017.

slide-21
SLIDE 21

Readability, Suitability, and Characteristics of Asthma Action Plans: Examination of Factors That May Impair Understanding (2012)

❖Objective: ➢ Assess the elements that contribute to the effectiveness of action plan use, particularly for those with limited literacy

Yin HS, Gupta RS, Tomopoulos S, et al. Readability, suitability, and characteristics of asthma action plans:examination of factors that may impair understanding.

  • Pediatrics. 2013;131(1).
slide-22
SLIDE 22

Readability, Suitability, and Characteristics of Asthma Action Plans: Examination of Factors That May Impair Understanding (2012)

❖Results: ➢ Mean overall readability grade level was 7.2 ➢ 70.0% were 6th-grade level or higher ➢ Overall, all action plans were found to be adequate, although 40.0% had an unsuitable score in at least 1 factor ■ Layout/ typography (30.0%) ■ Learning stimulation/motivation (26.7%) ■ Graphics (13.3%)

Yin HS, Gupta RS, Tomopoulos S, et al. Readability, suitability, and characteristics of asthma action plans:examination of factors that may impair understanding.

  • Pediatrics. 2013;131(1).
slide-23
SLIDE 23

Readability, Suitability, and Characteristics of Asthma Action Plans: Examination of Factors That May Impair Understanding (2012)

❖Conclusion: ➢ Improvements in the readability, suitability, and features of asthma action plans are needed to maximize patient and parent understanding ➢ A new low literacy plan should be developed and studied

Yin HS, Gupta RS, Tomopoulos S, et al. Readability, suitability, and characteristics of asthma action plans:examination of factors that may impair understanding.

  • Pediatrics. 2013;131(1).
slide-24
SLIDE 24

Yin HS, Gupta RS, Tomopulos S, et al. A low-literacy asthma action plan to improve provider asthma counseling: a randomized study. Pediatrics 2016;137:1-11.

❖Many plans must be filled in by hand causing more variability and errors in interpretation ❖Most plans are written above 6th grade level ❖Low literacy plans have more focus on pictograms and photograph

Differences Between Asthma Action Plans

slide-25
SLIDE 25

A Low-Literacy Asthma Action Plan to Improve Provider Asthma Counseling: A Randomized Study (2015)

❖We developed a health literacy–informed, pictogram- and photograph- based written asthma action plan (WAAP) and examined whether providers who used it (with no training) would have better asthma counseling quality compared with those who used a standard plan

Yin HS, Gupta RS, Tomopulos S, et al. A low-literacy asthma action plan to improve provider asthma counseling: a randomized study. Pediatrics 2016;137:1-11.

slide-26
SLIDE 26

A Low-Literacy Asthma Action Plan to Improve Provider Asthma Counseling: A Randomized Study (2015)

Results: ❖119 providers were randomly assigned (61 low literacy, 58 standard) ❖Providers who used the low-literacy plan were more likely to: ➢ Recommend times of day for taking medication ➢ Recommend spacer use ➢ Address need for daily medications when sick ❖Few mentioned inhaler color

Yin HS, Gupta RS, Tomopulos S, et al. A low-literacy asthma action plan to improve provider asthma counseling: a randomized study. Pediatrics 2016;137:1-11.

slide-27
SLIDE 27

A Low-Literacy Asthma Action Plan to Improve Provider Asthma Counseling: A Randomized Study (2015)

Conclusion ❖Use of a low-literacy WAAP improves the quality of asthma counseling by helping providers target key issues by using recommended clear communication principles

Yin HS, Gupta RS, Tomopulos S, et al. A low-literacy asthma action plan to improve provider asthma counseling: a randomized study. Pediatrics 2016;137:1-11.

slide-28
SLIDE 28

Associations Between Parental Health Literacy, Use of Asthma Management Plans, and Child’s Asthma Control (2016)

❖Objective: ➢ Assess association between parental health literacy, ability of parent to use written management plan, and child’s asthma

Brigham EL, Goldenberg L, Stolfi A, Mueller GA, Forbis SG. Associations between parental health literacy, use of asthma management plans, and child’s asthma control. Clinical Pediatrics. 2015.

slide-29
SLIDE 29

Associations Between Parental Health Literacy, Use of Asthma Management Plans, and Child’s Asthma Control (2016)

❖Results: ➢ 25% of parents had limited health literacy ➢ Of those parents, 38% of their children had not well/poorly controlled asthma ➢ Health literacy was associated with written asthma management plan (WAMP) score ➢ WAMP not associated with asthma control

Brigham EL, Goldenberg L, Stolfi A, Mueller GA, Forbis SG. Associations between parental health literacy, use of asthma management plans, and child’s asthma control. Clinical Pediatrics. 2015.

slide-30
SLIDE 30

Associations Between Parental Health Literacy, Use of Asthma Management Plans, and Child’s Asthma Control (2016)

❖Conclusion: ➢ Health literacy is associated with parental ability to use written asthma management plan to respond to asthma attacks

Brigham EL, Goldenberg L, Stolfi A, Mueller GA, Forbis SG. Associations between parental health literacy, use of asthma management plans, and child’s asthma control. Clinical Pediatrics. 2015.

slide-31
SLIDE 31

Conclusion

❖Low levels of health literacy have proven to be important barriers in the proper self-management of asthma ❖Health literacy has improved in asthma over the years ❖Still need improvements

Asthma Basics for Children. Columbia University, 2010. Web. 20 June 2017.