WFH GAP PROGRAM Alain Weill, WFH President March 5, 2017 GLOB A L - - PowerPoint PPT Presentation

WFH GAP PROGRAM

Alain Weill, WFH President

March 5, 2017

GLOB A L A LLIA N C E FOR PR OGR ESS ( G A P) PR OGR A M

• Flagship WFH

healthcare development project

• Launched in 2003
• Foster partnership

between government, healthcare providers and patients

• Develop sustainable

national care programs

• Multi-sponsored

program

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GA P: 10 YEA R STR ATEG IC GOA LS ( 2013 - 2022)

Second Decade of GAP

Identifying an additional 50,000 people with inherited bleeding disorders by 2022, with 50% of them living in the world’s poorest regions

Results to date

• 30,296 have been identified globally
• Including 6,852 from the poorest

countries

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GA P SEC ON D D EC A D E: C OMPON EN TS

TIER 1 CONTINUE SUCCESSFUL STRATEGY OF GAP TIER 2 ADVANCE ACHIEVEMENTS POST GAP TIER 3 ASSIST COUNTRIES WITH MID-LEVEL TREATMENT

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GA P SEC ON D D EC A D E: C OMPON EN TS I. Full-GAP Program: Continuation of current GAP working on all 6 pillars of WFH Development Steps Model II. Post-GAP Program: Post-GAP countries which would benefit from additional support in advancing a National Country Program, building up on GAP Phase 1 achievements or improving sustainability of Phase 1 III. Mid-Level GAP Program: Intermediate level countries which need help in moving forward to the next level of care

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W FH D EVELOPMEN T MOD EL

A step-by-step process to reach sustainable care across six distinct but interrelated pillars

Build a strong national patient

• rganization

through capacity Improve care delivery Improve medical expertise and increase accurate laboratory diagnosis through training Achieve government support through advocacy Increase access to safe treatment products Track national demographic data

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GA P PA R TIC IPATIN G C OU N TR IES: 2003 - 2 0 1 6

TOTAL: 26 countries / 31 programs

South Africa China Philippines Russia Belarus Moldova Georgia Azerbaijan Armenia Tunisia Algeria Morocco Thailand Syria Lebanon Egypt Jordan Ecuador Mexico Peru Honduras Colombia Brazil Serbia Turkey Vietnam

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GA P OVER A LL A C H IEVEMEN TS: 2003 - 2 0 1 6 81,212 new PWH diagnosed/registered globally (end 2015) 26 countries enrolled; 31 multi-year national bleeding disorder care development plans drawn up 19 GAP MoU signed 29,247 PWH / 4,824 VWD / 3,160 RBD diagnosed in GAP countries 16,449 new patients, family members, and (NMO) board members trained / 23,366 medical professionals trained Treatment product access: Over 4.642 billion IUs purchased

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GA P A C H IEVEMEN TS: JA N U A RY - D EC EMB ER 2016

Overall Results

12 active countries / closing of GAP South Africa and GAP Moldova (end 2015) 4 new GAP countries in 2016: Vietnam (T1), China (T2), Morocco (T2), and Turkey (T3) 2 GAP MoUs signed (Jordan, Vietnam) and continued discussions and negotiations on other MoUs (Honduras, Serbia) Continued collaboration following signed MoUs (Algeria, Colombia, Egypt and Morocco) 462 new patients with hemophilia, 157 with VWD, 134 with rare clotting factor deficiencies diagnosed / registered in GAP countries Over 710 million IUs increase in product supply

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2017 GA P C OU N TRY PR OGR A MS

Europe

• Serbia
• Turkey

Middle East

• Egypt
• Jordan
• Morocco
• Tunisia (NEW Tier 2)

Americas

• Colombia
• Honduras
• Brazil
• Uruguay (NEW Tier 3)

TOTAL: 13

Asia

• China
• Vietnam
• Malaysia (NEW

Tier 3)

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GA P VIETN A M ( TIER 1 – FU LL - GA P PR OGR A M)

*Population, Confirmed number of PWH & Factor VIII usage : Global Survey 2014 *GNI per capita & Public Health expenditure: World Bank

• Population (2014): 93,421,835
• GNI per capita (2015): 1,980 (US$)
• Public Health expenditure,(% of GDP)

(2014): 3.8

• Expected number of people with hemophilia /

prevalence: 6,213

• Confirmed number of people with hemophilia

(2014): 2,373

• Factor VIII usage (2014): 0.099 IU per capita

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G A P M O U S I G N I N G C E R E M O N Y: S E P T E M B E R 2 1 , 2 0 1 6

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GA P PLA N N IN G VISIT – FEB R U A RY 13 - 14, 2017

During February 13-14, 2017, a visit was organized in Vietnam to develop a detailed action plan for the GAP Program. 13

VIETN A M D EVELOPMEN T PLA N : MA IN OB JEC TIVES

Government support for a national hemophilia care program Strengthening exiting network of 7 hemophilia treatment centres Development of medical expertise of HCPs in selected 7 HTCs Increase the supply

• f factor concentrates

and increase factor concentrates access for patients Expand NMO and increase its lay leadership and number

• f active volunteers

Support development and implementation a national registry 14

SU PPOR T TO VIETN A M TH R OU GH OTH ER PR OGR A MS

WFH Humanitarian Aid Program donations (3 M ius in 2016) Participation in the WFH Global NMO Training, international meetings, and congresses Vietnam – Ireland HOT Twinning Program, 2011-2014 Hanoi (NIHBT) – Melbourne (Alfred Hospital) HTC Twinning Program 2011-2014 Participation in the ASEAN Hemophilia Network meetings/ workshops 15 Training of healthcare professionals through WFH IHTC Fellowship Program

Improve laboratory diagnosis standards through participation in IEQAS

THANK YOU