Exploring the Eugene Washington PCORI Engagement Award Program Dial - - PowerPoint PPT Presentation

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November 19, 2014

Exploring the Eugene Washington PCORI Engagement Award Program

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Agenda

Welcome and Introductions About PCORI and Engagement About Engagement Award Program Application Process Award Spotlight: Franciscan Helps Families Connect Award Spotlight: Integrating Patient-Centered Outcomes Research into Hospital CHNAs

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Welcome and Introductions

Jean Slutsky, PA, MSPH, Chief Engagement and Dissemination Officer and Program Director for Communication and Dissemination Research Lia Hotchkiss, MPH, Director, Engagement Award Program Shivonne Laird, PhD, MPH, Program Officer, Engagement Award Program Rachel Benz, Contracts Administrator, Contracts Management Jane O'Brien, MD, Chief Medical Officer, Franciscan Hospital for Children Carol Nash, MS, Director of Research Operations, Franciscan Hospital for Children Marie Cleary-Fishman, BSN, MS, MBA, CHCQM, Health Research and Educational Trust

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Questions and Comments

We welcome your questions and comments; use the chat function on the right side of your screen. We welcome your comments via Twitter to @PCORI and #PCORI. An archive of this webinar will be posted to http://www.pcori.org/get-involved/pcori-in-practice/ following this event.

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About PCORI

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About PCORI

An independent research institute authorized by Congress through the Patient Protection and Affordable Care Act Funds comparative clinical effectiveness research (CER) that engages patients and other stakeholders throughout the research process Seeks answers to real-world questions about what works best for patients based

• n their circumstances and concerns

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PCORI helps people make informed healthcare decisions and improves healthcare delivery and outcomes by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.

PCORI Mission

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Patient and Stakeholder Engagement

Engages patients and other stakeholders from across the entire healthcare enterprise and involves them meaningfully in the entire research process—from the development of our research priorities to the dissemination of research findings Patients are partners in research, not just “subjects” Active and meaningful engagement among scientists, patients, and other stakeholders Engagement as a tool to advance research

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Evaluation

Engagement as a Path to Useful, High-Quality Research

Proposal Review; Design and Conduct of Research Topic Selection and Research Prioritization Dissemination and Implementation of Results Evaluation

PCORI Stakeholders Patients Caregivers Advocacy Organizations Clinicians Researchers Purchasers Payers Industry Hospitals and Health Systems Policy Makers Training Institutions

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About Engagement Award Program

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Engagement Goals

Promote dissemination and implementation of PCOR research findings Engage the PCOR community in research Build a patient-centered outcomes research (PCOR) community

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Eugene Washington PCORI Engagement Award Program

Launched in February 2014 Provides support for projects that lead to better integration of patients and other stakeholders in the healthcare research process A programmatic funding opportunitynot research awards Program budget $15.5 million (FY 2015) Awards up to 2 years in duration; $250,000 total costs Fund awards through contracts rather than grants; PCORI programmatic involvement with the awardees is expected throughout the post-award process

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Engagement Award Categories

Knowledge Awards: Increase knowledge about how consumers of healthcare information view, receive, and make use of patient-centered outcomes research (PCOR) and clinical comparative effectiveness research (CER) Training & Development Awards: Build capacity for participating in PCOR and CER and create ways to connect patients, caregivers, and other stakeholders with the research community Dissemination Awards: Develop and strengthen channels for disseminating and implementing PCOR and CER findings

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Engagement Award Initiative Notice (EAIN)

Provides support for meetings and conferences to facilitate expansion of PCOR and CER

• Examples of conference themes eligible for

funding:

• Research design and methodology
• Research development
• Dissemination and implementation

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Our Growing Engagement Award Portfolio

20 unique projects awarded*; many more applications in the pipeline under review Focus on a variety of PCORI stakeholder groups: patients, caregivers, clinicians, hospitals and health systems, researchers, policy makers Will produce information that is useful to awardees, PCORI, and the broader PCOR community for increasing patient and stakeholder engagement in PCOR and CER We are committed to sharing and using this information

