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Caught between blindness and a heart attack? Or how research - - PowerPoint PPT Presentation
Caught between blindness and a heart attack? Or how research - - PowerPoint PPT Presentation
Caught between blindness and a heart attack? Or how research reporting can keep an informed patient awake at night How can patients add value? Engage physicians, patients from the onset What we seek to answer with the study What we want to
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How can patients add value?
Engage physicians, patients from the onset
What we seek to answer with the study What we want to ask Discuss results, how to report them Proactive knowledge transfer Standard procedure Built into calls for proposals, funding
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How can academics add value?
Improve quality of conduct (e.g. questionnaires) Address communication implications from the get-go.
Study limitations Causality, associations Interpretation (expert vs. expert, lay vs. expert) Contradictory evidence
Assess results in the context of existing knowledge. Reporting does not end with publication
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Mediations: key target
Take into account all reporting mediations
Health professionals Public health communicators Patient groups, fora, bloggers Social media Engage in constructive dialogue
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REPORTING Patients Interested lay audiences
Health professionals
Peer reviewers Editors Journalists, portals, bloggers
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Context: patient-centred?
Patient centred vs. health system/provider/researcher centred Patient input built into research Read user comments on news articles, blogs,
- nline fora
Educate the user? Educate the researcher? Learn to live with user needs, logic, and use of evidence
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