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THE REALITIES OF CAREGIVING: 2019 VERSION
Sam Wilson AARP Wisconsin State Director January 15, 2018
T HE R EALITIES OF C AREGIVING : 2019 V ERSION Sam Wilson AARP - - PowerPoint PPT Presentation
T HE R EALITIES OF C AREGIVING : 2019 V ERSION Sam Wilson AARP - - PowerPoint PPT Presentation
T HE R EALITIES OF C AREGIVING : 2019 V ERSION Sam Wilson AARP Wisconsin State Director January 15, 2018 Population Trends A MERICA IS A GING 4 A MERICA IS A GING 5 Wisconsin Population Trends 7 8 Caregiving Roles Change AARP/Ad
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Population Trends
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AMERICA IS AGING
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AMERICA IS AGING
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Wisconsin Population Trends
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Caregiving – Roles Change…
AARP/Ad Council “Spoon” https://www.adcouncil.org/Our-Campaigns/Family-Community/Caregiver-Assistance
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Demographic Shifts
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2010 2030 2050 45-64 80+
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Changing Caregiver Demographics
Women 67% Men 33%
Over 50
Women Men
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Women 55% Men 45%
Under 50
Women Men 75+, 7% 65-74, 12% 50-64, 34% 35-49, 23% 18-34, 24%
Age
75+ 65-74 50-64 35-49 18-34
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Family Caregivers Work
- Number of employee-caregivers expected to
grow exponentially over next decade
- Almost everyone will give or receive care at
some point in their lives
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That’s nearly 17% of today’s US workforce.
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Personal/Life Impact of Caregiving
- Relationships - Lack of
time, exhaustion, depleted
- Mental Health - Distress,
depression, anxiety, isolation, overwhelmed
- Physical health – More
likely poor/fair
- Self-care – Lack of
support/time, priorities, last
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The Working Caregiver Experience
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Modifications to Work Life
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Stretched Finances
- Most use their own money (68%)
- Many feel financially strained
(39%) - more w/ higher-hour and long-distance
- The longer we are caregiving the
more likely to feel financial strain
- Many are sandwiched between
parents and children, provide financial support for both
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Most Caregivers Have No Paid Help!!
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What do family caregivers do?
Instrumental Activities of Daily Living
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Complex Medical/Nursing Tasks
- More than half of caregivers
- Injections
- Tube feedings
- Catheter and colostomy care
- Managing multiple medications
- Wound care
- 62% of high-burden caregivers
are performing medical/nursing tasks without prior preparation
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Caregiving – Roles Change…hearts grow
AARP/Ad Council “Bath” https://www.adcouncil.org/Our-Campaigns/Family-Community/Caregiver-Assistance
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The Heart of Caregiving
- Don’t self-identify as caregivers
- See it as a duty, responsibility
- Care gradually increases then
suddenly becomes major
- Caregiving is not a burden, it’s an
honor
- Don’t want to complain
- Hesitate to ask for/receive help
- Isolation
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What Caregivers Need Help With…
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84% 42% 42% 22% 12% 11% 5% Hours Caregiving per Week 0-20 (n=826) 21+ (n=416) 82% 87%* 41% 43% 38% 51%* 22% 23% 9% 18%* 8% 17%* 4% 6% Any of these Keeping him/her safe at home Managing emotional/physical stress Making end-of-life decisions Managing his/her challenging behaviors Managing his/her incontinence/toileting problems Finding non-English language educational materials
Base: Caregivers of Recipient Age 18+ (n=1,248)
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AARP’s Commitment
– Equip employers with easy to use tools that provide practical guidance and tips for creating a supportive work environment – Provide free consumer resources for employers to distribute to their caregiving employees – Connect and convene employers with other employers, subject matter experts, and community resources and partners
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Employer Resources on Caregiving
- Use the NEBGH/AARP Employer Caregiving
Toolkit – www.employercaregivingtoolkit.org
- Take the self-assessment available at the site
above and see how you stack up
- Look at your organization’s existing policies and
benefits
- AARP offers free resources you can provide
your employees
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AARP Resources
- AARP Family Caregiving website
– English www.aarp.org/caregiving – Spanish www.aarp.org/cuidar
- AARP Prepare to Care
– Framework for your caregiving journey: www.aarp.org/preparetocare – Order FREE hardcopies at 1-877-333-5885
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AARP Wisconsin Caregiving Resource Guide
http://www.aarp.org/caregiverresourceguides
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More AARP Resources
- AARP Contact Center Caregiving Lines (M-F, 7am-11pm
EST; Sat 9am-5 pm EST)
- English 1-877-333-5885
- Spanish 1-888-971-2013
- AARP Online Community:
www.aarp.org/caregivingcommunity – Connect with other caregivers
- AARP/Alzheimer’s Association Community Resource
Finder www.aarp.org/crf
– Find local resources by zip code for dementia and other aging-related issues
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State of Wisconsin Caregiving Resource Guide
www.dhs.wisconsin.gov/dementia/employers.htm
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How can we help caregivers together?
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