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FIMR Project Impact Update Tracy Claveau, RN, BAN FIMR Project Coordinator What is Infant Mortality? The death of a baby before his or her first birthday. The is often used as an indicator to measure the health and well being of a


  1. FIMR Project Impact Update Tracy Claveau, RN, BAN FIMR Project Coordinator

  2. What is Infant Mortality? The death of a baby before his or her first birthday. The is often used as an indicator to measure the health and well being of a population

  3. Infant Mortality Rates Per 1000 Live Births NEF Florida 9 8 8 8 7.4 7.3 7.1 7.2 7 6.5 6.5 6 6.4 6.2 6.1 6 6 6.1 5 4 2010 2011 2012 2013 2014 2015 2016 Source: Florida CHARTS, Division of Public Health Statistics and Performance Management, Florida Department of Health www.floridacharts.com

  4. Leading Infant Mortality Rates Duval County 32209 32208 32254 32202 32204

  5. Infant Mortality Rates By Zip Code (Duval) 32208 32209 32210 32211 32218 2013 20.5 11.4 9.6 12.9 13.9 2014 14.3 6.3 16.8 15.6 15 2015 10.9 10 12.8 7.4 13.4 2016 24.1 16.1 13.9 11.9 5.5

  6. Nassau Baker IM Rate 4.9 LBW 8% LWB Disparity 3 IM Rate 2.9 LBW 9.9% LWB Disparity 1.7 St . Johns Clay IM Rate 5.4 IM Rate 5.2 LBW 7.8% LBW 7.1% LWB Disparity 1.4 LWB Disparity 2.2%

  7. Infant Mortality Rates By Zip Code (Outlying) Number in parenthesis is count of infant deaths 32065 32046 32033 32092 32145 Clay Nassau St. Johns St. Johns St. Johns 2013 5.2 (2) 0 0 2.9 (1) 39.5 (3) 2014 5.3 (2) 0 42.6 (1) 10.7 (4) 15.4 (1) 2015 2.3 (1) 8.7 (1) 0 5.4 (2) 0 2016 9.7 (4) 24.4 (3) 20.4 (2) 10.8 (4) 16.1 (1)

  8. Infant Mortality Rate by Race Disparities on a local and state level 16 NEF White NEF Black/Other State White State Black/Other 14 12 10 8 6 4 2 0 2013 2014 2015 2016 Source: Florida CHARTS, Division of Public Health Statistics and Performance Management, Florida Department of Health www.floridacharts.com

  9. Infant Mortality Rate by Race Disparities on a local, state and national level 16 14 Black 12 10 8 White 6 4 2 NEF US FL 0 2012 2013 2014 Source: Florida CHARTS, Division of Public Health Statistics and Performance Management, Florida Department of Health www.floridacharts.com

  10. Causes of Infant Death, Northeast Florida • Prematurity-Low Birth Weight 25% • Other Perinatal Conditions 25% • SUIDs 22% • Congenital 18% • Other 10%

  11. Infant Age at Death 41% 34% 33% 42% 59% 67% 66% 58% 2013 2014 2015 2016 < 28 days 28- 365 days Source: Florida CHARTS, Division of Public Health Statistics and Performance Management, Florida Department of Health www.floridacharts.com

  12. SUIDs Sudden Unexpected Infant Deaths Most SUID are reported as 1 of 3 types of infant deaths  Accidental Suffocation and Strangulation in Bed  Suffocation by soft bedding  Overlay  Wedging  Strangulation  Unknown Cause/Could not be determined The sudden death of an infant that cannot be explained because a thorough investigation was not conducted and cause of death could not be determined.  Sudden Infant Death Syndrome cannot be explained after a thorough investigation is conducted, including a complete autopsy, examination of the death scene, and a review of the clinical history.

