A Secure Data Architecture for Telehealth Trial Surya Nepal, Julian - - PowerPoint PPT Presentation

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A Secure Data Architecture for Telehealth Trial Surya Nepal, Julian - - PowerPoint PPT Presentation

Jan 19, 2023 335 likes •528 views

Funded by the Australian Government under the National Telehealth Pilots Program A Secure Data Architecture for Telehealth Trial Surya Nepal, Julian Jang-Jaccard, Rajiv Jayasena, Branko Cellar, Ross Sparks, Marlien Varnfield, Jane Li CSIRO

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A Secure Data Architecture for Telehealth Trial

Surya Nepal, Julian Jang-Jaccard, Rajiv Jayasena, Branko Cellar, Ross Sparks, Marlien Varnfield, Jane Li CSIRO eHealth CSIRO Digital Productivity Funded by the Australian Government under the National Telehealth Pilots Program

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Summary  CSIRO Is lead organisation  Six clinical partners and three industry partners  Total project size $5.4m ($3.02m from DOHA/DBCDE Pilot Program)  Six (6) Trial sites in Five (5) states and territories  Focus on Chronic Disease Management (CDM) in the Community  Six different models of care represented  Trial duration 18 months – ends 30th Dec 2014

NBN Telehealth Pilot Program CSIRO Telehealth Project

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CSIRO NBN Telehealth Trial – 6 Sites

  • Townsville
  • Penrith
  • Greater Western Sydney
  • Canberra and ACT
  • Ballarat and the Grampians
  • Launceston / Northern Tasmania

Number of patients at each site

  • 25 Test Patients
  • 50 Control Patients

Total

  • 150 Test patients
  • 300 Control Patients

Trial Design

  • Case Matched controls
  • Before-After-Control-Impact (BACI)
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SLIDE 4

Final Numbers

Total enrolled N=287

ACT NSW QLD TAS VIC TOTAL Test 16 16 26 29 26 113 Control 23 13 29 60 49 174

Data Analysed Test

Control 101 139

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Key objectives of the CSIRO trial

  • 1. Identify and model the impact of introducing

telehealth services into existing models for the management of chronic disease in the community.

  • 2. Develop robust statistical models to

automatically risk stratify patients using questionnaires and vital signs data

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SLIDE 6

Data Processing Tasks

Collection Integration Generation Analysis & Feedback

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SLIDE 7

Presentation title | Presenter name 7 |

Overall System Architecture

Collection Integration

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Data collection: Ethics Approvals

ETHICS COMMITTEE Commonwealth Science & Industrial Research Organisation (CSIRO)

1

Department of Health & Ageing

2

Department of Veterans Affairs

3

Nepean Blue Mountains LHD

4

Townsville MacKay LHD

5

Ballarat LHD

6

Canberra Hospital and ACT Health

7

Tasmania North Health Service (Launceston Hospital)

8

Security & Privacy Requirements

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Service Architecture

 Push –Decision Support Service  Pull –TMC  Hybrid –Video conferencing

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Secure Encrypted Database Databases Secure Document Store

Authentication Service Social Network Service Data Services User Management Portal Management Content Management Security Management Document Management Workflows Management CSIRO Telehealth System Video Conference Services Decision Support Service Layer User Interface

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Data size

Presentation title | Presenter name

PBS data 102,507 MBS data 74,150 Hospital roundtable 2,244 TMC measurements 207,362 TMC questionnaires 136,179 iinet statistics 925 CSIRO portal access log 4,074 TMC user actions log 440,943

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(Patient General Data, OC) (OCID) OpenClinica PO (OCID, Patient Private Data) PPD (OCID, Patient Private Data) (OCID, Patient Private Data) (OCID, Data) PPD TMC Server TMC (OCID, Data) Portal Web Service (Identifiable Data) PPD Hospital Round Table Data Hospital Data (OCID, de-identified Data) CTC: Portal Data Link Service (OCID, Patient Private Data) Phase 1 Phase 2 Automatic Phase 2 Manual (OCID, PATIENTID) Linked File

Data Integration: Data Linkage Protocol

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Data Access Control Policies

Surya Nepal | CollaborateCom 2013 13 |

PBS/ MBS

Ethics

Hospit al

Ethics

TMC

Ethics

CPD

Ethics

PSD

Ethics

RBAC RBAC RBAC RBAC RBAC

Data Custodian 1 Data Custodian 2 Data Custodian 3 Data Custodian 4 Data Custodian 5

PPD

Ethics

Linked Data

RBAC

Data Sources Linked Data Data Services Data Link File

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SLIDE 14

Project Director (PD) Clinical Trial Coordinator (CTC) Project Manager (PM) Project Officer(PO) Clinical care Coordinator( CCC) Researchers HCI Data Analytics Data Management

Role Hierarchy

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SLIDE 15

Decision Support System

Presentation title | Presenter name

Data Service

Data Analytics Anonymised Data Clinical Care Coordinator Analytics Results Risk Stratification Result Data

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SLIDE 16

Data Service XML

CSIRO Android Video Conferencing App WEBRTC Signalling Server

Audio/ Video

Video Conference Web App

Risk Stratification Results

Openclinica Databases

OpenClinica System

Web Application

Data Service XM L PBS/MBS Data Data Service Hospital data Data Service XML

Decision Support System

XML Data Data Service Data Analytics

Patient Specific Data (demographic data, activity log, etc)

Data Service

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Summary

  • Data security and privacy requirements are

derived from “ethics approvals”

  • Data is stored in different forms
  • Identifiable data - Encrypted form;
  • Linked data – anonymised form;
  • All data – protected from authorisation and

authentication;

  • Communication is secured
  • Secure communication protocol;
  • Services
  • Limited access from outside
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SLIDE 18

Thank You! Questions?