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Presentation by Stella Huyshe-Shires LDA Conference 2011 Meeting with the Minister, Anne Milton MP Accepted to work with the James Lind Alliance Stella Huyshe-Shires


  1. Presentation by Stella Huyshe-Shires LDA Conference 2011 �������� Meeting with the Minister, Anne Milton MP Accepted to work with the James Lind Alliance Stella Huyshe-Shires ������������ ������ You, LDA, Your MP The Minister You, LDA, Your MP The Minister’s staff The Department of Health The Department of Health Infectious Diseases Infectious Diseases ������� ����������� The Department/HPA says there are no unanswered questions about Lyme disease: they know how to diagnose they know how to treat. We have to show them their mistake. They won’t believe us; it must come from doctors 1

  2. Presentation by Stella Huyshe-Shires LDA Conference 2011 �������������������� Patients Clinicians James Lind Alliance �� Priority Setting Partnership Aim is to find and document ���������������������������� the unanswered questions ����������� ����!���������!������� about Lyme disease "����!�����!���������������������������!�# �������������� $���!���% London Edinburgh Aberdeen London Scotland GPs 3 4 5 Mailshot to Mailshot to Other Clinicians 5 3 1 LDA, JLA, patients, 15 1 1 • 22 GPs • 3 GPs carers • 67 other clinicians • 17 other clinicians • 6 PCTs, 1 of which • 7 Health Boards Total new audience: 0 5 6 actively promoted to which all actively GPs promoted to GPs London: all clinicians known to LDA Scotland: all clinicians new to LDA ���������&���' -��.'�!�������' ����� ��������������������'������������!����������������������� ���'������� British Infection Association: �������(������)���� Position Paper on Lyme Disease �������������*������)���� �� �����!����)�&����������� "���������������)�&��+�������� Following LDA remonstrance, the BIA �����$�����)������!��������,� ������ President asked LDA for written comment You can see the problem – no consultant! 2

  3. Presentation by Stella Huyshe-Shires LDA Conference 2011 ���������&���' 0���!������������� �������� ���,���!��������������!������������������������������' 1 �������������'���!�����������������!����!���� 1 2�������,���!�������!���������!������������!����������� �������(������)���� 1 ������� �����������!��� �������������*������)���� 1 334�'��'������������ ��!���������� �� �����!����)�&����������� 1 567�����'�������!����!����!���� "���������������)�&��+�������� 1 �����'�����������������������������������!�������!������ �����$�����)������!��������,� ������ �����������������!� ���������/�����)�,��"������������ ��'��� Huge strides are being made 3

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