Risky Business: Ethics of Caring for Patients Who Choose to Live at - - PowerPoint PPT Presentation

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Risky Business: Ethics of Caring for Patients Who Choose to Live at - - PowerPoint PPT Presentation

Risky Business: Ethics of Caring for Patients Who Choose to Live at Risk Anna Zadunayski LLB MSc Clinical Ethicist, Alberta Health Services RAH Lunchtime Ethics Series October 22, 2014 1 Objectives Discuss recent clinical ethics cases


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Risky Business:

Ethics of Caring for Patients Who Choose to Live at Risk

Anna Zadunayski LLB MSc Clinical Ethicist, Alberta Health Services RAH Lunchtime Ethics Series October 22, 2014

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October 22, 2014 2

Objectives

 Discuss recent clinical ethics cases involving patients

choosing to live at risk

 Identify principles for ethical decision making

applicable to patients who choose to live at risk

 Review the ways in which clinical ethics can support

complex health care decision making

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Ethics Service

 Support for families and teams facing difficult

decisions

 Clinician model, Committee Model  Ethics consultation

  • Formal
  • Informal
  • Retrospective

 Facilitation of meetings and discussions  Staff debriefing sessions

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Relevance

 Threshold for moral culpability  Living at risk  Living arrangements / social arrangements  Patients who smoke  Patients with addictions  Patients who traffic  Patients who manipulate the health care system  Financial pressures  Complex family dynamics  Physicians, nurses, social workers, administration, security  Care planning  Compassion fatigue  Role of ethics consultation

5 October 22, 2014

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Principles of Ethics

 Autonomy

 Respect for patient autonomy; informed consent a common thread

 Beneficence

 Obligation to „do good‟; act in a way that is likely to benefit the

patient; proceeding with a beneficent plan of care, using clinical judgment

 Nonmaleficence

 Ethical obligation not to harm or cause injury; to prevent

foreseeable harm

 Justice

 Issues involving allocation of resources; organizational ethics;

availability of services; “like cases”; fairness; equity

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Case: 74 year old woman

 A 74 year old woman living alone with some family supports and

some home care support

 Brittle diabetic with multiple comorbidities  Blindness  Hard of hearing  Right below knee amputation  Husband passed away one year ago  Falls in bathroom and hits head; intra-ocular hemorrhage  Presents in ED; pain, confusion, concerning hx  Reluctanly admitted to medical unit  Hospital stay exceeds 8 weeks; patient wishes to return home  Health care team concerned about discharge

7 October 22, 2014

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What is the right thing to do?

 Role of Clinical Ethics?  Principled decision making  Autonomy  Beneficence  Nonmaleficence  Distributive justice  Who comprises the health care team?  Consultation / documentation / recommendations

8 October 22, 2014

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Outcome

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Case: 21 year old man

 A 21 year old male admitted to medical unit  Renal failure  Diet  Polysubstance abuse  Strained family relationships  Using drugs while in hospital  Selling drugs outside of hospital  Leaving hospital without notifying staff  Patient wishes to leave hospital  Health care team / hospital administration request an ethics

consultation

10 October 22, 2014

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What is the right thing to do?

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Role of Clinical Ethics? Principled decision making Autonomy Beneficence Nonmaleficence Distributive justice Who comprises the health care team? Consultation / documentation / recommendations

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Outcome

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Fatigue & Distress

 Compassion Fatigue is different from Moral Distress:

 Compassion Fatigue

  • A gradual lessening of compassion over time
  • Exemplified by frustration, cynicism, plateauing of moral development,

decrease in productivity, burnout

  • Overcome by self-care, balance, reflection, improved self-awareness,

modification of attitudes

 Moral Distress

  • Suffering or residue caused by disequilibrium between identifying ethical

action and undertaking ethical action

  • Internal (belief system, values) or external (systemic, organizational)

barriers to pursuing the right course of action

  • Occurs in the face of the true ethical dilemma
  • Impacts inter-personal and inter-professional communication
  • Alleviated through good communication and debriefing
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Conclusions & Recommendations

Allow for reflection Identify stakeholders Consultation Documentation / charting Communication with primary care providers / supports Clinical creativity / exploring options Debrief Repeat

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What clinical ethics resources are available to you?

 General Inquiries  For all AHS Staff, Physicians, Patients & Families:  1-855-943-2821  clinicalethics@albertahealthservices.ca

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Questions?

16 October 22, 2014

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References

Alfandre, D. Reconsidering against medical advice discharges: embracing patient-centeredness to promote high quality care. J Gen Intern Med 2013 Dec; 28(12): 1657-62. Dhalla, I.A., Laupacis, A. et al. Effect of a postdischarge virtual ward on readmission or death for high risk patients: a randomized clinical trial. JAMA 2014 Oct 1; 312(13): 1305-12. Edwards, S.B., Wulf, K. et al. Safety issues at the end of life in the home

  • setting. Home Healthc Nurse. 2014 Jul; 32(7): 396-401.

Jones, C.D., DeWalt, D.A. et al. A failure to communicate: A qualitative exploration of care coordination between hospitalists and primary care providers around patient hospitalizations. J Gen Intern Med. 2014 Oct 15. Van Nistelrooy,I. Self-sacrifice and self-affirmation within care-giving. Med Health Care Philos. 2014 Nov; 17(4): 519-28.