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Supporting young carers in the workforce: a case for change Presenter: Freya Saich Authors: Freya Saich and Carolina Simpson Carers NSW About The peak non-government organisation for people in New South Wales (NSW) who provide informal care


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Supporting young carers in the workforce: a case for change

Presenter: Freya Saich Authors: Freya Saich and Carolina Simpson

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The peak non-government organisation for people in New South Wales (NSW) who provide informal care and support to a family member or friend who has a disability, mental illness, drug or alcohol dependency, chronic condition, terminal illness or who is frail. Our vision is an Australia that values and supports all carers. Our goals are to:

  • Work with carers to improve their health, wellbeing, resilience and

financial security

  • Have caring recognised as a shared responsibility of family, community

and government

About

Carers NSW

Vision

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Overview

  • Context
  • Demographics
  • Carers NSW 2016

Carer Survey

  • Typical respondent

Young carers

  • Hours of care
  • Care tasks
  • Independence of the

care recipient

  • Informal supports
  • Use of formal services

The caring role

  • Hours of work
  • Flexible working
  • Work/life balance

Working Conditions

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  • A carer is anyone who provides care and support to a family member or

friend with a disability, mental illness, drug or alcohol dependency, chronic condition, terminal illness or is frail.

  • A primary carer is the person who provides the most care to someone.
  • A young carer is anyone who has a caring role and is under the age of

25, including children and teenagers.

Definitions

Context

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  • There are over 270,000 young carers in Australia*
  • This is an underestimate as many young carers are ‘hidden’, i.e. don’t

identify as a carer, or are not recognised as such.

Young carers Young primary carers

  • There are over 20,000 young primary carers in Australia (15-24 only)*
  • Young primary carers predominantly care for a parent, but sometimes

their own child or partner*

  • Approximately 40% of young primary carers provide over 20 hours of

care each week*

  • Carers NSW estimates that in one year alone young primary carers

would save the government $750 million in replacement care costs.**

Demographics

*Australian Bureau of Statistics (2016) ** Carers NSW estimates based on Deloitte Access Economics (2015)

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  • Higher rates of absenteeism, difficulties completing homework.*
  • Less likely to finish year 12 and have a post-secondary education.*

Educational Attainment Workforce Participation

  • Lower workforce participation.**
  • More likely be out of the labour force – combination of lower educational

attainment and ongoing caring responsibilities.

  • Require support to participate in education and employment, and flexibility

to balance work/study and care.

Demographics

*Hill et al. (2011) **Cass et al. (2011); Bray (2012)

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  • Approximately 2,000 respondents to the survey
  • 41 young carers (aged 16-25) responded to the survey
  • The majority (82%) of employed young carers were working on a casual
  • r part time basis.

Respondents

Carers NSW 2016 Carer Survey

1958 22 19 41 respondents young carers employed unemployed

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Carers NSW 2016 Carer Survey

Typical young carer respondent Employed young carer

Tertiary educated Worked casually in a job lower than their skillset for 20hrs/week Cared for 20 hrs/week Care recipient did not access formal services

Unemployed young carer

Not tertiary educated Receiving an income support payment Cared for more than 70 hrs/week Care recipient accessed formal services but this did not reduce their caring role

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Hours of care

Aspects of the caring role

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Care tasks

Aspects of the caring role

Care tasks required from carers People with disability requiring such care (%) Communication 90.2 Reading/writing 89.9 Meal preparation 89.9 Mobility 89.3 Transport 86.6 Coping with emotions 84.2 Self-care 80 Household chores 76.1 Property maintenance 70.1 Healthcare 52.4

*Australian Bureau of Statistics (2017)

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Independence of the person being cared for

Aspects of the caring role

Not at all < 1 hour Few hours 1 day Few days More than few days Employed 31.80% 4.50% 27.30% 4.50% 9.10% 22.70% Unemployed 26.30% 10.50% 36.80% 5.30% 15.80% 5.30%

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  • People who started caring at a young age and cared for many years

generally had less support from family and friends than other carers.

  • Only half of young carers said that there was someone else available to help

them care.

  • This is unsurprising given the isolation young carers often experience due to

the demands of their caring role.

Informal support networks

Aspects of the caring role

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  • Formal services may result in a reduction of caring responsibilities
  • However, only half (51%) of the young carer respondents reported that

the person they cared for received formal services.

