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Third Periodic Review Dissemina(on and training ac(vi(es Edwin Morley-Fletcher - WP18 Brussels, 12 th May 2016 Dissemina(on Objec(ves of Y3 All forecasted objec?ves have been achieved: Dissemina(on objects: six video-clips have been created

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SLIDE 1

Third Periodic Review

Dissemina(on and training ac(vi(es

Edwin Morley-Fletcher - WP18

Brussels, 12th May 2016

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SLIDE 2

Dissemina(on Objec(ves of Y3

All forecasted objec?ves have been achieved:

  • Dissemina(on objects: six video-clips have been created and

uploaded on MD-Paedigree’s Youtube channel

  • Ac?ve par(cipa(on in major dissemina(on events:
  • Exhibi?on Booth and a Networking Session within the ICT2015

conference in Lisbon

  • Speakers Corner at ehealth Week in Riga
  • Various other networking events, especially in rela?on to Big Data

in health.

  • The annual NewsleKer (special issue 4-5) was published, and

is available online, as pdf to be downloaded, and on printed version.

  • D18.3 Training event was ?mely submiUed on M30.

Brussels, 12th May 2016

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SLIDE 3

Dissemina(on Objects

  • Six video-clips intended to present in a concise

way the MD-Paedigree’s areas.

  • All relevant partners were involved in the

crea?on of the various video clips

Brussels, 12th May 2016

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SLIDE 4

ICT2015 (1)

  • MD-Paedigree took part in “ICT 2015: Innovate,

Connect, Transform: 20th -22nd October 2015, Lisbon”, with a booth jointly organized in coopera?on with GÉANT and Cardioproof

Brussels, 12th May 2016

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SLIDE 5

ICT2015 (2)

  • The booth was visited by Commissioner Carlos Moedas and

the Portugues Minister of Educa(on and Science Nuno Crato.

Brussels, 12th May 2016

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SLIDE 6

Our presence at ICT2015 (3)

MD-Paedigree also had a Networking Session where a discussion paper on “Enhanced Consent: a vision for Pa?ent Data Protec?on and Data Management” was successfully presented.

Brussels, 12th May 2016

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SLIDE 7

md-paedigree.eu Regularly updated and op?mised:

  • A new video sec?on was created, embedding

the videos published on the YouTube channel.

  • New banners were designed for the

homepage

  • A cookie consent module was implemented in

compliance with the EC’s latest guidelines

Brussels, 12th May 2016

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SLIDE 8

md-paedigree.eu (2)

Brussels, 12th May 2016

  • The website is regularly visited, with 57,8% of online sessions

from new visitors from all over the world

  • In total, around 3,000 sessions were recorded on

md-paedigree.eu from March 2015 to February 2016, with altogether over 8,000 page views.

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SLIDE 9

Social Media

  • A social network strategy has been implemented to reinforce

public outreach.

  • MD-Paedigree’s TwiUer account has been regularly updated

and counts now around 100 followers (with 24,000 tweet visualisa(ons, 2,000 profile visits, and 100 men(ons).

  • Successful interac?ons have taken place with eHealth- and

Big Data in healthcare- related accounts.

Brussels, 12th May 2016

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SLIDE 10

Seminars, Workshops and Concerta(on Ac(vi(es (1)

  • Workshop on Clinical Data Management and Sustainability (in concerta?on VPH-Share and pMedicine),

March 17-18th 2015, Barcelona (Spain)

  • E-health week 2015(WoHIT/HIMSS), 11th-13th May 2015, Riga (Latvia): Speakers Corner
  • Bio-Techno-Prac?ce Workshop on “In Silico Medicine: philosophical founda?ons and biomedical

applica?ons”, June 3rd, 2015, Barcelona (Spain)

  • HIMSS Privacy & Security Forum, 29 June-1 July 2015, Chicago-Ill. (USA)
  • RDA (Research Data Alliance) 6th Plenary Session, 23rd September 2015 Paris (France)
  • ENISA Annual Privacy Forum, 8th October 2015, Luxembourg: Invita?on to Edwin Morley-Fletcher to

aUend as speaker the Panel on Big Data

  • ICT 2015, MD-Paedigree joint booth with Géant and Cardioproof, 20th-22nd October 2015, Lisbon

(Portugal). Joint booth with Cardioproof and Géant, Networking Session on Pa?ent Data Privacy and Enhanced Consent.

  • European Data Forum, 16th-17th November 2015, Luxembourg
  • EC round-table on personal informa?on management, 27th November 2015, Brussels (Belgium)
  • RDA 7° Plenary Session, 29th February-3rd March, 2016 – Tokyo (Japan): Dedicated presenta?on for the

proposal of a ‘Health Data’ Intrerest Group.

