11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING - - PDF document

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11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING - - PDF document

11/2/2018 PARENT/CAREGIVER PARTICIPATION IN THERAPY IMPROVING OUTCOMES FOR CHILDREN AND THEIR FAMILIES INTRODUCTIONS Maria Jones, PT, PhD mjones1@okcu.edu Cynthia Barger-Fenton, MA, CCC-SLP cbfosu2@gmail.com Tai Allen, OTR/L


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PARENT/CAREGIVER PARTICIPATION IN THERAPY

IMPROVING OUTCOMES FOR CHILDREN AND THEIR FAMILIES

INTRODUCTIONS

 Maria Jones, PT, PhD

mjones1@okcu.edu

 Cynthia Barger-Fenton, MA, CCC-SLP

cbfosu2@gmail.com

 Tai Allen, OTR/L

taimtorbett@yahoo.com

OBJECTIVES

 Understand the importance of parent participation in therapy  Illustrate strategies used to foster parent participation  Reflect on current practices and devise a plan for improving

parent participation

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PARENT PARTICIPATION

WHAT IS IT?

PARENT PARTICIPATION – WHY IMPORTANT?

 Honor the parent/family expertise  Parents/families are central to the child’s life  Parents/families have a unique set of values and relationships  Parents/families are in the lead and have ownership  Family life provides rich sources for child learning and development  Improved outcomes when families participate in interventions  Practice opportunities

PARENT PARTICIPATION

WHAT DO VARIOUS PROFESSIONS SAY ABOUT IT?

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PARENT PARTICIPATION

 Oklahoma Parent Organizations  American Occupational Therapy Association  American Physical Therapy Association  American Speech and Language Association  Oklahoma State Department of Education  Oklahoma SoonerStart Early Intervention  Others?

PARENT PARTICIPATION – WHEN?

Evaluation of Effectiveness /Measuring Outcomes Intervention Plan development /Goal Setting Assessment

HOW TO BEGIN THE CONVERSATION

 T ell me about….  your dreams, hopes, and goals  a typical weekday  a typical weekend  special times your family has shared together  family traditions and celebrations  How do you feel about daily routines?  Child’s participation  Satisfied  What works?  What doesn’t?  Priorities  Avoid yes/no questions

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PARENT PARTICIPATION – HOW DO YOU IMPLEMENT?

 Strategies  Obstacles and barriers

IMPLEMENTATION

WHAT STRATEGIES DO YOU CURRENTLY USE?

IMPLEMENTATION

WHAT BARRIERS HAVE YOU ENCOUNTERED?

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PARENT PARTICIPATION

WHERE DOES IT TAKE PLACE?

EVALUATION THE EFFECTIVENESS

Ongoing process All phases Prioritized Goals Measures to Use

OUTCOMES

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MYTHS

 The strategies discussed don’t work with ALL families  The families I work with are uninterested or disengaged  You are trying to make parents be the therapist  I work in a clinic/school/etc, so this won’t work in my setting  I have to use standardized testing as an outcome measure

QUESTIONS

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References Adams, R.C., Tapia, C., & Council on Children with Disabilities. (2013). Early intervention, IDEA Part C services, and the medical home: Collaboration for best practices and best outcomes. Pediatrics, 132(4), 1073-1088. doi:10.1542/peds.2013-2305 American Occupational Therapy Association. (2014). Occupational therapy practice framework: Doman & process. Amercian Journal of Occupational Therapy, 69(Supplement 1), S1-S51. Bruder, M.B., & Dunst, C.J. (1999). Expanding learning opportunities for infants and toddlers in natural environments: A chance to reconceptualize early intervention. Zero to Three, December 1999/January 2000, 34-36. Campbell, P.H., & Halbert, J. (2002). Between research and practice: Provider perspectives on early

  • intervention. Topics in Early Childhood Special Education, 22(4), 213-226.

