1 SIP History Societal impact of pain (SIP) is a social platform - - PowerPoint PPT Presentation

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SIP History

• Societal impact of pain (SIP) is a social platform created in 2009 which supports national

stakeholder in developing national platforms

• Joint initiative of the European Pain Federation (EFIC) and the pharmaceutical company

Grünenthal GmbH

• The Platform provides opportunity for discussion for healthcare professionals, pain

advocacy groups, politicians, healthcare insurance providers, representatives of health authorities, regulators and budget holders

• Main goals
• Raise awareness of the impact the pain has on our societies, health and economic

systems

• Exchange information and share best-practices across all member states of the EU
• To develop and foster European-wide policy strategies and activities for an

improved pain care in Europe (Pain Policy)

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Why SIP Spain?

• Great support of SIP from Spanish authorities and politicians
• The biggest number of SIP Endorser is from Spain, demonstrating high interest in SIP (96 national and regional associations)
• Including different levels and profiles with the common goal for a better pain care in Spain
• The variability of situations in Spain with different autonomous communities, patient- and political organizations can contribute

to develop future regional projects, and involvement in SIP can promote certain stakeholders as decision makers or influencers for this regional initiatives

• Supporting and facilitating the inclusion of the different regions is of great importance
• Multi-stakeholder approach
• Meetings include various speaker and stakeholders to create the best possible content to be attractive to these various roles
• Promote regional pain strategies/ plans
• Share the need of including a 360º pain management focus on the political agenda
• Patient centricity: Give “voice” to the patient

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Generate an awareness forum on the societal impact of pain (SIP) to support exchange of initiatives and new proposals focused on a better pain management with involvement of different profiles and stakeholder levels (decision makers or influencers)

WG 2: “TECHNICAL” WG 3: “PATIENT PROFILE” WG 1: “POLITICAL” Focus on exchange - best practices sharing Focus on plans for a specific interest or patient group Pain plans as priority of the system, with an adequate measurement

• Protocols or organizational structures
• Educational and training plans on pain
• Specific initiatives for the management of pain in

chronic, old, fragile or paediatric patients.

• Active patient
• Health politics initiatives
• Pain as a quality indicator for its assessment

Prioritization

• f initiatives

according to

• pportunities

assessment after SIP Working Groups Focus Potential topics

Objectives of SIP Spain

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Event coordination

Permanent commission: Steering committee includes:

Scientific societies REPRESENTING Patient Associations Management REPRESENTING Management (Quality) Patient Associations

6 JUNE JULY- AUGUST SEPTEMBER OCTOBER NOVEMBER DECEMBER

Timeline

Selection of speakers/ coordinators/ moderators

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Event planning and development of contents Selection of attendees Working with the steering committee in the definition of contents Kick-off meeting

• 3 working-groups:
• 1 coordinator
• 1 moderator
• 3 speakers
• Each group chooses 3

concrete subjects

• Each subject should

include the current situation, good practice examples, suggestions for improvement and political recommendations

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Event Program

Plenary Sessions at the Ministry of Health Working groups at a Hotel nearby

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Participants of Groupwork

Patient Associations Stakeholders from regional Health System (Health Care or Pharmacy Mgmt.) KOLs – reference for the public system, responsible of pain plans or representative of key scientific societies 35 % 40 % 25 %

75

participants

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Conclusion Groupwork

• Relevance of the systematic measurement

and assessment of pain, including patient experience (satisfaction)

• Pain level as key indicator of quality of

care received

• Management of pain should be a strategic

element of the health systems

• Training of HCP is key to ensure a proper

communication as pain is treated by different roles (continuity of pain care)

• Thus, pain should be a institutional
• bjective at all levels
• Active patient – his/her experience as

measurement of quality and shared decision making

• Ease the access to pain care – new

technologies might be of help

• Societal impact of pain is higher tan other

pathologies with more “media presence” – avoid underestimation.

• Need to investigate and work on visibility
• f special population groups (chronic,

paediatric)

• Should be a “must-have” training course

for HCP.

• “Pain belongs to everyone”
• Patients participation in the development
• f pain care plans and include their

experiences

GROUP 1 GROUP 2 GROUP 3

Pain as an indicator of quality of care Coordination and continuity of care Attention to pain in chronicity and in

• ther population profiles

24 partici pants 22 partici pants 29 partici pants

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Highlights SIP

• The development and formulation of conclusions and recommendations from the

different working groups during the symposium

• necessary to establish pain as a priority and transversal element in the framework of

national health strategies and policies

Make noise to put pain care in focus

• Unite all organizations and societies advocating better pain care to jointly address,

define and foster pain policies or regional initiatives

• Best practices sharing

Multi-stakeholder approach

• An active role of the patient in the management of pain
• Improvement of pain management would provide substantial economic and social

benefits

Patient in the center

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Impact of SIP in the media

Social media impacts

337 posts 100 Total users Reach 152160 430737 Impressions

Tipo de interacción #Hashtags

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Impact of SIP in the media

General and specialized media impacts

31 impacts 4,958,714 Audience 98,416 € ROI (Return on investment

Press Release and video news

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THANK YOU VERY MUCH!

María Soledad García Penalta PAE Board Member marisol.garcia.penalta@pae-eu.eu