Incorporating Patient Perspectives and Experiences in CADTH Reports - - PowerPoint PPT Presentation

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Incorporating Patient Perspectives and Experiences in CADTH Reports - - PowerPoint PPT Presentation

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Incorporating Patient Perspectives and Experiences in CADTH Reports TAMARA RADER, PATIENT ENGAGEMENT OFFICER CONCURRENT SESSION A3 APRIL 15, 2019 Disclosure CADTH is funded by federal, provincial, and territorial ministries of health.

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Incorporating Patient Perspectives and Experiences in CADTH Reports

TAMARA RADER, PATIENT ENGAGEMENT OFFICER CONCURRENT SESSION A3 APRIL 15, 2019

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Disclosure

  • CADTH is funded by federal, provincial, and territorial

ministries of health.

  • Application fees for three programs:
  • CADTH Common Drug Review (CDR)
  • CADTH pan-Canadian Oncology Drug Review (pCODR)
  • CADTH Scientific Advice

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Why CADTH Engages Patients

Relevance

CADTH seeks patients’ perspectives to improve the quality of

  • ur assessments of medical procedures, devices and drugs.

Fairness

Our recommendations on publically funded procedures, devices, and drugs, impact Canadian patients. It makes sense that patients and the public be aware of, and involved in, our work.

Equity

Patients, families and communities can offer insights on the diversity of needs of individuals and health care settings across Canada.

Legitimacy

Involvement by all stakeholders can help ensure good governance of our processes

HTAi Patient & Citizen Involvement Interest Group www. htai.org

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Contribute to CADTH Assessments

Groups provide Patient Input on specific drugs for:

  • Common Drug Review
  • pan-Canadian Oncology Drug Review
  • CAR-T cell therapies

Individuals and/or groups work with CADTH teams for:

  • HTA/OU Projects (medical devices and procedures)
  • Horizon and Environmental Scans
  • Scientific Advice

CADTH may also look in academic published literature for patients perspectives and experiences

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Patient input into CDR and pCODR

Critique of economic models

CDEC / pERC deliberations Patient Input Submissions

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Table of contents – CADTH Optimal Use project

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Clinical trials Knowledge synthesis (review)

  • f qualitative

literature Economic model (or critique of a model) Ethics review and analysis Interviews with patients + Feedback from patient groups

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Patient input into CDR and pCODR

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Knowing a group’s purpose, mandate, mission or vision all add context to the submission CADTH is interested in how the information was

  • collected. More detail

helps the reviewers and committee members.

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Patient input into CDR and pCODR

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Help from

  • utside the
  • rganization

Financial payments from companies or

  • rganizations
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Future directions

  • Views of patient groups currently involved with CADTH.
  • Views of patient groups and communities not currently

involved with CADTH.

  • Other types of involvement of and support for patients and

patient groups.

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2018 Listening Exercise for Future Direction

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Patient Community Liaison Forum

How can we greater involve patients, patient groups and communities in

  • ur work?

9 CADTH directors 4 patient and public committee members from pERC, CDEC and HTERP 23 patient groups involved with CADTH

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We Heard

Greater Engagement:

  • Meaningful, respectful

engagement

  • Need for greater diversity of

voices

  • Greater interaction with expert

committees and CADTH researchers

  • Involvement in CADTH

governance

  • Input and engagement

measured to demonstrate impact

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To Be Supported:

  • Travel awards to CADTH

symposium much appreciated

  • Clear guidance on what is

helpful or seen as biased

  • Awareness raising of CADTH

and role for patient perspectives in assessments

  • Help preparing / refining

patient input

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Towards Best Practices in Patient Evidence

  • Integrate patient input into the design of research projects,

including patient input mechanisms and methods for capturing outcomes meaningfully

  • Maintain a focus on diseases and the lived experiences of

patients, rather than on specific drugs or technologies

  • Survey or interview your patient population, collate and

publish responses

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Towards Best Practices in Patient Evidence

  • Invite collaboration from relevant stakeholders, including

patient groups

  • Have patient representatives review submissions
  • Integrate patients on review committees as experts, not just

consumers

  • Represent patient perspectives on equal footing with other

forms of evidence

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Connect With Us

@CADTH_ACMTS linkedin.com/company/cadth slideshare.net/CADTH-ACMTS youtube.com/CADTHACMTS cadth.ca/photoblog requests@cadth.ca

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Subscribe

Sign up at www.cadth.ca/subscribe to get updates sent directly to your inbox.

CADTH E-Alerts

Calls for stakeholder feedback and patient group input, plus other time-sensitive announcements.

New at CADTH

Monthly newsletter including a summary of new reports plus corporate news, announcements of upcoming events, and more.

CADTH Symposium and Events

Updates about our flagship annual Symposium, workshops, webinars and other events.

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Additional slides - examples

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Patient views reflected in MIGS recommendations

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Patient views reflected in Clinical

  • utcomes chosen

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Providing a Canadian perspective to add to the Qualitative Synthesis

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Discussion of patients’ needs when it comes to informed choice - Ethics

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A comment about assumptions in the discussion section for the whole HTA

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