Childress, D., Hill, C., Jackson, S., Miller, T., & Plitt, M. E. (2015). Virginia’s coaching facilitation guide. Retrieved from Virginia Common Wealth University, Virginia Early Intervention Professional Development Center website: http://www.veipd.org/main/pdf/coaching_fac_guide_5.26.16.pdf Cooper-Duffy, K., & Eaker, K. (2017). Effective team practices: Interprofessional contributions to communication issues with a parent’s perspective. American Journal of Speech- Language Pathology, Volume 26, 181-192. Cosbey, J. & Muldoon, D. (2017) EAT-UP ™ family-centered feeding intervention to promote food acceptance and decrease challenging behaviors in children with Autism Spectrum Disorder: A single case experimental design replicated across three families of children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 47(3), 564-578. https://doi.org/10.1007/s10803-016-2977-0. Cosbey, J., & Muldoon, D. (2018) EAT-UP ™ family-centered feeding intervention to promote food acceptance and decrease challenging behaviors in children with Autism Spectrum Disorder: Report of follow-up data on a train-the-trainer model using EAT-UP™. American Journal of Speech-Language Pathology, 27(1). 278-287. https://doi.org/10.1044/2017_AJSLP-17- 0105. Crais, E.R. (1991). Moving from “parent involvement” to family-centered services. American Journal of Speech-Language Pathology, 1, 5-8. Fava, L., Strauss, K., Valeri, G., D’Elia, L., Arima, S., & Vicari, S. (2011). The effectiveness of a cross- setting complementary staff-and parent-mediated early intensive behavioral intervention for young children with ASD. Research in Autism Spectrum Disorders, 5(4), 1479-1492. Darrah, J., Law, M., & Pollock, N. (2001). Family-centered functional therapy: A choice for children with motor dysfunction. Infants and Young Children, 13(4), 79-87. Dunn, W., Cox, J., Foster, L. Mische-Lawson, L., & Tanquary, J. (2012). Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: A pretest-posttest repeated measures design. Amercian Journal of Occupational Therapy, 66(5), 520-528. Dunst, C.J. & Raab, M. (2004). Parents' and practitioners' perspectives of young children's everyday natural learning environments. Psychological Reports, 93, 251-256. Dunst, C. J. & Trivette, C. M. (2012). Moderators of the effectiveness of adult learning method practices. Journal of Social Sciences, 8(2), 143-148. Early Intervention Program for Infants and Toddlers With Disabilities; Assistance to States for the Education of Children With Disabilities; Final Rule and Proposed Rule, Volume 76, Number 188, 34 C.F.R. § 303.118 (2011). Foster, L., Dunn, W., & Lawson, L.M. (2013). Coaching mothers of children with autism: A qualitative study for occupational therapy practice. Physical & Occupational Therapy in Pediatrics, 33(2), 253-263. doi:10.3109/01942638.2012.747581 Friedman, M., Woods, J., & Salisbury, C. (2012). Caregiver coaching strategies for early intervention providers: Moving towards operational definitions. Infants and Young Children, 25(1), 62-82. doi:10.1097/IYC.0b013e31823d8f12

slide-8
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Graham, F., Rodger, S., & Ziviani, J. (2013). Effectiveness of occupational performance coaching in improving children’s and mothers’ performance and mothers’ self-competence. American Journal

  • f Occupational Therapy, 67(1), 10–18.http://dx.doi.org/10.5014/ajot.2013.004648

Graham, F., Rodger, S., & Ziviani, J. (2009). Coaching parents to enable children's participation: An approach for working with parents and their children. Australian Occupational Therapy Journal, 56(1), 16-23. Jansen, L.M., Ketelaar, M., Vermeer, A. (2003). Parental experience of participation in physical therapy for children with disabilities. Developmental Medicine & Child Neurology, 45, 58-69. Kellegrew, D. H. (1998). Creating opportunities for occupation: An intervention to promote the self-care independence of young children with special needs. American Journal of Occupational Therapy, 52, 457-465. Kucharczyk, S., Shaw, E., Smith Myles, B., Sullivan, L., Szidon, K., & Tuchman-Ginsberg, L., (2012) Guidance & coaching on evidence-based practices for learners with autism spectrum disorders. Chapel Hill: the University of North Carolina, Frank Porter Graham Child Development Institute, National Professional Development Center on Autism Spectrum Disorders. Law, J., Plunkett, C., Taylor, J., & Gunning, M. (2009). Developing policy in the provision of parenting programmes: Integrating a review of reviews with the perspectives of both parents and

  • professionals. Child Care, Health and Development, 35(3), 302-312.

Little, L. M., Pope, E., Wallisch, A., & Dunn, W. (2018). Occupation-based coaching by means of telehealth for families of young children with autism spectrum disorder. American Journal of Occupational Therapy, 72(2),1-7. https://doi.org/10.5014/ajot.2018.024786 McGroder, S., M., However, E.C., Fishman, M., Rankin, V.E., & Helsel, F.K. (2014). Putting the pieces together: A program logic model for coaching in Head Start. From the Descriptive Study of the Head Start Early Learning Mentor Coach Initiative. OPRE Report #2014-06; Washington, DC: U.S. Department of Health and Human Services, Administration for Children and Families, Office

  • f Planning, Research and Evaluation.

