A"Pan&Canadian"ini*a*ve"in " - - PowerPoint PPT Presentation

A"Pan&Canadian"ini*a*ve"in " cancer"survivorship"

! Margaret!Fitch! Chair!–!Cancer!Journey! !

!

Canadian"Partnership"Against"Cancer"

! We!are!a!partnership!of!cancer!experts,!charitable!organiza<ons,!

governments,!pa<ents!and!survivors,!determined!to!bring!change!to!the! cancer!control!domain.!!!

! !

! We!work!together!to!s<mulate!genera<on!of!new!knowledge!and!

accelerate!the!implementa<on!of!exis<ng!knowledge!about!cancer!across! Canada.!

Cancer"Journey"Mandate"

• To!provide!leadership!

to!change!the!focus!of! cancer!care!so!that! pa<ents,!survivors! and!families!needs!are! beDer!served.!

Ul*mate"Aim"

"!quality!of!life!for! those!living!with!and!! aFer!being!diagnosed! with!cancer!

!

#!burden!of!suffering! throughout!cancer! experience!

Vision"for"Cancer"Care"

• A"comprehensive,"

coordinated,"person2 focused"cancer"system" that"responds"to"the" full"range"of"needs"of" all"Canadians"and"their" families"through"all" stages"of"the"cancer" experience."

Cancer"Journey"Leadership"

Vision of person-centered care

Improving the person’s experience throughout the cancer journey Screening for Distress (6th Vital Sign) & Navigation (professional, peer, on- line) Survivorship

• models
• care plans
• return to work

Standards/Guidelines/Indicators Education Palliative Care Understanding/Knowledge

• patient, family, survivor needs
• interventions for care
• best practices

Programma*c"strategies"" across"the"cancer"journey""

• Screening!for!Distress!(6th!vital!sign)!

– Implementa<on!in!9!jurisdic<ons! – Development!of!implementa<on!guides! – Development!of!tools!for!others!to!use!

• Cancer!Pa<ent!Naviga<on!

– Development!of!concepts/defini<ons! – Implementa<on!in!6!jurisdic<ons! – Development!of!implementa<on!guide!!

Resources"to"support"implementa*on"

• EvidenceUbased!prac<ce!guidelines!and!

algorithms!–!symptom!management!

• Educa<onal!modules!(onUline)!

– Screening!for!distress! – Sexuality! – Pallia<ve!care!

Survivorship"(post"ac*ve"treatment)"

• Environmental!scan/na<onal!workshop!(2008)!
• Priori<es!(not!rank!ordered)!

– Establish!na<onal!standards!and!guidelines!for! survivorship!care! – Iden<fying!appropriate!models!of!care!delivery!to!meet! the!longUterm!needs!of!survivors! – Development!and!implemen<ng!survivorship!care!plans! – Promo<ng!survivorship!research! – Ensuring!effec<ve!knowledge!transla<on! – Facilita<ng!a!comprehensive!communica<ons!plan! – Promo<ng!a!consor<um!of!na<onal!cancer!advocacy! groups!

Standards"and"Guidelines""

• New!Guidelines!for!Psychosocial!Assessment!

and!Care!of!Cancer!Pa<ents!across!the!cancer! trajectory!(includes!survivors)!–!posted!on! CAPO!webUsite!

• Standards!for!FollowUup!Care!of!Cancer!

Survivors!(development!by!panUCanadian!task! group)!–!posted!on!CPAC!webUsite!

Models"of"Care"Delivery"

• Cancer!Transi<ons!

– Partnership!with!Wellness!Community!(USA)! – Pilot!to!test!applicability!in!Canada!and!iden<fy!need!for!adapta<on! – Train!the!Trainer!Workshops!(2)/!programs!offered!locally! – Report!on!BCCA!webUsite! !

• Numerous!Discussions!in!Cancer!Care!Agencies!

across!the!country!

– FollowUup!cancer!care!challenges!(growing!numbers,!expecta<ons)! – Ques<ons!about!appropriate!role!of!cancer!agencies!in!survivorship! care! – Concerns!about!exper<se!available!for!long!term!survivorship!care! – Need!for!integra<on!with!primary!care!

Survivorship"Care"Plans"

• Implemented!four!approaches!to!sustainable!

programs!to!u<lize!survivorship!care!plans!and! understand!barriers!to!implementa<on!in!the! Canadian!health!care!environment!

• Inten<onal!selec<on!of!different!types!of!
• rganiza<ons!as!leaders!

– Community!agency! – Cancer!care!agency! – Na<onal!survivor!organiza<on! – Coali<on!of!cancer!agency!and!survivors!organiza<ons!

On&line"Support"

• Design/tes<ng!of!synchronous!onUline!support!

for!cancer!pa<ents,!survivors,!and!caregivers! facilitated!by!professional!prac<<oners!

• Cancer!Chat!Canada!

Communica*on"plan"and"na*onal" advocacy"groups"

• Survivorship!conferences!in!several!

provinces…!

Survivorship"Research"

• Several!na<onal!workshops!held!to!explore!priori<es!

for!survivorship!research!

• Survey!of!Research!Investments!in!Canada!(2012)!

– !8.1%!!!($30.1!million)!in!2005!

– !10.2%!($55.9!million)!in!2009!

• Several!na<onal!agencies!incorporated!survivorship!

into!their!funding!priori<es!

• Forma<on!of!a!consor<um!for!survivorship!research!

is!well!underway!(e.g.,!networking,!holding!webU based!educa<on,!collabora<ons!for!research! proposals!emerging)!!!!

Return"to"Work"

• Environmental!scan!of!programs!and!

resources!to!facilitate!RTW!for!people!with! cancer!and!other!chronic!diseases!

• Literature!review!and!consulta<on!about!RTW!

concerns!faced!by!people!with!cancer!and! caregivers!

• Workplace!support!for!people!with!cancer:!

perspec<ves!of!employers,!insurers,!unions!

Future"Direc*ons"

• Understanding!more!about!needs!of!survivors!
• Increasing!awareness!on!the!part!of!health!

care!providers!as!well!as!the!general!public!

• Increasing!focus!on!self!care!management!and!

rehabilita<on!

• Promo<ng!research!regarding!survivorship!

care/interven<ons/health!services!

! Ques<ons? !

! www.partnershipagainstcancer.ca " www.partenariatcontrelecancer.ca " "

"