You Can Make A Difference @DementiaCarerVo @tommyNtour #CNOScot - - PowerPoint PPT Presentation
You Can Make A Difference @DementiaCarerVo @tommyNtour #CNOScot https://www.alliance- scotland.org.uk/people-and- networks/dementia-carer-voices/ www.facebook.com/DementiaCarerVoices www.tommyontour2011.blogspot.com
https://www.alliance- scotland.org.uk/people-and- networks/dementia-carer-voices/ www.facebook.com/DementiaCarerVoices www.tommyontour2011.blogspot.com
tommy.whitelaw@alliance-scotland.org.uk dementiacarervoices@alliance-scotland.org.uk @DementiaCarerVo @tommyNtour #CNOScot
The heart of making a difference is not in the controlling, it’s in the unleashing
Advice from a patient
This may be a normal day at work for you But it’s a big day in my life Remember, I’m not usually this needy or scared. I am here because I trust you Please help me stay confident I may look like I’m out of I, But I can hear your conversations I’m not used to being naked around strangers Please keep that in mind I’m impatient because I want to get home Nothing personal You’re going to do what to my what? I may only be here for a few days, But I’ll remember you for the rest of my life Your patients need your patience
“People not patients”
800 Talks 160,000 People 23,000 Pledges to Make a Difference
Analysis of our pledges Analysis of our letters Our five steps to change
Supporting Rights and the Carer Voice
Supporting Rights and the Carer Voice
Turning Good Intentions into Purposeful Actions
A message from the CNO working in partnership with Dementia Carer Voices @FionaCMcQueen #CNOScot
Doyle, (2013). British Medical Journal, 3(1). Hsu, I, et al. (2012) Patient Education Counseling. 88(3). Cosley, Journal Experimental Social Psychology 46.5 (2010) 816-823
Newcastle University. Anthrozoos, Berg
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This was investigated by Sheldon and Lyubomirsky in 2004, and by Martin Seligman and others in
researchers followed up the study participants, and checked their happiness levels over time. Interestingly, they were getting happier by the week. Their happiness levels rose to 5% at one month, and to 9% by six months.
https://www.alliance- scotland.org.uk/people-and- networks/dementia-carer-voices/ www.facebook.com/DementiaCarerVoices www.tommyontour2011.blogspot.com
tommy.whitelaw@alliance-scotland.org.uk dementiacarervoices@alliance-scotland.org.uk @DementiaCarerVo @tommyNtour #CNOScot
The key thing I learned in doing my interviews for #BeingMortal: People have goals and priorities for their care besides just living longer. We have to ask what they are and align our care with them. When we don’t ask what’s important to them, the result is profound suffering. @Atul_Gawande
Route Map to the 2020 Vision for Health and Social Care
The ALLIANCE is the national third sector intermediary for a range of health and social care organisations. The ALLIANCE has over 2,500 members including a large network of national and local third sector organisations, associates in the statutory and private sectors and individuals. Many NHS Boards and Community Health and Care Partnerships are associate members. The ALLIANCE’s vision is for a Scotland where people who are disabled or living with long term conditions and unpaid carers have a strong voice and enjoy their right to live well.