Demonstrably doing accountability in e-health: practical processes - - PowerPoint PPT Presentation

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Demonstrably doing accountability in e-health: practical processes - - PowerPoint PPT Presentation

Jun 09, 2023 281 likes •490 views

October 2019 Demonstrably doing accountability in e-health: practical processes and tools Peter Leonard Principal, Data Synergies Pty Limited Professor of Practice, UNSW Business School 1 2 2 Source: Peter Cullen and Information

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Demonstrably doing accountability in e-health: practical processes and tools

Peter Leonard Principal, Data Synergies Pty Limited Professor of Practice, UNSW Business School

October 2019

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Source: Peter Cullen and Information Accountability Foundation February 2018

Data as business driver and risk

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Algorithmic accountability BINGO

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Source: Australian Computer Society data sharing White Paper (forthcoming, Oct 2019

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Source: Australian Computer Society data sharing White Paper (forthcoming, Oct 2019

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14 Source: Australian Computer Society data sharing White Paper (forthcoming, Oct 2019

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Smartphones and IOT

Data Issues Cubed

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  • ‘data isn't oil‘ - harvesting v

value creation

  • the human factor

− transformation and insights − algorithms, processes and methodologies

Wheat and chaff, good and bad

  • owners, custodians and

stewards: asset and liability

  • observed data and

'digital exhaust‘

  • volunteered,

transformed, curated and inferred data

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Is data your best asset (that you never own)?

  • rights and duties of custodians and

stewards

  • end-to-end data governance
  • contracts, trade secrets, IP
  • wnership, privacy and trust
  • relative confidentiality
  • differential privacy, labs and clean

rooms

  • supply and demand side data

ecosystems

  • (unilateral) contracts
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Data Analytics Project Review Framework

Cost Time

Gate 1

Data Impact Assessment Ethics Review (if Human Research)

Gate 2

Outputs (Agile) Assessment Revise DIA + ER

Gate 3

Outcomes Assessment, check DIA + ER

Post-Imp Review

Feedback and improvement Commercialisation Phase Application Development Phase Discovery Phase

Source: Data Synergies January 2019