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Th k h f h f ll i lib i W bJ i ff Thanks to the generous support of the following state library agencies, WebJunction offers webinar programs for free to all who wish to attend: Florida Department of State’s Division of Library and Information Services Illinois State Library Indiana State Library Mississippi Library Commission State Library of Ohio Access Pennsylvania Texas State Library & Archives Commission Maine State Library Minnesota State Library Agency & Minitex Library of Virginia Washington State Library
Jennifer Peterson WebJunction Community Manager Kendra Morgan OCLC Senior Program Manager Community Manager Program Manager
Liz Morris
Health Happens in
McCrae Parker
Senior Program pp Libraries Project Coordinator, WebJunction Senior Program Manager, ZeroDivide
Emily J. Hurst
MSLS, Technology Coordinator
Vanessa Mason
Senior Manager Coordinator, National Network
Medicine, South Central Region Senior Manager, eHealth ZeroDivide Central Region
Technology Planning for eHealth
May 28, 2014
www.zerodivide.org
Personal health records (PHRs) and Disease management tools SMS and mobile apps records (PHRs) and patient portals tools
b db d d bil d
Digital Divide
Design and U bilit
Usability
P i f H l h d i i y y
Education and Awareness
Awareness
Trade Unions
Libraries
Community- Based Orgs Patron Faith-Based Orgs
24-Hour Call Call Centers Community Clinics
Leadership, Communications & Delivery
Developing Aspiring Promising Leading
strengthening tech
tool to achieve cross functional strengths
integration; review
metrics for guiding
planning processes in place functional strengths
with clear goals, metrics process
communications toward mission outcomes
in program and service delivery
leverage tech with understanding of constituents
perspectives incorporated into program designs mission outcomes
appropriate tech infusion; mobile tech
have connections at home
people rely on libraries for broadband connectivity
searched for health information online
smartphone owners have
more chronic conditions have search for health i f ti li searched for health information using their phone 19% f t h information online
have downloaded an app
health literacy is $106‐ 238 billion dollars
insuring all of the 47 million uninsured
From NN/LM Health Literacy site: http://nnlm.gov/outreach/consumer/hlthlit.html
Program Population Partnership
Miami Public Library Miami Oklahoma Miami, Oklahoma Supporting health literacy and ACA information as part of library goal San Antonio Public Library to provide lifelong learning for residents San Antonio, TX Incorporated ACA information services with existing health and services with existing health and wellness resources; provide dedicated space for application guidance with trained professionals
www.giglibraries.net
B db d T h l H lth Broadband Technology Health
Public
Building Digital Communities ALA Tech Terms Worksheet
Understanding of Basic Health Insurance
The Library in a Networked Library Branch Needs
Concepts
Health Reform
Networked World: ALA Self‐ Assessment Tool Needs Assessment Survey
Health Reform
Locating Health g Services Nearby Tool
Emily J Hurst MSLS Emily J. Hurst, MSLS Technology Coordinator National Network of Libraries of Medicine South Central Region South Central Region TMC Library Houston, Texas
HEALTH INFORMATION ONLINE HEALTH INFORMATION ONLINE
medical condition.
Health Online 2013. Susannah Fox and Maeve Duggan. Pew Research Internet
HIPAA
HIPAA
Health Insurance Portability and Accountability Act of 1996 (HIPAA)
ONLINE INFORMATION SHARING
ONLINE INFORMATION SHARING
A tremendous amount of health related information is found
Interne
individuals to share information on specific diseases and health conditions. Websites dispense a wide variety of p y
There is no no guarant guarantee that ee that inf information y rmation you u disclose disclose in an in any y of
these forums rums is conf is confidential.
