All of Us Reaching Communities Tuesday, August 13, 2019 12:00 1:00 - - PowerPoint PPT Presentation

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All of Us Reaching Communities Tuesday, August 13, 2019 12:00 1:00 - - PowerPoint PPT Presentation

Dec 19, 2023 422 likes •863 views

All of Us Reaching Communities Tuesday, August 13, 2019 12:00 1:00 PM ET Housekeeping All participants will be placed in listen-only mode for the duration of this webinar. We will take questions at the end of all presentations

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All of Us – Reaching Communities

Tuesday, August 13, 2019 12:00 – 1:00 PM ET

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Housekeeping

  • All participants will be placed in listen-only mode for the duration of this webinar.
  • We will take questions at the end of all presentations today. You may submit your

questions as we go along through the online platform using the Q&A feature at any time.

  • The webinar will be recorded and available online after today. We will also share the

slides from today's presentations as permitted by the speakers.

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Agenda

  • NACCHO overview of the All of Us Research Program and the role of local health

departments

  • Gayle Simon from Scripps Research Translational Institute – The Participant Center
  • Staci Lofton from Harris County Public Health – Engaging the Community to Advance

Equitable and Innovative Health Opportunities

  • Question and Answer segment
  • Adjourn
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NACCHO is comprised of nearly 3,000

local health departments across the

United States. Our mission is to serve as a

leader, partner, catalyst, and voice with local health departments.

There’s value in belonging

Mission

Learn more by viewing a short video available on our website.

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The All of Us Research Program

#joinallofus

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The All of Us Research Program is a historic, longitudinal effort to gather data from one million

  • r more people living in the United States to

accelerate research and improve health. By taking into account individual differences in lifestyle, socioeconomics, environment, and biology, researchers will uncover paths toward delivering precision medicine – or individualized prevention, treatment, and care – for all of us.

What is the NIH All of Us Research Program? “All of Us is among the most ambitious research efforts that our nation has undertaken!”

NIH Director Francis Collins, M.D., Ph.D.

The All of Us Research Program is part of the broader Precision Medicine Initiative.

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⦿

An opportunity to help fight disease and improve the health of future generations.

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A chance to learn about your own health, including personalized risk factors or exposures.

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The ability and choice to access your own data, including increasingly rich health records.

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An opportunity to ensure that your community is included in the studies that lead to new understanding and new treatments.

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A chance to learn about additional research

  • pportunities that may interest you.

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The choice to meet others like you, perhaps even joining some of them to propose & do research.

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What is the promise for participants?

This is a long-term relationship and the value to participants (and researchers) will grow over time.

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Over time, increased scientific evidence and improved guidelines to enable precision medicine

  • pportunities for more people and conditions:
  • Better understanding of the impact of environment and

lifestyle factors on health.

  • Increased knowledge of differences in risk factors and

response to treatments among diverse populations.

  • More information on the development of conditions that

will allow for earlier detection.

  • Deeper understanding of different conditions that may

allow for better stratification.

⦿

Innovations that may make it easier to share electronic health records with other providers and patients.

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New knowledge to help address health disparities, increase patient engagement, and understand the usefulness of consumer health devices and apps.

What is the promise for providers?

Help accelerate medical breakthroughs by sharing information about All of Us with your patients!

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All of Us Research Program

The Participant Center (TPC)

Gayle Simon, MPH 8.13.19 NACCHO Webinar

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HEALTH CARE PROVIDER ORGANIZATIONS DIRECT VOLUNTEERS

Two Ways to Enroll

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The Direct Volunteer Mission

Making it as easy as possible for interested individuals anywhere in the US to join and remain enthusiastic participants.

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Supported by a nationwide infrastructure

Spread the word Collect samples

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How do we build interest?

JoinAllofUs.org

Multi-lingual Marketing

JoinAllofUs.or

  • inAllofUs.org

Corporate Partners

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Community building and events

Mobile Engagement Asset Tours

We partner with trusted organizations to bring All of Us to the community.

