Making STRIDES in Research Lessons Learned from the STRIDE Fall - - PowerPoint PPT Presentation

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Making STRIDES in Research Lessons Learned from the STRIDE Fall - - PowerPoint PPT Presentation

Mar 17, 2024 167 likes •314 views

Making STRIDES in Research Lessons Learned from the STRIDE Fall Injury Prevention Trial Martie Carnie Co-Chair STRIDE National Patient Stakeholder Council (NPSC), Co-Chair D-CARE National Patient Stakeholder Council (NPSC), Senior Patient

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Making STRIDES in Research

Lessons Learned from the STRIDE Fall Injury Prevention Trial

Martie Carnie

Co-Chair STRIDE National Patient Stakeholder Council (NPSC), Co-Chair D-CARE National Patient Stakeholder Council (NPSC), Senior Patient Engagement Advisor Brigham and Women’s Hospital, PCORI Ambassador September 19, 2019

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Strategies to Reduce Injuries and Develop Confidence in Elders (STRIDE) Study

  • STRIDE is an important nation-wide effort to learn more about how injuries

from falls might be prevented.

  • Randomized controlled trial (RCT) conducted in 10 health systems and 86

primary care practices around the U.S.

  • Over 5,400 participants aged 70 and older
  • A nurse Falls Care Manager performs fall risk assessments and develops

individualized care plans

  • Results expected April 2020.
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STRIDE Patient Engagement Model

Bi-directional participation

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Changing the Culture – Getting Researchers to Understand the Patient Voice

  • Face-to-Face meetings - getting to know you
  • Learning to work together
  • STRIDE Logo
  • Recruitment methods and materials
  • Consent form
  • Identifying community resources
  • Retention
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Health Literacy Lessons

Message to researchers:

  • You tell us what’s necessary to meet study design, IRB

(Institutional Review Board) and other regulatory

  • requirements. We’ll tell you how to make it clear and meaningful

for study participants.

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Health Literacy Lessons

  • Importance of systematic process to ensure all patient-facing

materials are reviewed and approved by patient stakeholders

  • Written materials:
  • Letters

*use of STRIDE logo on envelopes

  • Postcards
  • Brochures
  • Calendars
  • Newsletters
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Health Literacy Lessons

  • Phone communications:
  • Phone scripts
  • For regular 4-monthly phone calls from the Recruitment &

Assessment Center to participants throughout their enrollment *use of local phone number

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Patient Engagement on All Key Committees

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Securing the Bond

  • The patient voice was heard on all key committees to ensure bi-

directional communication throughout the study.

  • In-person visit by patient engagement leaders to the Recruiting &

Assessment Center/Data Coordinating Center (at Yale University) strengthened the patient voice in STRIDE.

  • Including patient perspective resulted in more effective patient-

facing study materials and study procedures.

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n is a number. n with a narrative is a compelling story.

  • “This is a good study and it’s made me more aware of my

surroundings and of potential fall hazards.”

  • “I am exercising!”
  • “I learned information that I did not know pertaining to balance.

It has been very helpful.”

  • “It made me more aware how to live without fear and enjoy the

later years in life."

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STRIDE Model adopted by PCORI Dementia Study (D- CARE)

  • Currently being implemented in the PCORI-funded study:

Comparative Effectiveness of Health System-Based Versus Community-Based Dementia Care/ A Pragmatic Trial of the Effectiveness and Cost-Effectiveness of Dementia Care (PI: David

  • B. Reuben, MD)
  • STRIDE patient engagement model can be adapted for any size

trial.

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Learn More

  • www.pcori.org
  • info@pcori.org
  • #PCORI2019
  • Stride-Study
  • D-CARE Study
  • Institute for Patient-and-Family-Centered Care
  • Health Literacy Annual Research Conference
  • Publications:
  • Fagan, MB, Morrison CR, Wong C, Carnie MB,

Gabbai-Saldate P. Implementing a pragmatic framework for authentic patient-researcher partnerships in clinical research. J Comp Eff Res. 2016 May;5(3):297-308.

  • Fagan MB, Wong C, Morrison CRC, Lewis-O’Connor

A, Carnie MB. Patients, persistence, and partnership: creating and sustaining patient and family advisory councils in a hospital setting. J Clin Outcomes Manag. May 2016; 23(5):219-225.

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Questions?

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Thank You!

Martie Carnie

Co-Chair STRIDE National Patient Stakeholder Council (NPSC), Co-Chair D-CARE National Patient Stakeholder Council (NPSC), Senior Patient Engagement Advisor Brigham and Women’s Hospital, PCORI Ambassador martiecarnie@hotmail.com (617) 821-1144 September 19, 2019