*as of November 17, 2014

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Sample Project Deliverables

A landscape review of programs used by policy makers to leverage PCOR and CER, and a roadmap to guide them in the use of PCOR and CER An enhanced year-long training curriculum designed to educate and engage health center teamsincluding patients and clinical and administrative staffin PCOR An openly accessible, web-based portal with resources about engagement for both patients and researchers A conference summary that defines the academic approaches to PCOR and CER training

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Not Intended to Support

Small research grants Planning grants/pilot studies Evaluations of interventions Tool validation Development of decision aids or clinical practice guidelines Meetings that are business as usual, without focus

• n PCOR or CER

Career development awards

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Our Application Process

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Who Can Apply

Private Sector

• Nonprofit and for-profit research organizations

Public Sector

• Universities and colleges; hospitals and healthcare systems; laboratories

and manufacturers; units of state, local, or federal government.

U.S. Organizations

• Must be recognized by the Internal Revenue Service

Foreign Organizations and Nondomestic Components of U.S. Organizations

• May apply if here is demonstrable benefit to the U.S. healthcare system;

U.S. efforts in the area of patient-centered research can be clearly shown

Individuals

• Not permitted to apply

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How to Submit

http://www.pcori.org/funding/opportunities

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Review Process

Submit Letter of Inquiry (LOI) PCORI Review (20 days) If Invited, Submit Proposal (40 days) PCORI Review (40 days) Decision to Award/Not Award

• If applying for meeting/conference support, you do not need to submit an LOI.

Applicants proceed directly to submitting a full proposal.

• LOIs and proposals for meeting/conference support accepted on an ongoing

basis, but reviewed quarterly beginning on January 2, April 1, July 1, and October 1.

• Applications are reviewed by at least 3 members of PCORI’s Engagement

Team, Contracts Management and Administration, and other internal staff, as needed.

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Merit Review Criteria

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• 1. Program Fit
• 2. Project Plan and Timeline
• 3. Qualifications of Project Lead
• 4. Personnel and Collaborators
• 5. Past Performance
• 6. Budget/Cost Proposal

Applications are reviewed against six criteria:

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Allowable vs. Unallowable Costs

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Franciscan Helps Families Connect

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November 19, 2014

• Dr. Jane O’Brien

Chief Medical Officer, Franciscan Hospital for Children Carol Nash

Director of Research Operations, Franciscan Hospital for Children

Franciscan Helps Families Connect

Franciscan Helps Families Connect: Project Team

Franciscan Hospital for Children, Brighton, MA Project Team:

Jane O’Brien, MD: Project Lead Carol Nash, MS: Project Manager 3 Parent Partners

Franciscan Helps Families Connect: Issue Addressed

Children with medical complexity (CMC) represent a growing percentage of the pediatric population and have a high medical resource utilization. Identifying opportunities to improve care coordination for this fragile group of children from their parents’ perspectives is a unique opportunity that will need to be embraced by healthcare providers across the continuum of care.

Franciscan Helps Families Connect: Key Stakeholders

Our key stakeholders fall into two groups: Parents stakeholders

Parents of children with chronic, complex medical conditions in Massachusetts.

Healthcare providers

Professionals from different areas who are involved in the delivery of care or management of services to children with complex medical conditions.

Franciscan Helps Families Connect: Goals & Objectives

Create a network for communication of parent-identified issues related to the care of their CMC. Identify the common barriers parents encounter while trying to ensure the best care for their CMC. By giving parents a united voice and establishing an effective partnership between parents and healthcare providers, we expect to develop collaborations and solutions through research and other activities.

Franciscan Helps Families Connect: Project Activities

Build a network to connect parents to each other and to healthcare providers through outreach by parent partners and providers. Using online surveys, query parents to identify aspects of caring for their child that are ineffective, fragmented or

• verly burdensome.

