The Emotional Ride OF THE TRANSPLANT PROCESS Jody L Jones, PhD - - PowerPoint PPT Presentation

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The Emotional Ride OF THE TRANSPLANT PROCESS Jody L Jones, PhD - - PowerPoint PPT Presentation

Feb 21, 2024 96 likes •633 views

The Emotional Ride OF THE TRANSPLANT PROCESS Jody L Jones, PhD Licensed Clinical Psychologist University of Iowa Organ Transplant Center TOPICS ITS A MARATHON NOT A SPRINT. FEAR: WHAT WILL HAPPEN? THE GOAL

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The Emotional Ride

OF THE TRANSPLANT PROCESS

Jody L Jones, PhD Licensed Clinical Psychologist University of Iowa Organ Transplant Center

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TOPICS

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IT’S A MARATHON…

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… NOT A SPRINT.

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FEAR: WHAT WILL HAPPEN?

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THE GOAL IS TRANSPLANTATION

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BE HONEST

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THE WAITING BEGINS

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THIS CAN TAKE A WHILE…

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THINGS YOU NEED TO KNOW

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THE EVALUATION

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CAREGIVERS

➢You have an extra set of eyes and ears to help you remember everything you are being told. (It helps if your support person brings a notebook and pen to take notes.) ➢The team can confirm with this person that they are available to assist you before and after the surgery. ➢This person can often help provide information the team needs, but that you can’t necessarily remember yourself.

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HEALTH INFORMATION YOU SHOULD BRING

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THE DAY OR (DAYS) OF EVALUATION

  • ▪ Surgeon

▪ Nephrologist (transplant kidney doctor) ▪ Social worker ▪ Financial counselor ▪ Pharmacist ▪ Dietitian

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LABS

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NURSE COORDINATOR

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TEAM MEETING

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WHAT THE TEAM NEEDS TO GET YOU LISTED

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EMOTIONAL STABILITY

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EMOTIONAL STABILITY, cont.

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DEFERRAL

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REASONS FOR DEFERRAL

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NOT LISTED YET!

  • Make a checklist or use your deferral letter to

keep track of what you need to do. Check off items as you complete them.

  • Stay in touch with your coordinator. Call or

email to make sure test results are being sent to the transplant center.

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MAKE A CHECKLIST

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RESPONSIBILITY

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YOU HAVE CONTROL!

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ASK FOR HELP

  • Call the coordinator and explain that you are not

sure exactly what is expected of you.

  • Ask a family member or a friend to look at your

letter with you, and help you make a checklist.

  • Write down the steps you need to follow to

complete everything on your list.

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IDEAS TO TRY

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MORE IDEAS TO TRY

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MORE ON THE CALENDAR

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An example of how your calendar might look

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CLIMB THAT LADDER ONE RUNG AT A TIME

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GETTING LISTED

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HURRY UP…AND WAIT!

  • You need to keep going to dialysis and your doctors’

appointments.

  • You need to make sure you have reliable transportation

and a way the team can contact you. This means keep your phone in working order.

  • If you change your phone number, or your address, or

you get divorced, or you change dialysis centers, or experience any other major life changes, CALL YOUR COORDINATOR.

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WAITING…

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ONE STEP AT A TIME

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WHILE ON THE WAITING LIST…

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WHILE ON THE WAITING LIST… cont.

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Hello Kidney

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THE CALL

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THE SURGERY

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DRINK YOUR WATER!!

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AFTER THE TRANSPLANT

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A BIG CHANGE

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THINGS TO REMEMBER

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LIVE IN THE MOMENT

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STAY CONNECTED

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THINK OF THINGS THAT MAKE YOU SMILE…

Finnegan

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Shandy

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Pippa

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HAPPY KIDNEY!

Thank you!