Brussels, 12th May 2016

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SLIDE 11

Seminars, Workshops and Concerta(on Ac(vi(es (2)

  • 24th Euromirco Interna?onal Conference on Parallel, Distributed,

and Network-Based Processing, Heraklion Crete, Greece, 2016.

  • E-health day, June 11th 2015, Sierre, Switzerland
  • 19th IEEE High Performance Extreme Compu?ng Conference,

Waltham, MA, USA, Sept. 15-17, 2015

  • 37th Annual Inter. Conf. of the IEEE Engineering in Medicine &

Biology Society - EMBC 2015, Milano, August 25th-29th, 2015

  • Func%onal Imaging and Modeling of the Heart, 8th Interna?onal

Conference, FIMH 2015, Maastricht, The Netherlands, June 2015

  • STACOM 2015 (Sta?s?cal Atlases and Computa?onal Models of the
  • Heart. Imaging and Modelling Challenges) workshop, Munich

Germany, Sept 2015

  • MICCAI 2015 (Medical Image Compu?ng and Computer-Assisted

Interven?on) conference, Munich, Germany, Sept 2015

Brussels – 6-7 May 2014

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SLIDE 12

List of publica(ons for year 3 (1)

  • Noninvasive hemodynamic assessment, treatment outcome predic(on and follow-up of aor(c

coarcta(on from MR imaging. Ralovich K, Itu L, Vitanovski D, Sharma P, Ionasec R, Mihalef V, Krawtschuk W, Zheng Y, EvereU A, Pongiglione G, Leonardi B, Ringel R, Navab N, Heimann T, Comaniciu D. Med Phys. 2015 May

  • Gut Microbiota Dysbiosis as Risk and Premorbid Factors of IBD and IBS Along the Childhood–

Adulthood Transi(on, Lorenza Pu?gnani, Federica Del Chierico, Pamela Vernocchi, Michele Cicala, Salvatore Cucchiara, and Bruno Dallapiccola. Dysbiotrack Study Group, Inflamm Bowel Dis 2015

  • Applying machine learning to gait analysis data for disease iden(fica(on. Joyseeree R, Abou

Sabha R, Mueller H. Stud Health Technol Inform. 2015.

  • A Pa(ent-Specific Foot Model for the Es(mate of Ankle Joint Forces in Pa(ents with Juvenile

Idiopathic Arthri(s. Prinold JA, Mazzà C, Di Marco R, Hannah I, Malaqa C, Magni-Manzoni S, Petrarca M, Roncheq AB, Tanturri de Hora?o L, van Dijkhuizen EH, Wesarg S, Vicecon? M; MD- PAEDIGREE Consor?um. Ann Biomed Eng. 2016 Jan

  • Delinea(ng the applica(on of ultrasound in detec(ng synovial abnormali(es of subtalar joint in

juvenile idiopathic arthri(s. Lanni S, Bovis F, Ravelli A, Viola S, Magnaguagno F, Pistorio A, Magnano GM, Mar?ni A, Malaqa C. Arthri?s Care Res (Hoboken). 2016 Jan 27

  • Expert consensus on dynamics of laboratory tests for diagnosis of macrophage ac(va(on

syndrome complica(ng systemic juvenile idiopathic arthri(s. A.Mar?ni et al. RMD Open. 2016 Jan 19;2(1):e000161. doi: 10.1136/rmdopen-2015-000161. eCollec?on 2016.

  • Reviewer acknowledgement 2015. Mar?ni A, Spencer C. Pediatr Rheumatol Online J. 2016 Feb 1
  • Rela(ons between muscle endurance and subjec(vely reported fa(gue, walking capacity, and

par(cipa(on in mildly affected adolescents with cerebral palsy. Eken MM, Houdijk H, Doorenbosch CA, Kiezebrink FE, van Bennekom CA, Harlaar J, Dallmeijer AJ. Dev Med Child Neurol. 2016 Feb 24.

Brussels, 12th May 2016

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SLIDE 13

List of publica(ons for year 3 (2)

  • Energy Balance-Related Behaviors, Perinatal, Sociodemographic, and Parental Risk Factors Associated with Obesity in

Italian Preschoolers. Shashaj B, Graziani MP, Contoli B, Ciuffo C, Cives C, Facciolini S, Rigoni ML, Spaterna S, Taucci M, Raponi M, Manco M. J Am Coll Nutr. 2016 Mar 2

  • Autoimmune disease-associated gene expression is reduced by BET-inhibi(on. Peeters JG, Vervoort SJ, Mijnheer G, de Roock

S, Vastert SJ, Nieuwenhuis EE, van Wijk F, Prakken BJ, Mokry M, van Loosdregt Genom Data. 2015 Nov 7;7:14-7. doi: 10.1016/ j.gdata.2015.11.004. eCollec?on 2016 Mar.

