What's Out There? Kathy Mitchell, NOFAS Vice-President Andy Kachor, - - PowerPoint PPT Presentation
Resources for Families Living with FASD: What's Out There? Kathy Mitchell, NOFAS Vice-President Andy Kachor, NOFAS Communications Director Objectives Participants will: 1. Learn about the existing resources available for families living with
Kathy Mitchell, NOFAS Vice-President Andy Kachor, NOFAS Communications Director
Participants will: 1. Learn about the existing resources available for families living with FASD. 2. Get information on FASD diagnosis and what to do next. 3. Learn how to access resources. 4. Learn about free and low-cost materials and resources.
Mission: NOFAS prevents FASD, raises awareness about the risk
individuals, families, and communities living with FASD. Vision: The vision of NOFAS is a global community free of alcohol-exposed pregnancies and a society supportive of individuals already living with FASD.
available.
unfortunately, they may not meet every need.
find a local FASD-informed service provider.
locating FASD-informed providers.
NOFAS has a directory of resources listed by state.
Categories:
New NOFAS Resource Directory Search Form
Many parent support groups can be found through the NOFAS Resource Directory or by contacting members of the NOFAS Affiliate Network.
NOFAS has over 40 affiliates that provide additional resources to families living in their geographic area.
Dealing with uninformed providers can be frustrating. Search the NOFAS Resource Directory or contact NOFAS affiliates to locate FASD-informed service providers and professionals in your area. Families often need to inform the provider about FASD.
FASD-specific needs.
Fetal Alcohol Syndrome: Guidelines for Referral and Diagnosis
an FAS Diagnostic Evaluation
Affected Individuals and their Families
FASD is included in the DSM-5 and ICD-10-CM. These codes are needed to get reimbursement for medical services.
CDC Intervention Brochure: 4 Programs that work
Copies are available from NOFAS.
8 Magic Keys: Strategies for Students with FASD
DVD available from NOFAS.
Don’t limit your search to only resources that are specific to FASD by name. Look into:
To eliminate the stigma
individuals living with an FASD and succeeding. Interviews include a wide range of ages and backgrounds
Get to Know Me: Interview Series
Video Interviews with individuals with FASD, as well as FASD experts from a range of disciplines. YouTube channel: Alcohol-free Pregnancy
DVDs available from NOFAS
The NOFAS website includes a dedicated criminal justice webpage:
(FASD Resolution)
disabilities such as Attention Deficit Hyperactivity Disorder (ADHD) services.
benefit the individual and indirectly help their FASD- related issues.
The NOFAS website has many resources for parents and caregivers: www.nofas.org/parents. The website is constantly being updated and includes many resources, such as:
Resources are
category. These listings are continually being updated.
and Parent Workbook The NOFAS Ohio Affiliate, Double ARC has developed and tested separate training curricula for parents and teachers.
The Fetal Alcohol Spectrum Disorders (FASD) Education Strategies Handbook is a product of the National Organization on Fetal Alcohol Syndrome-South Dakota (NOFAS-SD) at the Center for Disabilities.
This booklet was produced by the Bluegrass Prevention Center through the Sycamore Project: Kentucky’s Prevention Enhancement Site for Fetal Alcohol Spectrum Disorders.
Created to support, educate, and empower caregivers and teachers to work with children to improve behavior and arousal to achieve learning readiness and math skills. For more information on how to receive training to become a MILE instructor or more information about this program, email Dr. Taddeo at etaddeo@emory.edu or call 404-712-9800.
Approved by the Council for Exceptional Children, these lesson plans enable students with learning disabilities to gain important personal finance skills.
Interactive math site for teaching essential math skills.
Use these cognitive exercises to help your child build concentration and improve their symptoms.
From storytelling to problem solving, these activities can be used to help fill in the dreaded gaps that are experienced between lessons
Helps children with FASD, their families, and the professionals who care for them. It is a positive parenting program designed for children from ages 3 to 13 (approximately).
The social deficits that are often involved with FASDs can have a significant negative impact on children who are not able to make or keep friends. Good Buddies was developed to give children with an FASD social skills training to help make this process easier. You can
contacting moconnor@mednet.ucla.edu or 310-206-6528.
Some children and adults with special needs struggle in the area of social interactions. This long list of activities can help teach children to successful with social exchanges.
Create a monster punching bag from things you have in your home to encourage your child to work on their gross motor skills.
the materials you have, and site will recommend an activity This activity works on pincer grasp by sorting different colored ribbons using tweezers.
Learn about materials that can promote fine motor skills along with some activities to do with them.
The Parents and Children Together (PACT) intervention was designed to help children with FASDs and their parents team strategies to cope with deficits in self-regulation and executive functioning. For more information about PACT, visit www.childstudy.org or email irachasnoff@gmail.com.
http://www.encourageplay.com/blog/10-strategies-to-help-kids- calm-down
This unique hands-on activity helps students who are highly anxious cope with their stress by systematizing social and emotional information.
