SLIDE 1 TRIUMPH THROUGH THE CHALLENGES OF FETAL ALCOHOL SPECTRUM DISORDER
Ohio FASD Website: www.notasingledrop.org
Kathy Be Beva vaque, M M.Ed
& D.S. w/LCB CBDD kbevaque@murrayridgecenter.org Lor
in C Cou
Boa
evelo lopmental Dis isabil ilit itie ies 440-284-3655 www.murrayridgecenter.org
SLIDE 2 PLAY BALL!!!
Activity 1
SLIDE 3
DEFINITIONS
Fetal Alcohol Syndrome (FAS) Partial Fetal Alcohol (PFA) Alcohol-Related Neurodevelopmental Disorder (ARND) Alcohol-Related Birth Defects (ARBD) Fetal Alcohol Spectrum Disorder (FASD)
SLIDE 4 FAS FACIAL FEATURES
small head circumference thin upper lip smaller eye openings under eye folds flat mid-face short, upturned nose small chin flat, elongated philtrum (grooves above lip) simply formed, low set ears
SLIDE 5
ARND FACIAL FEATURES
Discriminating Features: None
SLIDE 6
ON ANY GIVEN DAY IN THE UNITED STATES, 11,012 BABIES ARE BORN
Of these, babies born with…
Spina Bifida 2 Muscular Dystrophy 3 Down Syndrome 13 Fetal Alcohol Syndrome 14 Alcohol-related neurodevelopmental disorder 42
SLIDE 7 HOW MUCH IS SAFE?
There is no known safe amount of alcohol consumption at any time during pregnancy.
#2: OK to drink
#3: What has greatest am’t
#4: What am’t is safe?
SLIDE 8
BRAIN COMPARISON
SLIDE 9 BRAIN DAMAGE IN FASD
BRAIN DAMAGE IS PERMANENT = STATIC ENCEPHALOPATHY
This means that the damage to the brain is “static” or unchanging – it will get no better or no worse.
SLIDE 10
PRIMARY DISABILITIES
Central nervous system dysfunction; brain damage
Memory impairment Fine motor problems Poor judgment Learning disabilities Impaired motor development (balance and coordination) Developmental delays, e.g. speech and language Impulsivity, distractibility, disorganization
SLIDE 11
PRIMARY DISABILITIES
Physical anomalies
Eye and ear defects Respiratory problems Heart murmur Limb reduction Hutchinson’s teeth
SLIDE 12
SECONDARY DISABILITIES
Primary Disabilities – those a child is born with, e.g. poor judgment, impulsivity
Secondary Disabilities – those that result from the primary disabilities, e.g. trouble with the law results from poor judgment and impulsivity.
SLIDE 13 SECONDARY DISABILITIES
alcohol and drug problems problems with employment dependent
living
inappropriate
sexual behavior trouble
with
the law
disrupted school experience mental health problems
Streissguth, AP, Barr, HM; Kogan, J, Bookstein, FL (1996)
confinement
SLIDE 14 8 MAGIC KEYS
CONCRETE CONSISTENCY REPETITION ROUTINE SIMPLICITY SPECIFIC STRUCTURE SUPERVISION
Evenson, D. & Lutke, J. (1997) Eight magic keys: developing successful interventions for students with fas. Fasalaska Project FACTS. www.fasalaska.com.
SLIDE 15 DEFINITIONS
CHRONOLOGICAL A AGE – CHRONOS (GREEK) = TIME CALENDAR TIME SINCE ONE WAS BORN DEVELOPMEN MENTAL AL A AGE E – STAGE OF FUNCTIONAL GROWTH A PERSON HAS REACHED COMPARED TO WHEN MOST OTHER PEOPLE REACH THAT STAGE.
SLIDE 16 CHRONOLOGICAL AGE
VS.
DEVELOPMENTAL AGE
Example: Sheila is five years old. She cannot print or count objects. She is just learning to make marks with a pencil, keep her balance when running, and climb.
Chronological age = Developmental age = 5 2
SLIDE 17
DEVELOPMENT OF CHILDREN WITH FAS/ARND
Communication 11 years 0 months Daily living skills 12 years 9 months Socialization 7 years 5 months
Jerome is 17 years old, however, on the Vineland he scored:
SLIDE 18
WORKING WITHIN A SCENARIO
SLIDE 19
HOW CAN A CASA/GAL HELP?
SLIDE 20 TRIUMPH THROUGH THE CHALLENGES OF FETAL ALCOHOL SPECTRUM DISORDER Ohio FASD Website: www.notasingledrop.org
Kathy Bevaque, M.Ed. & D.S. w/ LCBDD
kbevaque@murrayridgecenter.org
Lorain County Board of Developmental Disabilities 440-284-3655 www.murrayridgecenter.org