  • Disease ac(vity accounts for long-term efficacy of IL-1 blockers in pyogenic sterile arthri(s pyoderma gangrenosum and

severe acne syndrome. Omeneq A, Carta S, Caorsi R, Fineq M, MaroUo D, LaUanzi B, Jorini M, Delfino L, Penco F, Picco P, Buoncompagni A, Mar?ni A, Rubartelli A, GaUorno M. Rheumatology (Oxford). 2016 Mar 17

  • 2016 Classifica(on Criteria for Macrophage Ac(va(on Syndrome Complica(ng Systemic Juvenile Idiopathic Arthri(s: A

European League Against Rheuma(sm/American College of Rheumatology/Paediatric Rheumatology Interna(onal Trials Organisa(on Collabora(ve Ini(a(ve. A. Mar?ni et al. Ann Rheum Dis. 2016 Mar

  • Gut microbiota profiling of pediatric NAFLD and obese pa(ents unveiled by an integrated meta-omics based approach. Del

Chierico F, Nobili V, Vernocchi P, Russo A, De Stefanis C, Gnani D, Furlanello C, Zandonà A, Paci P, Capuani G, Dallapiccola B, Miccheli A, Alisi A, Pu?gnani L. Hepatology. 2016 Mar 29

  • A Pa(ent-Specific Foot Model for the Es(mate of Ankle Joint Forces in Pa(ents with Juvenile Idiopathic Arthri(s. Prinold, J. I.,

Mazzà, C., Di Marco, R., Hannah, I., Malaqa, C., Magni-Manzoni, S., Petrarca, M., Roncheq, A., Tanturri de Hora?o, L., van Dijkhuizen, E. H. P., Wesarg, S. and Vicecon?, M., 2016. Annals of biomedical engineering 44, 247-257.

  • Comprehensive Assessment of the Global and Regional Vascular Responses to Food Inges(on in Humans Using Novel Rapid
  • MRI. JA Hauser, V Muthurangu, JA Steeden, AM Taylor, A Jones. American Journal of Physiology - Regulatory, Integra?ve and

Compara?ve Physiology. Jan 2016 10.1152/ajpregu.00454.2015

Brussels, 12th May 2016

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SLIDE 14

List of publica(ons for year 3 (3)

  • Accelerated Visual Concept Detec(on Using Steerable Riesz Wavelets, Anamaria Vizi?u, Lucian Itu, Ranveer

Joyseeree, Adrien Depeursinge, Henning Müller and Constan?n Suciu, GPU-, Conference on Parallel, Distributed, and Network-Based Processing, Heraklion, Greece, 2016.

  • A Demo of Mul(modal Medical Retrieval, Ranveer Joyseeree, Roger Schaer, Henning Müller, Workshop on

Content-based Mul?media Indexing (CBMI), Bucharest, Romania, 2016.

  • Loca(ng seed points for mul(-organ automa(c segmenta(on using non-rigid registra(on and organ

annota(ons, Ranveer Joyseeree, Henning Müller,, SPIE Medical Imaging, 2015.

  • Iden(fying the pathology class of pa(ents using only their gait analysis data with the aid of machine learning,

Ranveer Joyseeree, Rami Abou Sabha, Henning Müller, MIE 2015, Madrid, Spain, 2015.

  • Combina(on of Polyaffine Transforma(ons and Supervised Learning for the Automa(c Diagnosis of LV Infarct,

Marc-Michel Rohé , Nicolas Duchateau, Maxime Sermesant, Xavier Pennec. Proc of STACOM 2015 (Sta?s?cal Atlases and Computa?onal Models of the Heart. Imaging and Modelling Challenges), LNCS Vol 9534, pp. 190-198, January 2016.

  • A Non-parametric Sta(s(cal Shape Model for Assessment of the Surgically Repaired Aor(c Arch in Coarcta(on
  • f the Aorta: How Normal is Abnormal?. JL Bruse, K Mcleod, G Biglino, HN Ntsinjana, C Capelli, TY Hsia, M

Sermesant, X Pennec, A Taylor, and S Schievano. Proc of STACOM 2015 (Sta?s?cal Atlases and Computa?onal Models of the Heart. Imaging and Modelling Challenges), LNCS Vol 9534, pp. 21-29, January 2016

  • Descrip(ve and Intui(ve Popula(on-Based Cardiac Mo(on Analysis via Sparsity Constrained Tensor

Decomposi(on. K Mcleod, M Sermesant, P Beerbaum, and X Pennec. Proc of MICCAI 2015 (Medical Image Compu?ng and Computer-Assisted Interven?on), LNCS Vol. 9351, pp 419-426, 2015.

