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Is SEN a stigmatising or positive label the parents view York - - PowerPoint PPT Presentation
Is SEN a stigmatising or positive label the parents view York - - PowerPoint PPT Presentation
Is SEN a stigmatising or positive label the parents view York Parent Carer Forum University of York St John Integrated services conference16.2.17 Background YPCF were approached by York St John University to support students research for
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Themes from the discussion
- Diagnosis
- Accessing Services
- Labelling
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Diagnosis
- This was generally considered to be
positive.
- Particularly specific labels such as
‘autistic’ as this tended to increase people’s understanding of particular needs and resources that could be helpful.
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Diagnosis
- More support for families was needed
undergoing the diagnostic process (‘very difficult unknown stage’)
- Important to know how to access
resources, make sense of things.
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Diagnosis
- Experience of behaviour was often
different at home and in school.
- With the right adjustments some
aspects of autism could be less important.
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Accessing Services
- Parents commented on how they
had had to become resilient and persistent to gain access to some services.
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Accessing Services
- The My Support Plan, a lengthy
process for the school and parents.
- Could this be more tailored on an
individual basis for example for a child with less physical and support needs.
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Accessing Services
- Parents varied in terms of the sorts
- f schools that they believed were
best for their children.
- Some talked positively about the
mainstream schools and teachers; some saw special provision as the most appropriate option.
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Labelling
- Children with the SEN label had different
perspectives on it – parents commented
- n how some enjoyed the label and how
it set them apart from others.
- Whereas others did not want to be
considered ‘special’ or different . They did not see it as positive .
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Labelling
- Parents perceptions of labelling seemed
to be linked to age – in particular younger children did not feel judged by peers.
- In comparison those in the secondary /
FE stage who saw labels as stigmatising and prohibitive, especially in gaining employment.
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Labelling
- Parents were positive about what had
come out of their experience of being a parent of a child with SEN .
- They reported increased
understanding, humour and becoming a better person.
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