  13. Alachua Baker Bay Bradford Brevard Broward Calhoun Charlotte Citrus Clay Collier Columbia Miami-Dade Sudden Unexpected Infant Deaths (SUIDs) Desoto Duval Escambia Flagler Franklin Gadsden Gilchrist Glades Gulf Hamilton Hardee Hendry Hernando Highlands Hillsborough Holmes 2010-2016 Indian River Jackson Jefferson Lake Lee Leon Levy Madison greater than 10,000 births Highlighted counties have Manatee Marion Martin Monroe Nassau Okaloosa Okeechobee Orange Osceola Palm Beach Pasco Pinellas Polk Putnam Saint Johns Saint Lucie Santa Rosa Sarasota Seminole Sumter Suwannee Taylor Union Volusia Wakulla Walton Washington

  14. SUIDs Sudden Unexpected Infant Deaths Includes: n = 30 Accidental suffocation or • strangulation in bed Bedsharing Other suffocation and 6 • 8 strangulation Unsafe Sleep 20% 27% ( i.e. choking) Environment Positional SIDS 7 • 23% 9 Many sources include “undetermined”, • Other SUIDs 30% “could not be determined” and other, and are included in the “SUIDS”

  15. SUIDs A Closer Look 102 days Average Age at time of death 13% of mothers 62% Mothers Had at least a High had Healthy Start School Education Care Coordination (2016) Black and other non whites are 2.5 times more likely to die of SUIDs than whites 21% of babies *51% Fathers had Healthy Start Had at least a High Care Coordination School Education (2016) 70% WIC 73% Medicaid

  16. Fetal Deaths by Race (stillborn at greater than 20 weeks of pregnancy) White Black/Other Total Fetal Deaths 16 14 12 10 8 6 4 2 0 2011 2012 2013 2014 2015 2016 Source: Florida CHARTS, Division of Public Health Statistics and Performance Management, Florida Department of Health www.floridacharts.com

  17. Neonatal Abstinence Syndrome (NAS) Northeast Florida A condition experienced by newborns exposed to opioid prescription or illicit drugs during pregnancy. Northeastern Florida has been identified as an area of very high concern. Source: Florida Department of Health Neonatal Abstinence Syndrome Data Summary, March 2015

  18. Neonatal Abstinence Syndrome (NAS) Northeast Florida 347 infants were discharged from our area hospitals with NAS conditions in Qtr 1 & 2 of 2016. In the entire year of 2015, 383 infants were discharged with NAS conditions. Source: Agency for Healthcare Administration

  19. FIMR Fetal and Infant Mortality Review “to determine specific medical, social, financial and other issues that may have impacted the poor birth outcome” “It’s not about finding fault, it’s about figuring out where the system failed ”

  20. Source: FIMR Overview for new CRT and/or CAT members, Publication of the National Fetal and Infant Mortality Review Program, ACOG, 2014 .

  21. Contributing Factors 61% 57% Poverty 43% Pre-Existing 39% Conditions • Asthma Substance • HTN 54% Use • Diabetes (Except Tobacco) Pre-Term Labor Obesity

  22. Parental Knowledge and Behavior 18% 46% 29% Late entry into Inconsistent Inadequate care prenatal care Birth Spacing 46% 43% Kept postpartum Substance Use appointments

  23. Without Strength Change Cannot Occur Grief Healthy Support Start 68% screen 43% Post partum Dad depression Involved screen/grief 93% assessment 11% Family Insurance Support 85% 89%

  24. Recommendations Safe Sleep Benefits of Healthy Start and other Home Visiting Programs SUIDs Prevention

  25. Standardized Training for All Entities who Encounter Caregivers Safe Sleep Multi-agency 2 track child safety curriculum Professionals and community agencies • Caregivers • Proposed Curriculum Components 1. Safe Sleep 2. Water Safety SUIDs 3. Selecting an Appropriate Caregiver Prevention

  26. Number of families who did not have home visiting support Benefits of Healthy Start and other Education and out outreach to hospitals, Home Visiting nursing care staff and birth recorders . Programs Value of home visitation • Process of referral • Engaging pregnant women and • pediatrics in triage areas and emergency rooms

  27. There is no foot too small that it cannot leave an imprint on this WORLD Author unknown

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