Consequences of a Medical Diagnosis and Lay Diagnosis of Autism - - PowerPoint PPT Presentation

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Consequences of a Medical Diagnosis and Lay Diagnosis of Autism - - PowerPoint PPT Presentation

Sep 18, 2023 311 likes •448 views

Whats in a Label? The Functions and Consequences of a Medical Diagnosis and Lay Diagnosis of Autism Thomas Lister Supervisors: Prof Christabel Owens (UEMS), Dr Ginny Russell (UEMS) & Prof Susan Kelly (Sociology, Philosophy &

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What’s in a Label? The Functions and Consequences of a Medical Diagnosis and Lay Diagnosis of Autism

Thomas Lister

Supervisors: Prof Christabel Owens (UEMS), Dr Ginny Russell (UEMS) & Prof Susan Kelly (Sociology, Philosophy & Anthropology)

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What is autism?

  • A set of heterogeneous neurodevelopmental conditions
  • 1% of adult population medically diagnosed (UK)
  • Aetiology contested
  • No known cure

James Reed

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Medical Diagnosis (Doctor)

Medical Diagnosis & Lay Diagnosis

  • Disease categories
  • Standardised ‘master

texts’ (e.g. ICD)

  • Formal training
  • Subjective experience
  • Personal inquiry (e.g.

Internet search)

  • Well-informed ideas

Naming a ‘problem’

Lay Diagnosis (Individual) Different conclusion?

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The Sociology of Diagnosis

  • Diagnosis-as-category
  • Diagnosis-as-process
  • Consequence of diagnosis
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Lay Diagnosis of Autism

  • Online resources: Tests, checklists, chatrooms
  • Disclaimer: Pro-medical diagnosis
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Research Questions

1) Why do people seek a diagnosis of autism in adulthood? 2) What determines whether they diagnose themselves (lay diagnosis)

  • r seek a medical diagnosis?
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Adults (18+)

Received a Medical Diagnosis (MDX) Conducted a Lay Diagnosis (LDX) Awaiting/Seeking MDX Not seeking MDX

Recruitment:

  • Charity organisations (e.g. National Autistic Society)
  • Online networks (e.g. Autistic Pride)

Method: Sampling

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Method: Data Collection

Data collection

  • Semi-structured interviews (30-40)
  • Online interviews/chatroom discussions

Grace Goad

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Contribution & Output

  • Transformative power of

diagnosis

  • Sociological perspective on

autism diagnosis

  • Message for clinicians
  • Transferability to other

conditions

Michael Tolleson

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Thank you!

Anjana Krishna

Artwork was created by members of the autism & neurodiversity community and commissioned by the Exploring Diagnosis Team, University Exeter. For more information please visit:

https://blogs.exeter.ac.uk/exploringdiagnosis/artistsbiographies/