The UK perspective on health research prioritisation Matt - - PowerPoint PPT Presentation

the uk perspective on health research prioritisation
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The UK perspective on health research prioritisation Matt - - PowerPoint PPT Presentation

The UK perspective on health research prioritisation Matt Westmore, NIHR Evaluation, Trials and Studies Coordinating Centre @matt_westmore matthew.westmore@nihr.ac.uk What is priority setting? @matt_westmore matthew.westmore@nihr.ac.uk


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Evaluation, Trials and Studies Coordinating Centre

The UK perspective on health research prioritisation

Matt Westmore, NIHR

@matt_westmore matthew.westmore@nihr.ac.uk

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What is priority setting?

@matt_westmore matthew.westmore@nihr.ac.uk

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects @matt_westmore matthew.westmore@nihr.ac.uk

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Why you should NOT set priorities?

@matt_westmore matthew.westmore@nihr.ac.uk

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Is dying of cancer worse than dying of cystic fibrosis?

@matt_westmore matthew.westmore@nihr.ac.uk

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How quickly the research community will react Money available

@matt_westmore matthew.westmore@nihr.ac.uk

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Why you should set priorities?

@matt_westmore matthew.westmore@nihr.ac.uk

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Health related research matters

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Sir Iain Chalmers and Paul Glasziou

‘Avoidable waste in the production and reporting of research evidence’, The Lancet, Volume 374, Issue 9683, Pages 86 - 89, 4 July 2009,

85% of Health Research

Funding is wasted avoidably

@matt_westmore matthew.westmore@nihr.ac.uk

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Principle 1: Health-related research agendas and priorities should be set with the meaningful involvement of those who will use and be affected by health-related research. www.ensuringvalueinresearch.org

@matt_westmore matthew.westmore@nihr.ac.uk

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How to set priorities

@matt_westmore matthew.westmore@nihr.ac.uk

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@matt_westmore matthew.westmore@nihr.ac.uk

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@matt_westmore matthew.westmore@nihr.ac.uk

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects

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https://www.rand.org/pubs/research_reports/RR2147.html

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects

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https://www.nihr.ac.uk/funding-and-support/themed-calls/

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects

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Beyond the

  • bvious?

@matt_westmore matthew.westmore@nihr.ac.uk

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The (possible) future

@matt_westmore matthew.westmore@nihr.ac.uk

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Health research platform

Research users Funders Patients and public Health Researchers Database providers and data experts Regulators Tool developers and providers

Jordan’s story (Distant future)

@matt_westmore matthew.westmore@nihr.ac.uk

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Thank you

@matt_westmore matthew.westmore@nihr.ac.uk

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Spare slides

@matt_westmore matthew.westmore@nihr.ac.uk

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Sir Iain Chalmers and Paul Glasziou

‘Avoidable waste in the production and reporting of research evidence’, The Lancet, Volume 374, Issue 9683, Pages 86 - 89, 4 July 2009,

85% of Health Research

Funding is wasted avoidably

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Adding Value in Research framework

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Th Themed Calls alls

Priority themes specified and boards determine importance of research led proposals to NHS, scientific quality feasibility and value for money.

  • Multiple Morbidities (2015)
  • Long Term Conditions in Children and Young people (2014)
  • Antimicrobial Resistance (2013)
  • Primary Care Interventions (2013)
  • Applied Health Research in Surgery (2012)
  • Applied Health Research in Dementia (2011)
  • Pandemic Flu2 (2011)
  • Obesity (2009) & Pandemic Flu (2009)
  • Diagnostic tests and test technologies (2009)
  • Emergency Medicine, Pre-hospital Care and Trauma (2008)
  • Health Care Associated Infection (2007)
  • Medicines for Children (2005)
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NIHR Health Technology Assessment Programme

Health Technology Assessment in the UK, Raftery J, Powell J, The Lancet Volume 382, No. 9900, p1278–1285, 12 October 2013
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Pa Pane nel criteria for asse ssessi ssing ng impo portanc nce

  • What are the benefits from in terms of reduced uncertainty?

(e.g. outcomes for patients and carers, costs effectiveness to the NHS)

  • How long before benefits could be realised? Bearing in mind

the time needed to perform the technology assessment and to bring about change in practice

  • Would the assessment offer value for money
  • How important is early assessment?
  • Other factors which might have a bearing on importance (e.g

national priorities and policy considerations, prevalence of the disease/conditions, social/ethical considerations)

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Identification of potential topics (priorities)

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Adding Value in Research framework

Lau 1992 (i.v. streptokinase)

Support the Evidence Based Research Network www.ebrnetwork.org

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Evaluation, Trials and Studies Coordinating Centre Completed Partnerships Asthma Urinary incontinence Vitiligo Prostate cancer Schizophrenia Type 1 diabetes ENT aspects of balance Life after stroke Eczema Tinnitus Cleft lip and palate Lyme disease Pressure ulcers Sight loss and vision Dementia Dialysis Multiple sclerosis Hidradenitis suppurativa Acne Pre-term birth Childhood disability

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Evaluation, Trials and Studies Coordinating Centre Current Partnerships Anaesthesia Depression Hip and knee replacement for osteoarthritis Inflammatory bowel disease Intensive care Late stillbirth Mesothelioma Neuro-oncology Palliative and end of life care Parkinson’s disease Spinal cord injury Common Shoulder problems Alopecia Renal Transplantation Surgical Treatment for Early Hip and Knee Osteoarthritis Endometrial Cancer Teenage and Young Adult cancer Mild to moderate hearing loss Alcohol related liver disease Non alcohol related liver and gall bladder diseases Cavernoma

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Priority setting

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UK Health Research Analysis 2009/10 – UK Clinical Research Collaboration 2012

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects

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Organisation and programme remits Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls

Research community specify the research question Funder specifies the research question Long term priority => Portfolio of studies Short term priority => Small number of projects

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2 4 6 8 10 12 14

Identifying appropriate people Determining sufficient input Differences in terminology Resource limitations Research culture Ensuring meaningful engagement Coalescing competing views

“This issue has been a challenge for my organization”

Agree Neutral Disagree @matt_westmore matthew.westmore@nihr.ac.uk

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Tallon, D. et al. (2000) ‘Relation between agendas of the research community and the research consumer’, The Lancet, Vol. 355. pp. 2037-40

@matt_westmore matthew.westmore@nihr.ac.uk

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@matt_westmore matthew.westmore@nihr.ac.uk

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Working with National bodies

@matt_westmore matthew.westmore@nihr.ac.uk