RUSSIA. WHEN THE RIGHT TO LIFE IS DENIED Dmitry Borisov Executive - - PowerPoint PPT Presentation

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RUSSIA. WHEN THE RIGHT TO LIFE IS DENIED Dmitry Borisov Executive - - PowerPoint PPT Presentation

Aug 22, 2023 203 likes •355 views

RUSSIA. WHEN THE RIGHT TO LIFE IS DENIED Dmitry Borisov Executive Director UICC, 28 August, 2012 Oncology in figures 2.8 million of registered patients, i.e. 1.8 % of population 516 thousand new cases of malignant tumors (this indicator

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Dmitry Borisov

Executive Director

UICC, 28 August, 2012

  • RUSSIA. WHEN THE RIGHT TO LIFE

IS DENIED

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Oncology in figures

  • 2.8 million of registered patients, i.e. 1.8 % of population
  • 516 thousand new cases of malignant tumors (this indicator for the first time has

exceeded half a million of new patients annually

  • 29.2 % of those who were diagnosed in 2009 have died
  • 300 thousand people die from cancer every year
  • 150 thousand people become disables due to cancer
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5-year Cancer Survival in Russia Year! USA! Russia! Breast Cancer! 1975! 75,3%! 1986! 79,4%! 1997! 88,5%! 53,8%! 2009! 90,3%! 56,7%! NHL! 81,1%! 53,2%! CRC! 67,0%! 48,3%!

Source: National Cancer Institute SEER database; “Oncology statistic in Russia”, Chissov V.I., 2010!

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  • Survival rates fall well below the level of what could potentially be achieved
  • Modern standards of treatment are not implemented
  • Low level of early detected tumors
  • Official government’s priority – Cancer early diagnostics,

BUT in fact low availability of diagnostics and innovative treatment

  • Insufficient awareness and communications

Challenges requiring urgent actions

TREATMENT DENIALS

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  • Patient Schools: collecting of complaints and questionnaires (over 250 annual

events)

  • Hotline 8-800-200-2-200
  • Email: otkaz@rakpobedim.ru
  • Web: www.rakpobedim.ru

How we get information about treatment denials

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EQUAL RIGHT TO LIFE Treatment Denials DATABASE Complaints/Appeals Questionnaires Hotline / Web PTS Schools Sociologic Studies

Direct Appeals from Patients

Ministry of Health ROSZDRAVNADZOR (Russian FDA)

PTS Appealing to HA/PAGs in Russia

Over 1500 cases were submitted to HA Over 7’000 PTS questionnaires and complaint letters have been received Local HA State Hospitals Equal Right to Life is the member of PTS’ Rights Counsil

Over 500 PTS Access to Treatment Provided

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  • “Treatment is too expensive, healthcare facilities have no sufficient funds”
  • “Un-diagnosed patient “does not” require treatment”
  • “No sufficient funds in regional budget or federal budget donations”
  • “Patient is not listed in special register”

Common reasons of treatment denials

“WHITE BOOK” - annually issued edition providing information on all cases of refusal in cancer treatment managed by Equal Right to Life Provided to all regional and federal decision-making authorities in the sphere of healthcare

! Funds ! Information ! Rights ! Policies

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  • 0.5
  • ONCO Funds, Bln RUB

Source: Pharmexpert (antineoplastic market), RML, *forecast

  • 1.6
  • 3.6
  • 3.4 USD!

per capita!

  • 3.7 USD!

per capita!

  • 3.5 USD!

per capita!

  • 4.2 USD!

per capita!

  • 4.4USD!

per capita!

  • USD!

per capita!

!

Serbia (7 mln) = 15 USD! Kosovo (2 mln) = 19 USD!

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Oncology: Patients vs. Funds

Structure of funds, bln RUR Cancer epidemiology Total 2.8 mln

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4.3%

= "26.7%

Out+of+pocket hospital reimbursement

$ Packs

=

Source: Pharmexpert, 2011

Oncology Out-of-Pocket

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What to do?!

! Implement treatment guidelines that have to be based on therapeutic and financial efficacy! ! Introduce 100% capping State financing programs & options for co-payments (private insurance etc.)! ! Improve quality of statistical & epidemiology data that is essential for budget and financial management! ! Introduce patients’ rights oriented legislation on generics and biosimilars ! ! Increase awareness & patients' education!

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GTF.CCC Report - Closing the Cancer Divide!

  • International experience and benchmark for healthcare management models in oncology!
  • Good data source for negotiation with top level policy makers!

UN & WHO!

  • UN NCD Political Declaration (Sept 2011) – legislative background for regional

implementation!

  • WHO NCD oriented programs that could introduce common solutions for epidemiology

and policy making ! PAGs & Medical Associations!

  • Cancer awareness!
  • Patients’ advocacy!
  • Policy making & implementation of the local access to treatment strategies!
  • Guidelines implementation!
  • International benchmark and experience exchange!

How to do?!

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Annual Forum “Movement against cancer”!

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www.ravnoepravo.ru !