Use of formal services

Aspects of the caring role

41% 59% 58% 41%

Uses formal services Does not use formal service Employed carers Unemployed carers

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Nearly half (45%) of those who accessed formal services said that they did not reduce their caring role at all.

Impact of formal services on caring role

Aspects of the caring role

44% 22% 22% 11% 46% 36% 18% Not at all A little Moderate amount A lot

Unemployed carers Employed carers

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Comments about formal services

Aspects of the caring role

Not enough care hours for the person receiving the care. Provides too much stress and strain on the carer, especially a young carer. There are no current services available to provide support or respite to my dad in times

  • f crisis other than hospital…I work part time

and study part time at university and as such have no time to go through another application for him. My brother went to a respite home… it was horrible, they didn’t provide any services, would let him wander everywhere at anytime by himself and made him pay for his own food and at

  • ne point they just kicked him out...
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Impact on work

Working conditions

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Flexible working arrangements

Working conditions

5% 0% 0% 18% 36% 23% 27% 46% 18% 23% 46% 18% 14% 32% 14% 5% 23% 18% 5% 9% Flexible start/finish times Able to leave at short notice Taking time in lieu Working from home

Not available and wouldn’t use Not available but would use Don’t know if available Available but not used Available and used

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Flexible working arrangements

Working conditions

18% 32% 9% 9% 14% 18% 36% 32% 32% 14% 9% 32% 18% 9% 5% Reduced working hours Job sharing Employer supports Not available and wouldn’t use Not available but would use Don’t know if available Available but not used Available and used

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Carer’s leave

Working conditions

Not available and wouldn’t use 9% Not available but would use 19% Don’t know if available 48% Available but not used 19% Available and used 5%

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Employer knows about caring role

Working conditions

Employer knows about caring role 46% Employer does not know about caring role 54%

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Satisfaction with work/life balance

Working conditions

24% 14% 43% 14% 5% Strongly disagree Disagree Neither Agree Strongly agree

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Considered quitting

Working conditions

27% 23% 27% 14% 5% 5%

Never Rarely Occasionally Fairly often Very often Extremely often

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I love my job so much, I'm really lucky to have such a great job at my age. It's honestly so much fun and so rewarding, even if it is tiring.

Young Carers’ Comments

Working conditions

They were great initially until I became unwell myself & needed time off. Now they see me as a constant pain. Unsure of whether to disclose caring role as it's such a heavy thing on someone's shoulders to know…

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Carers NSW recommends that governments:

Recommendations

Encourage employers to invest in flexible working arrangements Ensure adequate formal care services, including respite services, are available Fund programs to enhance young carers’ social networks Assess young carers’ support needs when planning for the individualised funding packages Fund more tailored supports for young carers who are employed,

  • r seeking employment

Remove disincentives to undertake paid work whilst receiving the Carer Payment

4 5 6 1 2 3

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  • Australian Bureau of Statistics (2016) Disability, Ageing and Carers, Australia: Summary of findings,

2015, Carer tables, Canberra.

  • Bray, R. (2012), Young carers in receipt of Carer Payment and Carer Allowance 2001 to 2006:
  • characteristics, experiences and post-care outcomes, Occasional Paper No. 47, Social Policy

Evaluation, Analysis and Research Centre, Australian National University.

  • Cass, B., Brennan, D., Thomson, C., Hill, T., Purcal, C., Hamilton, M., and Adamson, E. (2011),

Young carers: Social policy impacts of the caring responsibilities of children and young adults, Report prepared for ARC Linkage Partners

  • Deloitte Access Economics (2015), The economic value of informal care in Australia in 2015, Carers

Australia, Canberra.

  • Hill, T., Thomson, C. and Cass, B. (2011), ‘Young Carers: Location, Education and Employment

Disadvantage’, Australian Journal of Labour Economics, vol. 14, issue 2, pp. 173-198. To read the full report: Carers NSW (2017) Young Carers: Barriers to accessing employment , Carers NSW, North Sydney, available online at: https://www.carersnsw.org.au/Assets/Files/Young%20Carers_Barriers%20to%20Accessing%20Employ ment.pdf

References

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www.carersnsw.org.au

Freya Saich | Policy and Development Officer freyas@carersnsw.org.au (02) 9280 4744