Two National Mobile Tours:

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Partner with existing community events

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Visit rural areas

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Provides education

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Offers full enrollment

  • pportunities
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The Pathway to Enrollment

Physical Measurements & Biosample Surveys (3+) EHR Consent Primary Consent Register

⦿ EHR transfer ⦿ Picnic Health

⦿ Basics (demographics) ⦿ Overall Health ⦿ Lifestyle ⦿ Health Care Access & Utilization ⦿ Family Medical History ⦿ Personal Medical History
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Bring Your own Device

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Now: FitBit

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Future: more devices

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. . . and more

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What to expect at the All of Us Exam

⦿ Confirm identity (first/last

name, DOB, email address or mobile number)

⦿ Have heart rate measured ⦿ Have blood pressure

measured three times

Participants in the All of Us Program are asked to:

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⦿ Have height and weight

measured

⦿ Have waist circumference

measured

⦿ Provide a urine sample ⦿ Provide a blood sample

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DV $25 Payment Process Flow

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Delivered electronically or via SMS after the PM&B appt.

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Take about 3-5 days to arrive

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Process is still managed manually by Scripps staff

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Once process is automated we want to offer other options and welcome feedback

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DV Sites

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DV Salivary Pilot Study

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Collecting saliva does not mean never collecting blood/urine or performing physical measurements in-person.

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Allows for truly nationwide biosample collection.

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13K DV participants with no PM&B clinic within 50 miles will be invited.

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Thank you!

Questions? Email: gsimon@scripps.edu Phone: 858-784-7987

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Engaging the Community to Advance Equitable and Innovative Health Opportunities NIH’s All of Us

Staci T. Lofton, J.D., M.P.H.

Senior Policy Planner – Health Equity Harris County Public Health (HCPH) Houston, TX

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

EVERYTHING IS BIGGER IN TEXAS

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Harris County is the third most populous county with over 4.7 million people spread over 1,778 square miles.

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Ev Even Our Challenges: en Our Challenges: Mosquitoes, Mosquitoes, Obesity and Ev Obesity and Ever erything In ything In-Betw Between een

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Our Road to Health

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Our “Formula” for Success Sets Us Apart ▪ Innovation ▪ Engagement ▪ Equity

(I + E) x E = PHX

Innovation Engagement Equity

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Equity

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

All of All of Us Us: Advancing : Advancing Equity Equity

Health Equity in Harris County

1. Every individual and community has what they need – access to the goods, services, resources, and power – to be as healthy as possible; and

  • 2. nobody is denied this

possibility because of their social or economic status

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

All of Us: Advancing Equity

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

All of Us: Advancing Equity in Medicine and Science

➢Changing the narrative ➢Building and sharing power ➢Refining structures and systems

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Engagement

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

HCPH Engages Residents ▪ Where they Live ▪ Where they Learn ▪ Where they Work ▪ Where they Worship ▪ Where they Play Where Health Happens

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Enga Engagement gement at HCPH t HCPH

Reference: International Association for Public Participation

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

“Taking Public Health to the Public”

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Enga Engagement T gement Thr hrough (Social) Media

  • ugh (Social) Media
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All of Us: Engaging

  • ur Community

Festival De Mayo

May 19, 2019

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

All of Us: Engaging our Community YMCA Back to School Event

May 10, 2019

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Innovation

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Inno Innova vation tion a at t HCPH: HCPH: From A

  • m Apps

pps to T to Traps ps

Video Directly-Observed Therapy for TB “Smart” mosquito traps produce real-time Big Data from the field The HCPH mobile app – view and report real-time concerns

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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

All of Us: Innovative Medicine & Science Opportunities for Everyone

➢ Cultivate a culture of trust ➢ Promote equitable research practices ➢ Expand approaches to diversity and inclusion ➢ Utilize public health as conveners

  • f community and health systems
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HCPH Priority Public Health Issues for 2013-2018

Selected for the magnitude of the issue and our ability to make progress in Harris County

Questions/Comments? Staci.Lofton@phs.hctx.net

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Thank You!

  • For more information please visit https://allofus.nih.gov/ and https://www.naccho.org/
  • Please complete our online evaluation that will appear in a new browser window on

your computer once you have exited the webinar. We will also distribute the evaluation via email.