  • Propaga(on of Myocardial Fibre Architecture Uncertainty on Electromechanical Model Parameter Es(ma(on: A

Case Study. R Molléro, D Neumann, MM Rohé, M Datar, H Lombaert, N Ayache, D Comaniciu, O Ecabert, M Chinali, G Rinelli, X Pennec, M Sermesant, and T Mansi. Proc of FIMH 2015 (Func?onal Imaging and Modeling of the Heart), LNCS Vol. 9126, pp 448-456, 2015

Brussels – 6-7 May 2014

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SLIDE 15

Training team

Brussels – May 12 th 2016

Developers Training team End users Aims:

  • To assist end-users with the use of MD-Paedigree’s Infostructure.
  • To assist with the development of the plaworm based on users’ needs

Objec?ves:

  • To work closely with both end-users and plaworm (soxware) developers.
  • All comments, concerns and issues to be understood and responded to.
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Training team

Brussels – May 29th 2015

Important to men?on:

  • Original scope of training ac?vity has been significantly expanded:
  • More training sessions than originally planned
  • More Interac?ons with both developers and end-users

Ongoing Tasks: Suppor?ng both ends by

  • Gathering concerns/issues via mee?ngs, anonymous ques?onnaires, etc.
  • One-to-one tutorials
  • Daily monitoring the plaworm and repor?ng errors/issues
  • Arranging agile sessions with the developers
  • Providing user-friendly tutorials

Future plans:

  • Mul?ple examples will be uploaded on the plaworm to assist end users (videos)
  • Addi?onal training session will be announced
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SLIDE 17

Three Mee?ngs so far: Utrecht

Brussels – May 12 th 2016

A session (September 2014) was commenced in Utrecht which covered General tasks such as

  • Crea?ng accounts
  • Cohort browser
  • Similarity search
  • Query wizard, management and visualisa?on
  • File sharing
  • Ques?onnaire was given

Axer the session, the ques?onnaires were assessed and reviewed by both the training team and the developers; thus, both concerns and sugges?ons were addressed and implemented where necessary.

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SLIDE 18

Three Mee?ngs so far: Crete

Brussels – May 12 th 2016

A mee?ng was held in Crete (October 2015) which covered several demos on each tools;

  • Case based retrieval (CBR): The demo showed the possible state of the plaworm

wherein the PCDR data was mainly explored.

  • Data cura?on and valida?on (DCV): The demo showed how to look through the data

sets and correct any possible errors or have a beUer visualisa?on over the data

  • Data anonymiser (by Gnubila): the demo illustrated how to eliminate the pa?ents

iden?fying data (Such as name address, etc)

  • CaseReasoner: Showed an interac?ve route to find similari?es among pa?ents

In the end, the users provided feedback on the demos shown. The comments were assessed and addressed prior to the next training event.

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SLIDE 19

Three Mee?ngs so Far: Rome

Brussels – May 12 th 2016

February 2016 A hands-on training session was performed in Rome which covered the main aims and objec?ves of each tool with the goal of helping the users to start exploring and using each tool.

Case based retrieval (CBR):

Ø The service helps physicians to find similar pa?ents based on the discharge synthesis of a given pa?ent. Ø The service proposes a summary of the returned cases of similar pa?ents at different points in ?me.

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SLIDE 20

Details: Rome mee?ng

Brussels – May 12 th 2016

Data cura?on and valida?on (DCV): Ø An automa?c data cleaning process Ø To troubleshoot the imported data Ø To detect numerical outliers, missing values, alphanumeric typographical and logical errors.

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Details: Rome mee?ng

Brussels – May 12 th 2016

CaseReasoner:

Ø Case Reasoner is a flexible and interac?ve tool that provides decision support through similarity search. Ø Currently, it is targe?ng the Cardiovascular Disease Risk in Obese Children and Adolescents disease group Ø To do a similarity search within pa?ents Ø To visualise their 3D geometry i.e. heart

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Details: Rome mee?ng

Brussels – May 12 th 2016

CaSiReView:

Ø To browse and visualise the simula?on results. Ø Browse modeling results for all pa?ents Ø Inspect LV volumes Ø Inspect LV pressures Ø Inspect LV EF Ø Inspect LV SV Ø Inspect cardiac movement over a heart cycle Ø To report poten?al issues Ø Analyse cohort sta?s?cs

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SLIDE 23

Lessons learnt

Brussels – May 12 th 2016

Ø Comments and concerns were discussed during the training

sessions Ø Some of the comments were immediately addressed during the training sessions Ø The feedback was analysed thoroughly, and was addressed and dealt with Ø Sugges?ons from the end users were implemented Ø The most current/updated version of each tool will be online and ready to access Ø The future version will include all the comments, concerns and sugges?ons discussed during the hands-on training sessions