Learn about sensory activities with the leaves including raking leaves, jumping in the pile, playing hide and seek, and making a leaf race.
Developed by Pediatric Occupational Therapists
When your child needs a break from school work or long activities, tips on how to keep them energized and focused!
Great game to teach young children about emotions through a creative charade-like dice game.
Avoid melt downs, whining, and crying with these very easy games you can make and play while waiting at restaurants!
Search for these apps in your mobile app store.
Therapeutic hand exercises (not games) to improve fine motor skills. Activities take full advantage of the multi-touch interface to help build strength, control, and dexterity.
This app offers a variety of interactive games, some of which focus on identifying and matching shapes, colors, letters, and managing self-help skills. Your kids will love playing “Icky Bathtime Fun,” a game that teaches hygiene lessons such as showering and tooth
and the app tracks your child’s performance level. A “report card” provides detailed reports on study time and completed skills, which is udeful to determine strength and weaknesses.
Kids with learning disabilities have difficulty recognizing emotions and facial expressions; this app, created by TouchAutism.com, uses social stories and simple illustrations to show what different feelings look like. The app also explains why people may feel a certain
speech therapy sessions.
From shadow boxes to spin art, find the perfect craft to do with your child.
This is a collaborative board for ideas in teaching students with disabilities in the secondary grades (middle/high/adult).
Here are some tips and fun things to do with your child if they have a disability or additional needs.
children with disabilities Some fun crafts for kids that help with fine motor skills, colors, sensory, and more!
Exceptional Needs from School to Community The document is intended for transition planning partners, including Manitoba Family Services and Housing, designated agencies, Child and Family Services Authorities and Agencies, Manitoba Health and Healthy Living, regional health authorities and their programs and services, Manitoba Education and educators in Manitoba.
Moving from High School to Postsecondary Education, Training, and Employment By: Sharon Townsend
In this audio podcast, Salle, the mother of a high school student with Aphasia, discusses the LEAD (Learning and Education about Disabilities) program at her daughter Hillary’s school.
The NOFAS website has resources for adults living with FASD. NOFAS has compiled a list of resources and information to help families and caregivers better manage FASD in adulthood. Topics:
SAFA began in March of 2011 and was the first national self- advocacy group created by and for people with FASD.
Finding housing which is appropriate for the needs of someone with FASD may be difficult. Some adults may be able to live outside of a group home. It is important for the caregivers to continue to assist their child in daily activities. An adult with FASD may struggle to remember to pay rent or utility bills, so the caregivers must stay involved.
This booklet offers an introduction to FASD and suggested accommodations to assist in supporting these citizens. It can be used as a tool as you develop your own knowledge and ways to support success.
This eBook is about how caring adults, siblings and professionals can help people with FASD transcend their disabilities.
This resource by Rod Densmore offer a way to understand body and brain differences caused by prenatal alcohol exposure. Information
hopeful strategies for youth and young adults: The goal of this handbook is to help young people, like you, learn more about Fetal Alcohol Spectrum Disorder (FASD). It also offers strategies that you can use to better understand yourself, improve your relationships, manage your feelings, do better in school and live a healthy life.
NOFAS works with many partner organizations, which have resources for FASD. Government Agencies :
Non-Profit Organizations:
FASD resources from the Centers for Disease Control and Prevention (CDC)
Fetal Alcohol Spectrum Disorders: Competency-Based Curriculum Development Guide
the Fetus
Assessment for Treatment Planning
for Persons with an FASD
FASD resources from the SAMHSA FASD Center for Excellence
TIP 58: Addressing FASD
Intervention
NOFAS FAS Circ rcle le of Hope e Birt rth h Mothers thers Netw etwor
k
Mit itchell@no chell@nofa fas. s.org
for birthmoms
Mission The mission of the Circle of Hope is to increase understanding and support and strengthen recovery for women who drank during their pregnancy (s), and their families.
Goals
The NOFAS Kindergarten through 12th Grade (K-12) FASD Education and Prevention Curriculum is an innovative, first-of-its- kind program that has been proven successful in classrooms across the United States. The curriculum is both educational and fun and consists of the following four modules:
NOFAS FASD Month has a webpage NOFAS and its partners and fellow advocates from across the FASD community are thrilled to announce that the first ever Fetal Alcohol Spectrum Disorders (FASD) Awareness Month is September 2015!
Join the campaign! www.nofas.org/stigma Join NOFAS and the NOFAS Circle of Hope to stop the stigma of birth mothers of children with FASD and the stigma of all individuals and families living with the disorders.
6 VISUAL ALS S – 9 LANGUAGES GES
THE E NET ETWOR ORK 27 countries coordinated by Diane
ne Blac ack, chair of EUFASD Alliance
Contact NOFAS at www.nofas.org