NATIONAL SOCIETIES MEETING NATIONAL PROJECT UPDATE OCTOBER 10-11 - - PowerPoint PPT Presentation

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NATIONAL SOCIETIES MEETING NATIONAL PROJECT UPDATE OCTOBER 10-11 - - PowerPoint PPT Presentation

Mar 21, 2024 42 likes •92 views

NATIONAL SOCIETIES MEETING NATIONAL PROJECT UPDATE OCTOBER 10-11 2015, INNSBRUCK, AUSTRIA RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS Russian Dialysis Soc ie ty joine d with Sc ie ntific Soc ie ty of Russian

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SLIDE 1

NATIONAL SOCIETIES’ MEETING NATIONAL PROJECT UPDATE OCTOBER 10-11 2015, INNSBRUCK, AUSTRIA

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SLIDE 2

RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS

  • Russian Dialysis Soc ie ty joine d with Sc ie ntific Soc ie ty of

Russian Ne phr

  • logists and Russian Assoc iation of

Rhe umatologists

  • Aim of the pr
  • je c t: to c re a te a da ta b a se a nd c o lle c t

info rma tio n a b o ut pa tie nts with ANCA-a sso c ia te d va sc ulitis thro ug ho ut Russia n F e de ra tio n, to e va lua te inc ide nc e , c linic a l pre se nta tio n, tre a tme nt mo da litie s a nd o utc o me s, a nd pub lish da ta in Na tio na l a nd I nte rna tio na l pe e r-re vie we d jo urna ls

  • Star

t date : Ja nua ry 2015

  • …

L . K nya ze va L . K

  • zlo vska ya
  • G. L

ukina

  • N. Mukhin
  • R. Mukhina

E . Na so no v

  • A. Andruse v

T . Be ke to va L . Birjuko va S.Bo ro vo y F . Dmitrie va

  • A. E

lo na ko v

  • P. No viko v
  • N. Ple sha ko va
  • V. So ro tska ya
  • N. T
  • milina

L . Va lishina E . Za kha ro va

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SLIDE 3

RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS

  • K

a za n Re g io na l Clinic a l Ho spita l

  • K

ursk Re g io na l Ho spita l

  • Mo sc o w City ne phro lo g y Ce ntre
  • Mo sc o w City Ho spita l n.a . S.P. Bo tkin
  • 1-st Mo sc o w Me dic a l Sta te Unive rsity n.a . I

.M. Se c he no v

  • Mo sc o w Re g io na l Re se a rc h Clinic a l I

nstitute n.a . M.F . Vla dimirsky

  • Re se a rc h I

nstitute o f Rhe uma to lo g y n.a . V.A. Na so no va

  • St-Pe te rsb urg Re g io na l Clinic a l Ho spita l
  • T

ula Re g io na l Clinic a l Ho spita l

  • Ufa Re g io na l Clinic a l Ho spita l
  • Vo ro ne g j Re g io na l Clinic a l Ho spita l
  • Ya ro sla vl City Ho spita l
  • a nd o the r re g io na l Ce nte rs…
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SLIDE 4

RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS

  • Re g istry wa s c re a te d a nd is susta ine d b y re g ula rly

upda te d da ta b a se

  • Spe c ific a lly de sig ne d c ha rt, c o nta ining info rma tio n

a b o ut ma in dia g no sis, c linic a l pre se nta tio n, c o urse

  • f the dise a se , se ro lo g y, pa tho lo g y, tre a tme nts, VDI

a nd BVAS sc o ring b e fo re tre a tme nt a nd 3, 6 a nd 12 mo nths a fte r initia l tre a tme nt, c o mplic a tio ns a nd

  • utc o me s will b e use d
  • Ana lysis a nd pub lic a tio ns o f Re g istry da ta will b e

pe rfo rme d a nnua lly b y the g ro up o f e xpe rts unde r the a e g is o f thre e pa rtic ipa ting Na tio na l So c ie tie s

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SLIDE 5

RUSSIAN NATIONAL REGISTRY OF PATIENTS WITH ANCA-ASSOCIATED VASCULITIS

  • Curre ntly 3 c e nte rs (a ll fro m Mo sc o w)

a lre a dy pa rtic ipa te in the Re g istry

  • T
  • ta l numb e r o f pa tie nts, inc lude d into

the re g istry – 104

  • Ab o ut 80 pa tie nts a re e xpe c te d to b e

inc lude d to the e nd o f 2015