Miller-Kuhaneck, H., & Watling, R. (2018). Parental or teacher education and coaching to support function and participationof children and youth with sensory processing and sensory integration challenges: A systematic review. American Journal of Occupational Therapy, 72(1), 1-11. https://doi.org/10.5014/ajot.2018.029017 Oklahoma Autism Network. (2014). ConnectedKids: Training Parents To Use Developmental and Behavioral Strategies with Their Child with Autism Spectrum Disorder. Unpublished report. Oklahoma Family Support Partnership Council. (2002). Oklahoma individual and family support principles to practice indicators. Oklahoma City, OK: Center for Learning and Leadership, College

  • f Medicine, University of Oklahoma Health Sciences.

Oono, I. P., Honey, E. J., & McConachie, H. (2013). Parent‐mediated early intervention for young children with autism spectrum disorders (ASD). Evidence‐Based Child Health: A Cochrane Review Journal, 8(6), 2380-2479. Palisano, R.J., Snider, L.M., & Orlin, M.N. (2004). Recent advances in physical and occupational therapy for children with cerebral palsy. Seminars in Pediatric Neurology, 11(1), 66-77. Parson, L., Cordier, R., Munro, N., Joosten, A., & Speyer, R. (2017). A systematic review of pragmatic language interventions for children with autism spectrum disorder. PLoS ONE 12(4), e0172242. https://doi.org/10.1371/journal.pone.0172242 Phillips, M.D. & Glickman, C.D. (1991). Peer coaching: Developmental approach to enhancing teacher

  • thinking. Journal of Staff Development, 12(2), 20-25.

Rush, D. (2018). From couching to coaching. The ASHA Leader (23)10, 46-52. https://doi.org/10.1044/leader.FTRI.2310.2018.46 Rush, D. D. & Shelden, M. (2011). The early childhood coaching handbook. Baltimore: Paul H. Brookes. Rush, D.D., & Shelden, M.L. (2006). Coaching Practices Rating Scale for Assessing Adherence to Evidence-Based Early Childhood Intervention Practices. CASEinPoint, 2(2), 1-7. Retrieved from: http://fipp.org/static/media/uploads/casetools/casetools_vol2_no2.pdf Rush, D. D., Shelden, M. L. (2005). CASEinPoint: Evidence-based definition of coaching practices. CaseinPoint, 1(6). Rush, D. D., Shelden, M.L., & Hanft, B.E. (2003). Coaching families and colleagues: A process for collaboration in natural settings. Infants and Young Children, 16(1), 33-47.

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Rush D. D., Shelden M. L., & Raab M. (2008). A framework for reflective questioning when using and a coaching interaction style. CASEtools, 1(4), 1-6. Rycroft-Malone, J., Kitson, A., Harvey, G., McCormack, B., Seers, K., Titchen, A., & Estabrooks, C. (2002). Ingredients for change: revisiting a conceptual framework. Quality & Safety in Health Care, 11(2), 174–180. http://doi.org/10.1136/qhc.11.2.174 Segal, R. (2004). Family routines and rituals: A context for occupational therapy interventions. Amercian Journal of Occupational Therapy, 58(5), 499-508. Shelden, M.L., & Rush, D.D. (2001). The ten myths about providing early intervention services in natural

  • environments. Infants and Young Children, 14(1), 1-3.

Snyder, P. A., Hemmeter, M. L., & Fox, L. (2015). Supporting implementation of evidence-based practices through practice-based coaching. Topics in Early Childhood Special Education, 35(3), 133-143. Trivette, C.M., Dunst, C.J., & Hamby, D. (2004). Sources of variation in and consequences of everyday activity settings on child and parent functioning. Perspectives in Education, 22(2), 17-35. Vismara, L. A., Young, G. S., & Rogers, S. J. (2013). Community dissemination of the Early Start Denver Model: Implications for science and practice. Topics in Early Childhood Special Education, 32(4), 223-233. Weatherby, A.M., Guthrie, W., Woods, J., Schatschneider, C., Holland, R.D., Morgan, L., & Lord, C. (2014). Parent-implemented social intervention for toddlers with autism: An RCT. Pediatrics, 134(6),1084-1093. Werner DeGrace, B. (2004). The everyday occupation of families with children with autism. American Journal of Occupational Therapy, 58(5), 543–550. Whipple, W. (2014). Key principles of early intervention and effective practices: A crosswalk with statements from discipline specific literature. Retrieved from http://ectacenter.org/~pdfs/topics/eiservices/KeyPrinciplesMatrix_01_30_15.pdf Wilcox, M.J., & Woods, J. (2011). Participation as a basis for developing early intervention outcomes. Language, Speech, and Hearing Services in Schools, 42, 365–378. Workgroup on Principles and Practices in Natural Environments, OSEP TA Community of Practice: Part C Settings. (2008, March). Agreed upon mission and key principles for providing early intervention services in natural environments. Retrieved from http://ectacenter.org/~pdfs/topics/families/Finalmissionandprinciples3_11_08.pdf