Always re ys revie view the privacy the privacy policy of an policy of any w y websit bsite y e you u visit. visit.
https://www.privacyrights.org/medical-records-privacy
PHRS AND PRIVACY
Not all Not all Personal Health Records (PHRs) are mandated to be
PHRS AND PRIVACY
Not all Not all Personal Health Records (PHRs) are mandated to be HIPAA compliant. When selecting a PHR individuals individuals should e should evaluat aluate priv privacy acy When selecting a PHR, individuals individuals should e should evaluat aluate priv privacy acy policies policies to decide if they are comfortable with the protections and rights offered, such as how their information will be safeguarded for what purposes their information will be used safeguarded, for what purposes their information will be used and disclosed, and the extent to which the individual will control access to information in the PHR.
http://www.hrsa.gov/healthit/toolbox/HealthITAdoptiontoolbox/PersonalHealthRec
LIBRARIES AND PRIVACY
LIBRARIES AND PRIVACY
ALA
rarybill/interpretations/privacy
privacy policy?
h // l / d / i fid
ntiality/toolkitsprivacy/Developing-or- Revising-a-Library-Privacy-Policy
DISCLAIMERS
Consider updating disclaimers to include online privacy
DISCLAIMERS
Consider updating disclaimers to include online privacy statement.
ENCOURAGE ENCRYPTION
Hyper Hypertext T t Transf ansfer Pr er Protocol
Secure (HTTPS HTTPS)
ENCOURAGE ENCRYPTION
Hyper Hypertext T t Transf ansfer Pr er Protocol
Secure (HTTPS HTTPS) provides secure communication over a computer network. Protects against:
HTTPS is not an anonymity tool. What libraries can do:
SEARCH TOOLS
DuckDuckGo
SEARCH TOOLS
DuckDuckGo
St t g Startpage
Blekko
NLM AND PRIVACY
The National Library of Medicine (NLM) does not collect any
NLM AND PRIVACY
The National Library of Medicine (NLM) does not collect any personally identifiable information (PII) about you when you visit our Web sites unless you choose to provide that information to us.
WHAT ELSE IS THERE
Antivirus
WHAT ELSE IS THERE
Antivirus Privacy/Protective Monitor Screens Private area for reviewing online health information User Training
MLA CHIS
Consumer Health Information Specialist (CHIS):
MLA CHIS
Consumer Health Information Specialist (CHIS): https://www.mlanet.org/education/chc/ CHIS will keep you current in the consumer health information CHIS will keep you current in the consumer health information field by providing access to educational resources and new ideas in the field. It will also help you obtain increased expertise in the area of consumer health expertise in the area of consumer health.
RESOURCES RESOURCES
The Medical Libr The Medical Library Association Gu Association Guide t ide to Pro Providing Consumer and iding Consumer and Patient Health Infor Patient Health Informatio ation. . Edited by Michele Spatz. Personal Health R
cords and s and the the HIP HIPAA Priv AA Privac acy Ru Rule: le: y http://library.ahima.org/xpedio/groups/public/documents/government /bok1_042307.pdf#page%3D1 When HIP When HIPAA applies t AA applies to mobile applications: mobile applications: htt // bih lth /11261/ h hi li t bil http://mobihealthnews.com/11261/when-hipaa-applies-to-mobile- applications/ Find and Find and Ev Evaluat aluate Health Inf Health Information on rmation on the the Web: eb: https://www mlanet org/resources/userguide html https://www.mlanet.org/resources/userguide.html MLA Consumer and MLA Consumer and Patient tient Health Inf Health Information Section (CAPHIS): rmation Section (CAPHIS): http://nnlm.gov/outreach/consumer/ethics.html Health Inf Health Information in rmation in Librarie Libraries (ALA): s (ALA): http://www.ala.org/tools/atoz/health-information-libraries
CONTACT CONTACT
E il J H t MSLS Emily J. Hurst, MSLS Technology Coordinator National Network of Libraries of Medicine National Network of Libraries of Medicine South Central Region emily.hurst@exch.library.tmc.edu (800) 338 7657 (800) 338.7657
This project has been funded in whole or in part with Federal funds from the National Library of Medicine, National Institutes of Health, under Contract No. HHSN-276-2011-00007-C with the Houston Academy