Co-creation and testing to increase independence and fit for people - - PowerPoint PPT Presentation

Assistive technology: Co-creation and testing to increase independence and fit for people living with dementia

Smart Health Event Amsterdam

Jill Pendleton 14.05.14

The moral obligation

The size of the problem

• 35 million people are currently estimated to have dementia
• 4.6 million new cases are diagnosed each year- 1 every 7 secs
• 800 000 (approx) people living with dementia in the UK
• £23 billion cost per annum to UK – 2xcancer, 3xheart disease,4x stroke
• £27,647 per year to care for a person with dementia in UK
• 2/3 people living in the community, 1/3 in care homes
• Drive is to diagnose people earlier

Figures www.gov.uk, Alzheimer’s Research Trust, Kings Fund

Solving the puzzle

Smart economy Technology

Innovation and Development

Community

Technology and dementia

• Why?
• There is recognition that current methods of supporting people are economically

unsustainable and not meeting need

• People with dementia want to stay in one place – home and we need to get better at finding

solutions to enable people with dementia to do that

• Fit
• Products go part of the way to enabling people to stay independent and safer longer- one of

the reasons for this is lack of involvement of people living with dementia in design

• Recent moves are towards co creation and production

Telehealth and Telecare are not new but have not been fully exploited

Stand alone devices

Telecare

Telecare

Movement Detector

Smoke Detector

Bogus Caller Flood detector

Carbon Monoxide Detector

Temperature Extremes

Gas Detector Fall Detector

Video Door Entry

Medication Dispenser

Pillow Alert

Dementia Friendly Technology - a charter

Alzheimer’s Society

Safety- reducing areas

• f risk

Health- remote monitoring of health Life Enhancing – quality

• f life and independence

Innovate Dementia: 3 year European funded project( Interreg IVB)

• Aim:
• To develop innovative care models

and practices

• Develop and test new or existing

technologies and innovative ways of living within the peoples real living environments

• Test

and evaluate innovative dementia care models, focusing specifically on key elements of integrated care

Academia Health and social care Sector Business

The Netherlands Belgium United Kingdom Germany

Partners

Collaboration

Transnationality

Boost Innovation Capitalise

• n Existing

Knowledge Identify Trends Merge Ideas Create New Business

Creating Collaboration - Liverpool

Living Lab

• ‘Ensuring that people living with dementia are central to and

drive the innovation process, ‘user led partnerships’ is invaluable as people’s opinions regarding relevance and utility can not, and should not be replicated by professionals or developers, signifying the expertise of people living with dementia and challenging the perception of service users as passive recipients

• f care’
• The King’s Fund (2012) Experience-based co-design toolkit: working with patients to improve health care.

http://www.kingsfund.org.uk/projects/point-care/ebcd (last accessed May 23 2013.)

• Liveability – Exercise programme and film
• Schools
• Meal positioning

Nutrition and Exercise

• Intelligent lighting within an dementia inpatient unit

Lighting

• Non pharmacological interventions
• Co-creation projects: Memory enabling technologies, House
• f Memories, Tell Joan / Mylife
• Bricolage

Living environment

• Lived experience
• Liverpool Football club
• Models of access films
• Database

Models of assistance

Living environments – memory enabling technologies…

Co-design Co- creation Co-production Customisation

Our experience …

• Huge learning curve
• new concept for many
• challenge our own knowledge and assumptions
• knowledge of technology
• business focused / NDAs / IP
• In-depth learning about peoples needs and abilities
• Need for an assessment before introducing people to the

consumer marker

• Need for governance framework-protocol around involvement

Design is the key , gadgets need to look what they are… Simple is not always the best solution Am I hearing voices? If it doesn’t move I cant see it

What we’ve learnt through co creation

Feedback:

‘Unbelievably they actually came to us Service Users when they were looking to

design things to help improve the lives of people living with dementia, They called it innovation a new word for people with dementia.’ ‘For the first time something was going to be bespoke made for us rather than us having to fit what ever what was made you know like it or lump it.’ ‘It was fantastic for us as people with dementia to be give the opportunity to be given the chance to speak to the house of memories & designers and tell them what works and what doesn't work for us, but more importantly they listened, acted and then came back with the improvements we had ask.’ ‘It didn't matter what ideas we came up with they were all considered.’

Contact: For further information www.innovatedementia.eu

• Jill.pendleton@merseycare.nhs.uk