Our parent partners informed us that, because of their care responsibilities for their child, participation had to be online. Parents want to be engaged in improving their children's healthcare networks. The use of an online system allows them to participate and contribute at a time that is convenient.

Franciscan Helps Families Connect: Expected Outcomes

Establish a network linking project stakeholders to foster future collaborative efforts to address healthcare practices

• r policies identified as ineffective in parent surveys.

Identify practices to reduce care fragmentation, allowing smoother delivery of care plans that result in an improved healthcare experience for CMC and their families. Identify topics for future patient-centered outcomes or comparative effectiveness research studies, across all levels of care, to improve the healthcare experience of CMC and their families.

Integrating Patient-Centered Outcomes Research in Hospital CHNAs

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November 19, 2014

Marie Cleary-Fishman

Vice President, Clinical Quality Health Research & Educational Trust (HRET)

Integrating Patient –Centered Outcomes into Hospital Community Health Needs Assessments (CHNAs)

Project Overview

HRET

Non-profit research and education affiliate of the American Hospital Association (AHA) Mission:

To transform health care through research and education

HRET’s applied research seeks to create new knowledge, tools and assistance in improving the delivery of health care by providers and practitioners within the communities they serve

Project Overview

Project Team

Maulik Joshi, DrPH – Organizational Lead & Co-Principal Investigator Steven Hines, PhD– Co-Principal Investigator Stephen Martin, PhD – VP Association for Community Health Improvement(ACHI) – Project Marie Cleary-Fishman – VP Clinical Quality - Project Katie Harris – Research Specialist – Project Julia Resnick – Program Manager – Project Kevin Kenward, PhD – Statistician – Project Project Patient Care (PPC) – Martin Hatlie, JD – Project Partner

Project Overview

Issue/Problem

CHNA requirement for all non-profit hospitals every 3 years (2013)

Identify community health problems and create strategies Share with the public and include input from people who represent the community

Project Overview

Issue/Problem

HRET created a national warehouse and reviewed over 300 CHNAs, finding:

Variation in quality Little mention of patient and community-member engagement Priorities that are general, and plans that are broad Little mention of relevant PCORI research finding

Key Stakeholders

Patients, families, caregivers, community members, hospitals

Project Goal and Objectives

Goal – To improve health outcomes by fostering a patient and

community member-centered, research-guided approach to creating hospital community health needs assessments (CHNAs).

Objective 1 – create, test and promote a model for patient/community engagement Objective 2 – create, test and promote a model for reviewing and incorporating PCORI research into CHNAs Objective 3 – synthesize and disseminate PCORI research findings to CHNAs authors

Project Methods

Activities

• Strengthen hospital engagement with key stakeholders
• Interviews, focus groups, model development and testing
• Increase hospital capacity to utilize PCORI research
• Environmental scan, panels, model development and testing
• Enhance PCORI’s ability to summarize and disseminate

relevant research in an ongoing manner

• Interviews, focus groups
• Design builds on the strength and experience of HRET

and its partner Project Patient Care (Martin Hatlie)

Project Outcomes

Outcomes & Impact

CHNA-development guidance documents

Guide for engaging patients and community stakeholders Guide for integrating PCORI research

Webinar - designed to create awareness of these newly developed resources Roadmap for PCORI for how to spread to hospitals emerging PCORI research that is related to CHNAs Article - describing challenges, lessons learned and best practices for creating patient-and-community-member-centered, evidence- based CHNAs

Project Outcomes

Building on the work of PCORI, HRET, and the Association for Community Healthcare Improvement (ACHI), we will improve the processes hospitals employ to construct their CHNAs, thereby contributing to improved health

• utcomes within their communities.

For More Information

Visit pcori.org/eugene-washington-awards Contact us at

• ea@pcori.org
• 202-370-9312

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Questions and Comments

We welcome your questions and comments; use the chat function on the right side of your screen. We welcome your comments via Twitter to @PCORI and #PCORI. An archive of this webinar will be posted to http://www.pcori.org/get-involved/pcori-in-practice/ following this event.

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Thank You

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