COMMUNITY CONNECTIONS How Post diagnostic Services in Shetland support individuals in their communities ALAN MURDOCH – Dementia Services Nurse Consultant ANN WILLIAMSON – Dementia Advisor LAURA WHITTALL – Community Activities Organiser
SHETLAND
• Over 100 islands, 16 occupied • 22,400 population • 172 people with a dementia diagnosis (October 2018)
Development of Dementia Services in Shetland Before January 2010 – diagnosis of unspecific dementia by family doctors Some support from Social Care Services. Specialist assessments required a 400 mile round trip to Aberdeen
NHS Shetland Dementia Assessment Service • Nurse led with clinical support via weekly video link • Nurses assess and deliver diagnosis • Nurses prescribe medication and reviews • Nurse supports Social Care staff to manage behavioural concerns
Identified gaps in services Following diagnosis: • No support for the person and/or family • Poor community awareness of dementia • Services only for advanced stages of dementia • Lack of community based activities
Alzheimer Scotland Services The Dementia Advisor role – 3 strands • Supporting Individuals • Supporting Families • Supporting Communities
Alzheimer Scotland localities
Setting up services 2012 onwards Key steps- • Getting to know the community • Raising awareness of Alzheimer Scotland – use of media • Establishing links with other agencies • Collaborative working • Developing groups in public venues to create ‘inclusion’.
Knitting Group in cafe of Mareel Music and Cinema venue
Members of Football Reminiscence Group visit to Hampden Park in Glasgow.
Alzheimer Scotland Services The Community Activities Organiser – • increased joint working • Increased activities in rural areas • Intergenerational working
5 Pillar Model of Post Diagnostic Support
Art Group in Shetland Museum
Meg’s margaritas
Art Group receiving award for “Most Innovative Partnership” at Scottish Dementia Awards 2014
Dancing in Sound Community Hall
The band
Trip on The Swan training ship
Memory Lane Cafe – North Mainland
Intergenerational cafe - Whalsay
Interacting with the local wildlife at Memory Lane Cafe!
Intergenerational Work • Joint work with Music Therapist • Community Cafes • Primary School Choirs to Dementia Cafes • Fair Isle Friday • Dementia Friends in Schools
Community Cafe at Sandwick School
Raising awareness at Charity Fair in Anderson High School
Fair Isle Friday at Anderson High School
Fair Isle Friday at Anderson High School
Finalist in Scottish Dementia Awards
Dementia Friends • Awareness Raising • Delivered across the community including: • Schools • Businesses and local groups • Politicians • Local Authority and NHS Shetland staff
Currently 629 people trained as Dementia Friends Working towards a Dementia Friendly Community
Our International Dementia Friend
Opening Of Dementia Resource Centre • Premises opened April 2015. • Designed to be ‘Dementia Friendly’ • A base for staff and venue for the public. • Drop in sessions held monthly
Opening of the Resource Centre by Henry Simmons, CEO of Alzheimer Scotland
Inside the Resource Centre
Conclusion • Visible • Responsive • Flexible • Deliver and sustain services • Work collaboratively with clinical staff and agencies • High profile • Most of all ….Care
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