dr. h.c. Cees Smit, Long-term user of plasma products European - - PowerPoint PPT Presentation

• dr. h.c. Cees Smit, Long-term user of plasma products

European Parliament, Brussels, January 22, 2019

MEDICAL PROGRESS IN HEMOPHILIA

1965 2015 2015

3

All patients Dutch males Severe hemophilia Moderate hemophilia Mild hemophilia

40 50 60 70 80 90 Time period Life expectancy (years) 1975 1985 1995 2005 2015 40 50 60 70 80 90 Time period Life expectancy (years) 1975 1985 1995 2005 2015 40 50 60 70 80 90 Time period Life expectancy (years) 1975 1985 1995 2005 2015 40 50 60 70 80 90 Time period Life expectancy (years) 1975 1985 1995 2005 2015 40 50 60 70 80 90 Time period Life expectancy (years) 1975 1985 1995 2005 2015

CHALLENGES

Dependency from just one country can be dangerous (hiv, bse) How to manage in the EU availability of essential medicines (def. WHO), like IVIG at the moment in Romania, Scotland and the UK Blood and plasma as ‘strategic resources’ where EU should invest in (↑ international tensions) Independent user groups of blood and plasma should be established Legal issues (no fault-compensation)