Quality Network for Forensic Mental Health Services Patient and carer involvement: what has been achieved and what should be next? Holly Lowther, Sarah Shirley and Kate Townsend #QNFMHS
True Co-production #QNFMHS
Quality Network for Forensic Mental Health Services (QNFMHS) • Medium Secure – set up in 2006 • Low Secure – set up in 2011 • Standards-based quality network • Aims to identify and acknowledge high standards of organisation and patient care, and support other services to achieve these • Have 127 services across the UK #QNFMHS
Involvement in the Network • Patient Reviewers (PR) and Family and Friends Representatives (FF) taking part in reviews • Representation from both on our Advisory Group • April 2018 – the Networks first event on patient involvement in secure services • Involving PR & FF in leadership roles e.g. chairing events • We provide comprehensive support to both groups e.g. support meetings, appraisals, wellbeing calls (for PR) #QNFMHS
Life’s Journey • Family member is a long term patient in secure services for 16+ years • Moved across six different services from MSU/LSU • Came into forensic services via prison after being diagnosed with Personality Disorder • Our journey began in 2001 when there was lack of involvement and lack of continuity of care #QNFMHS
Life’s Journey Things are improving in involving Family & Friends as in the last 5 years I personally have: Received a copy of my sisters care plan for the first time • Attended and contributed to CPA meetings, first tier tribunals • and ward rounds Visited her ward environment • Become more knowledgeable about her condition • Developed good working relationships with her MDT • #QNFMHS
Service User & Carer Involvement and the benefits Enables inclusive and effective Develops skills and planning, delivery and confidence building development of services Services can hear fresh ideas Feeling empowered through and new perspectives from first opportunities available hand experiences Leads to a more responsive Improves partnership and sensitive service working Opportunity to voice Can offer vital comments and opinions, identify feelings and insights share experiences #QNFMHS
Examples of Good Practice Family & Friends Carers given and SU involved virtual tour of in delivering ward training, environment recruitment of via DVD on staff and Proactive admission recovery college coproduction Recovery developing transition links with Carers invited worker into community to quarterly community dining events after to share discharge evening meal Street like feel with loved within atrium ones Carers creates a real-life database with Rethink run community feel, percentage of monthly with a bank, café, how involved carers focus hairdressers, they are with group gym, and library SU evening #QNFMHS
Discussion We would like you to think about the following: What are the barriers and challenges you have in relation to • involving service users and family and friends? How would you overcome these with new ways/initiatives of • involving and engaging SU/FF? Be prepared to feedback points to the group! • #QNFMHS
Barriers & challenges to involvement • Confidentiality – GDPR Act 2018 • Stigma & Blame • Cynicism and lack of trust with services • High staff turnover • Uncoordinated services • Geographical distances • Service transfers – repeating self can lead to trauma-related PTSD • Lack of clarity surrounding roles • Lack of communication and connection #QNFMHS
Opportunities – What next? Regularity, reliability and clarity facilitates trust and emotional support • Develop and maintain family relationships • Carers Assessments considered early intervention in getting F&F involved • Christmas Fayres / Summer Fayres • Ward visits • Drama therapy productions • Peer support workers and expert by experience workers • Promoting Carers toolkit • Promote wellbeing for service users and carers • Travel support for family when living over a certain radius • #QNFMHS
Questions Holly.Lowther@rcpsych.ac.uk @HollyLowther13 Kate.Townsend@rcpsych.ac.uk @katetownsend76 sarahshirley@rocketmail.com #QNFMHS
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