A Peer Researcher Perspective Sonya Ballentine Program Manager - PowerPoint PPT Presentation

Dec 08, 2022 •459 likes •639 views

A Peer Researcher Perspective Sonya Ballentine Program Manager Twitter Handle: @chgoair September 19, 2019 Sonya Ballentine Currently co-I on PCORI Eugene Washington Award 2 Mission To prepare patients and community stakeholders in

A Peer Researcher Perspective Sonya Ballentine Program Manager Twitter Handle: @chgoair September 19, 2019
Sonya Ballentine • Currently co-I on PCORI Eugene Washington Award 2
Mission • To prepare patients and community stakeholders in leading research projects and guiding research efforts that will improve individuals’ quality of life and healthcare decisions. 3
Purpose • Underrepresented individuals should be involved in research to help reduce unfair barriers. • That is where community-based participatory research (CBPR) comes in with an added enhancement for patient researchers 4
Inspiring Change 5
Inspiring Change Curriculum • Chapter 1: Getting Started • Chapter 2: Introduction to CBPR • Chapter 3: Working Together • Chapters 4-6: Understanding a Problem, Testing a Solution, Designing a Solution • Chapter 7: Research Ethics • Chapter 8: Collecting Data • Chapter 9: Sustainability • Chapter 10: Understanding Results • Chapter 11: Sharing Results and Taking Action 6
Inspiring Change Model 7
Working Together 8
Engaging the Team 9
Reasonable Accommodations Reasonable accommodation for disability, religion or other special circumstances • Adjustments to allow maximum participation (based on individual needs) • Examples • Breaks • Meeting room locations • Written materials in alternate form • Private meetings to go over material 10
Dual Relationships When team members have a personal or different professional relationship outside the research team 11
Leadership Advisory Board 12
Patient Research Leader • Project Management • Meeting Facilitation • Liaison between team, organization and/or agency • Research Recruitment • Data Collection 13
Learn More • www.pcori.org • info@pcori.org • #PCORI2019 • Chicago Health Disparities Center 14
Questions? 15
Thank You! Sonya Ballentine Peer Researcher @chgoair September 19, 2019 16

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