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1 3 6 th leading cause of death across Alzheimer's all ages Disease 68% 5 th leading cause of death for those Change in the # of Deaths: 68% aged 65 and Between 2000 and 2010 older Only cause of death among the top

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  3. • 6 th leading cause of death across Alzheimer's all ages Disease 68% • 5 th leading cause of death for those • Change in the # of Deaths: 68% aged 65 and • Between 2000 and 2010 older • Only cause of death among the top 10 in America without a way to Breast Cancer prevent, cure or -2% Prostate Cancer Heart Disease even slow its -8% -16% Stroke progression. -23% HIV -42% Based on preliminary 2010 4

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  5. Key strategies : 1. Prevent and effectively treat Alzheimer’s disease by 2025. 2. Optimize care quality and efficiency. 3. Expand supports for people with Alzheimer’s disease and their families. 4. Enhance public awareness and engagement. 5. Track progress and drive improvement. 6

  6. The Need for Medical and Long-term Services and Supports

  7. • – – – • • – Average lifespan post – DX=8 years – – – • • 8 8

  8. • • – – • – – 9 9

  9. Dementia Capable Communities * Adapted from “ Dementia-capable States and Communities: the Basics”

  10. Given the impact of dementia on people and communities, service systems that wish to be dementia-capable should consider adopting key aspects of a model proposed by U.S. Administration for Community Living/Administration on Aging: 11

  11. • Risk factors • Signs of cognitive problems • Symptom management • Support programs • Research opportunities • • The Public Health Road Map for State and National Partnerships, 2013 – 2018 12

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  13. • improves access to medical and support services • provides an opportunity to make legal, financial and care plans while the affected individual is still capable • may reduce health care costs by delaying placement in a nursing home 14

  14. A first-of-its-kind, free, confidential, online and phone-based tool that provides comprehensive clinical trial information and an individualized study matching service. www.alz.org/trialmatch

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  16. • – – – – 17

  17. • • • Words from a caregiver: “ Success means that you have found a way to be happy within the confines of this disease.” 18

  18. • Minimum federal requirements for 75 hours inadequate for new CNAs in NHs as resident acuity increases (OIG Nurse Aide Training Report, 2002). • US federal requirements for CNA initial training much lower than in several countries: – 16-22 months for health service helpers/assistants in Denmark – 2-3 years for care-workers in the Netherlands (Fujisawa & Colombo, 2009) Evidence supports additional training • Increases job satisfaction (Castle, 2010) • Reduces turnover (Noel et al., 2000) • Promotes improved care for residents (Horn et al., 2010; Zheng & Temkin-Greener, 2010). 19

  19. This concept goes beyond developing dementia-capable health and long-term services and supports. Dementia friendly communities involve improved customer service at participating agencies and businesses, supportive faith or spiritual communities, emergency services that understand dementia, and suitable transportation and public spaces. e.g. ACT on Alzheimer’s , which involves more than 50 partners 20

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  21. Thank You! alz.org 22

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