You Can Make A Difference @DementiaCarerVo @tommyNtour #CNOScot https://www.alliance- scotland.org.uk/people-and- networks/dementia-carer-voices/ www.facebook.com/DementiaCarerVoices www.tommyontour2011.blogspot.com tommy.whitelaw@alliance-scotland.org.uk dementiacarervoices@alliance-scotland.org.uk
The heart of making a difference is not in the controlling, it’s in the unleashing
Advice from a patient This may be a normal day at work for you But it’s a big day in my life Remember, I’m not usually this needy or scared. I am here because I trust you Please help me stay confident I may look like I’m out of I, But I can hear your conversations I’m not used to being naked around strangers Please keep that in mind I’m impatient because I want to get home Nothing personal You’re going to do what to my what? I may only be here for a few days, But I’ll remember you for the rest of my life Your patients need your patience “People not patients”
Turning Good Intentions Into Purposeful Actions
Analysis of our letters 800 Talks 160,000 People 23,000 Pledges to Make a Our five steps to change Difference Analysis of our pledges
Compassionate Connections: the foundation of quality support & care @S4Maher
Flip the conversation from ‘What’s the Matter With You?’ To ‘What Matters to You?’ and ‘Who Matters to You?’ Supporting Rights and the Carer Voice
Ask what matters Do what Listen to matters what matters Supporting Rights and the Carer Voice
#WMTY19 whatmatterstoyou.scot
Turning Good Intentions into Purposeful Actions
A message from the CNO working in partnership with Dementia Carer Voices @FionaCMcQueen #CNOScot
The Importance of Compassionate Care
What Matters To Me
I got the eye of the tiger, a fighter Dancing through the fire 'Cause I am a champion, and you're gonna hear me roar Louder, louder than a lion 'Cause I am a champion, and you're gonna hear me roar!
The milk of human kindness… Pain Anxiety BP LOS Readmissions Wound healing Doyle, (2013). British Medical Journal, 3(1 ). Hsu, I, et al. (2012) Patient Education Counseling . 88(3). Cosley, Journal Experimental Social Psychology 46.5 (2010) 816-823
Newcastle University. Anthrozoos , Berg Publishing. November 27, 2008 The importance of relationships and kindness
Every nig night, jus ust be before you go o to to be bed, sit sit do down for or a a whil hile an and loo ook ba back at t you our da day. Then think of of 3 3 things that went well ll for or you du during the da day. Writ ite them do down. . Refle lect an and br brood upon eac up each of of them. This was investigated by Sheldon and Lyubomirsky in 2004, and by Martin Seligman and others in 2005. After just one week, the participants were 2% happier. But the magic started here onward. The researchers followed up the study participants, and checked their happiness levels over time. Interestingly, they were getting happier by the week. Their happiness levels rose to 5% at one month, and to 9% by six months.
You Can Make A Difference The key thing I learned in doing my interviews for #BeingMortal: @DementiaCarerVo @tommyNtour People have goals and priorities for #CNOScot their care besides just living longer. https://www.alliance- We have to ask what they are and scotland.org.uk/people-and- align our care with them. networks/dementia-carer-voices/ When we don’t ask what’s important www.facebook.com/DementiaCarerVoices to them, the result is profound suffering. www.tommyontour2011.blogspot.com @Atul_Gawande tommy.whitelaw@alliance-scotland.org.uk dementiacarervoices@alliance-scotland.org.uk
The ALLIANCE projects Route Map to the 2020 Vision for Health and Social Care
The Health and Social Care Alliance Scotland The ALLIANCE is the national third sector intermediary for a range of health and social care organisations. The ALLIANCE has over 2,500 members including a large network of national and local third sector organisations, associates in the statutory and private sectors and individuals. Many NHS Boards and Community Health and Care Partnerships are associate members. The ALLIANCE’s vision is for a Scotland where people who are disabled or living with long term conditions and unpaid carers have a strong voice and enjoy their right to live well.
ALLIANCE Programmes
ALLIANCE Programmes
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