The State of Alaskas Title V Programs Role in Building Systems of - - PowerPoint PPT Presentation
DHSS/DPH Section of Womens Childrens and Family Health The State of Alaskas Title V Programs Role in Building Systems of Care for Children and Youth with Autism Spectrum Disorder & Other Developmental Disabilities Objectives and
DHSS/DPH Section of Women’s Children’s and Family Health
participants will learn how
integral part of developing the 2006 State of Alaska Autism Plan
– Children’s Health Unit – Women’s and Adolescent Health Unit – MCH Epidemiology Unit
Services
women, children and their families by: – Providing leadership – Coordinating with the primary and public entities with the health care system – Delivering preventive, rehabilitative and education services targeting women, children, and families – Collecting, analyzing and reporting reliable and statistically accurate information
Administration (HRSA)
Medical & Health Funding & Policy Education & Training Family Support Srvs
The Governor Council on Disabilities and Special Education
Universal Screening Diagnostic Clinic Expansion Enhance Referral and Training Workforce Training Time Limited Intensive Autism Services
Justice
Families Disability Law Center of Alaska
Public Health Nursing
ANCHORAGE SCHOOL DISTRICT
Governor’s Council on Disabilities and Special Education
Alaska Community Health Aide Program
Goal #1: In rural Alaska, develop new processes to support the system of early identification, developmental screening and diagnosis of children suspected with autism and other neurodevelopmental disorders Goal # 2: Children 0 to 3 will be successfully connected with early intervention services and a medical home, leading to earlier initiation of services Goal #3: The project will be aligned with the goals established by the Autism Alliance and the ECCS plan to assure continuity and work collaboratively on a long term sustainability plan
Public Health Nursing Services
10
Early Intervention/Infant Learning Program
screening clinics in hub communities to improve rural Alaskan’s access to diagnosis, earlier intervention, and treatment
establish practice of proper identification of appropriate patients for referral to Providence Autism Diagnostic Network
efforts to implement EPSDT (routine screenings) for earlier identification to ensure referral to EI/ILP
Homer Dillingham Bethel Fairbanks Ketchikan Juneau Barrow Kotzebue Valdez Kodiak Nome
Medical Providers: Ron Brennan, MD ; Teresa Hirst, ANP; William Walker, MD Clinic Coordinator: Kris Green Parent Navigator: Stone Soup Group
20 40 60 80 100 120 Autism/ASD concern Prenatal Exp Behavioral Sp, Cog, Comm, Acad Other Neuro Follow-up 2009 2010 2011
33 % (n=73) rec’d recommendation for DX work-up
10 20 30 40 50 60 DX workup Ref local srvs Other screens Watch 2009 2010 2011
(PADN)
– Multi-disciplinary neurodevelopmental assessment:
Intervention – Parent Navigator works to link family and child to community supports, resources and providers
– Pediatric Neurodevelopmental Specialists – Pediatric Advanced Practice Nurse Practitioner – SSG parent navigation staff – Ancillary:
State Board of Education & Early Development adds ANP to list of medical personnel that can make an autism diagnosis; accepts for service needs
1. Leadership & Education in Neurodevelopmental & related Disabilities (LEND) 2. Autism “Summer Institutes” 3. Board Certified Behavior Analyst (BCBA) trainees certification 4. Internet based modules 5. Online course work with Georgetown and University of Arizona for learning collaborative, degree, and certifications by both EI/ILP and UCEDD
State - UCEDD Partnerships
Campaign
Learned
Alaska’s 2011 Campaign
– PRIMARY: Southcentral Alaska families with children ages 0-5 years – SECONDARY: Health care, Child care, Early Intervention providers in Southcentral Alaska
Alaska’s 2011 Campaign
– Institute of Social & Economic Research (UAA) gather focus group data from parents in target audience
– Partner Visits (health care providers and state agency partners)
Alaska’s 2011 Campaign
ILP Primary Partner Defined: Early Intervention/Infant Learning Program (aka “Part C”)
– ILP supports campaign as “Child Find” activity – ILP initiates expanded scope of direct mail of materials – Radio PSA component added – www.earlyintervention.alaska.gov is born!
– ASK and LISTEN to families… – Primary partnership with ILP developed
will offer sustainability beyond federal funding (annual mailing of materials planned) – Take time to inform health care community – Providers can be great partners!
Alaska’s 2011 Campaign
an enhanced statewide access to a fully developed comprehensive and culturally sensitive system of care so that Alaskans with ASD and related developmental disabilities will reach their full potential through timely and coordinated transitional planning.