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next? Holly Lowther, Sarah Shirley and Kate Townsend #QNFMHS True - - PowerPoint PPT Presentation
next? Holly Lowther, Sarah Shirley and Kate Townsend #QNFMHS True - - PowerPoint PPT Presentation
Quality Network for Forensic Mental Health Services Patient and carer involvement: what has been achieved and what should be next? Holly Lowther, Sarah Shirley and Kate Townsend #QNFMHS True Co-production #QNFMHS Quality Network for
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Quality Network for Forensic Mental Health Services (QNFMHS)
- Medium Secure – set up in 2006
- Low Secure – set up in 2011
- Standards-based quality network
- Aims to identify and acknowledge high standards of organisation
and patient care, and support other services to achieve these
- Have 127 services across the UK
#QNFMHS
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Involvement in the Network
#QNFMHS
- Patient Reviewers (PR) and Family and Friends Representatives
(FF) taking part in reviews
- Representation from both on our Advisory Group
- April 2018 – the Networks first event on patient involvement in
secure services
- Involving PR & FF in leadership roles e.g. chairing events
- We provide comprehensive support to both groups e.g. support
meetings, appraisals, wellbeing calls (for PR)
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#QNFMHS
Life’s Journey
- Family member is a long term patient in secure services for 16+
years
- Moved across six different services from MSU/LSU
- Came into forensic services via prison after being diagnosed
with Personality Disorder
- Our journey began in 2001 when there was lack of involvement
and lack of continuity of care
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#QNFMHS
Things are improving in involving Family & Friends as in the last 5 years I personally have:
- Received a copy of my sisters care plan for the first time
- Attended and contributed to CPA meetings, first tier tribunals
and ward rounds
- Visited her ward environment
- Become more knowledgeable about her condition
- Developed good working relationships with her MDT
Life’s Journey
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#QNFMHS
Service User & Carer Involvement and the benefits
Enables inclusive and effective planning, delivery and development of services Services can hear fresh ideas and new perspectives from first hand experiences
Develops skills and confidence building Feeling empowered through
- pportunities available
Improves partnership working Opportunity to voice
- pinions, identify feelings and
share experiences Leads to a more responsive and sensitive service Can offer vital comments and insights
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#QNFMHS
Examples of Good Practice
Rethink run monthly carers focus group evening Proactive coproduction developing links with community Recovery transition worker into community after discharge Family & Friends and SU involved in delivering training, recruitment of staff and recovery college Street like feel within atrium creates a real-life community feel, with a bank, café, hairdressers, gym, and library Carers given virtual tour of ward environment via DVD on admission Carers invited to quarterly dining events to share evening meal with loved
- nes
Carers database with percentage of how involved they are with SU
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#QNFMHS
Discussion
We would like you to think about the following:
- What are the barriers and challenges you have in relation to
involving service users and family and friends?
- How would you overcome these with new ways/initiatives of
involving and engaging SU/FF?
- Be prepared to feedback points to the group!
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#QNFMHS
Barriers & challenges to involvement
- Confidentiality – GDPR Act 2018
- Stigma & Blame
- Cynicism and lack of trust with services
- High staff turnover
- Uncoordinated services
- Geographical distances
- Service transfers – repeating self can lead to trauma-related PTSD
- Lack of clarity surrounding roles
- Lack of communication and connection
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#QNFMHS
Opportunities – What next?
- Regularity, reliability and clarity facilitates trust and emotional support
- Develop and maintain family relationships
- Carers Assessments considered early intervention in getting F&F involved
- Christmas Fayres / Summer Fayres
- Ward visits
- Drama therapy productions
- Peer support workers and expert by experience workers
- Promoting Carers toolkit
- Promote wellbeing for service users and carers
- Travel support for family when living over a certain radius
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