A Peer Researcher Perspective Sonya Ballentine Program Manager - - PowerPoint PPT Presentation

A Peer Researcher Perspective

Sonya Ballentine

Program Manager Twitter Handle: @chgoair September 19, 2019

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Sonya Ballentine

• Currently co-I on PCORI Eugene Washington Award

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Mission

• To prepare patients and community stakeholders in leading

research projects and guiding research efforts that will improve individuals’ quality of life and healthcare decisions.

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Purpose

• Underrepresented individuals should be involved in research to

help reduce unfair barriers.

• That is where community-based participatory research (CBPR)

comes in with an added enhancement for patient researchers

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Inspiring Change

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Inspiring Change Curriculum

• Chapter 1: Getting Started
• Chapter 2: Introduction to CBPR
• Chapter 3: Working Together
• Chapters 4-6: Understanding a Problem, Testing a Solution, Designing a

Solution

• Chapter 7: Research Ethics
• Chapter 8: Collecting Data
• Chapter 9: Sustainability
• Chapter 10: Understanding Results
• Chapter 11: Sharing Results and Taking Action

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Inspiring Change Model

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Working Together

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Engaging the Team

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Reasonable Accommodations

Reasonable accommodation for disability, religion or other special circumstances

• Adjustments to allow maximum

participation (based on individual needs)

• Examples
• Breaks
• Meeting room locations
• Written materials in alternate form
• Private meetings to go over material

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Dual Relationships

When team members have a personal or different professional relationship

• utside the research team

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Leadership Advisory Board

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Patient Research Leader

• Project Management
• Meeting Facilitation
• Liaison between team, organization and/or agency
• Research Recruitment
• Data Collection

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Learn More

• www.pcori.org
• info@pcori.org
• #PCORI2019
• Chicago Health Disparities Center

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Questions?

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Thank You!

Sonya Ballentine

Peer Researcher @chgoair September 19, 2019