SLIDE 1
Lewy Body Dementia Information and Support Group (Stockport) Lewy - - PowerPoint PPT Presentation
Lewy Body Dementia Information and Support Group (Stockport) Lewy - - PowerPoint PPT Presentation
Lewy Body Dementia Information and Support Group (Stockport) Lewy Body Dementia information and support group. Jenny Day Maria Curphey Parkinsons Specialist Nurse Community Psychiatric Nurse (Stepping Hill Hospital NHS (The Meadows)
SLIDE 2
SLIDE 3
Why The Group
People with Lewy Body were falling between the gaps of current services. Lack of information and support specific to Lewy Body dementia Patients and carers were asking for additional support
Lewy Body Dementia information and support group.
SLIDE 4
Need Intervention Outcome
No specific information regarding Lewy Body dementia in Stockport Information group commenced Information and shared experiences gained from the group have helped patients and carers manage their condition Limited cohesion between mental health and acute services Links made and practice shared. Joint working continues Joint effective partnership between acute and community services Patients and carers highlighting the need for ongoing support for this complex condition Support group identified as a need. Joint working to establish and continue it Support group meet every 4 months which gives opportunity for additional information and peer support
Lewy Body Dementia information and support group.
SLIDE 5
This project has had no funding This model could easily be replicated throughout the country
Lewy Body Dementia information and support group.
SLIDE 6
Lewy Body Dementia
- Dementia with Lewy Bodies (LBD) is the second most
frequent cause of age related neurodegenerative dementia.
- At least 5% of people aged 85 and older are thought to
suffer from this (Lewy Body Society 2016).
- People with Parkinson’s Disease are at a high risk of
developing LBD due to presence of Lewy Body’s in the brain.
- However, Lewy Body Dementia can develop in absence
- f Parkinson’s disease, but these patients will exhibit
Parkinsonism eg Tremor, shuffling gait, confusion.
Lewy Body Dementia information and support group.
SLIDE 7
Lewy Body Dementia Characteristics (diagnostic)
- Hallucinations
- Fluctuations in cognition and mobility
- Parkinsonism
- Sleep disturbances
- Sensitivity to neuroleptics
Lewy Body Dementia information and support group.
SLIDE 8
- Patients with Parkinson’s usually require complex Parkinson’s
treatment regimes, which can exacerbate Lewy Body Dementia symptoms, or even mimic them.
- Without appropriate information and support, health
professionals, patients and carers may be unaware of the complexities of the illness and subsequent treatment regimes Through the support group, patients and carers gain awareness, therefore influencing the care that the patient receives.
The Challenges
Lewy Body Dementia information and support group.
SLIDE 9
- “ The group gave us the opportunity to discuss the
condition and receive appropriate information”
- “The session was interactive involving carers views and I
felt it was very relevant to me”
- “It is important to have a group specifically for Lewy
Body as it is very different from other Dementias.”
- “The group was just the right size to be able to speak
freely and be supported by each other”
Patient & Carer Feedback
Lewy Body Dementia information and support group.
SLIDE 10
- Continue to develop the information and support groups
- Raise awareness of Lewy body dementia within care
homes
- Share this model with others.
The Future
Lewy Body Dementia information and support group.
SLIDE 11