My Journey I took 18 months to conceive my first child Had - - PowerPoint PPT Presentation

My Journey

I took 18 months to conceive my first child Had Gestational Diabetes No continuity of care Only saw my consultant once Told not to worry about stillbirth risks

Aidan

Aidan James Eldridge was stillborn weighing 5lb 4oz His death is marked as unexplained on the post-mortem Was told his death was ‘just one of those things’ Later realised Aidan was growth restricted Was promised better care in a future pregnancy Never get over the shock and devastation of loosing a child

Aidan’s Ted

If only...

I had been told to monitor Aidan's movements. I may have noticed a

reduction and been assessed

My trust had been running the GAP programme. A customised growth

chart may have detected Aidan's lack of growth

I had been empowered with information and thought to call my midwife

to report a sharp pain I had felt two days prior to his death Hold those thoughts!

My Journey Cont....

• Miscarried at 9 weeks
• Received specialist dietry advice & prescribed Metformin
• Tobiah Lysanias arrived safely in 2010
• In 2012 I suffered an ectopic pregnancy
• Tilly May arrived safely in 2013 – spent the week in NICU
• The end of my pregnancy journey!

Tobiah & Tilly

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Stillbirth & Neonatal Deaths

The UK has one of the worst stillbirth rates in the

whole of the developed world

Over 5700 babies die in the UK every year, that's 100

every week

The majority of stillbirths are preventable By breaking the stigma that nothing can be done,

discussing complications with mothers and supporting midwives, these shocking statistics could be halved

Stillbirth In the News

Jeremy Hunt's pledge to halve stillbirths by 2030, November 2015 RCOG's Each Baby Counts, 2015 MBRRACE Report, November 2015 The Lancet Report, January 2016 National Maternity Review, February 2016 NHS Saving Babies Lives Care Bundle, March 2016

MBRRACE

• Testing for GDM was not performed in about 2/3 of women
• with risk factors – screening may have prevented the stillbirth.
• In 2/3 of stillbirths – guidance for moitoring growth was not followed.
• Included failure to perform SFH or plot measurements, failure to respond
• to abnormal measurements and failure to arrange serial assessment of
• growth with other risk factors.
• Half of reported RFM – missed opportunities to prevent stillbirth.
• ¾ stillbirths – no local reviews & ones that were carried out were of
• poor quality
• Lessons not learnt and same mistakes occuring.

MBRRACE

• Thorough investigations of baby deaths are key to learning any potential lessons

to prevent similar tragedies

• SCORE by The Perinatal Institute. Sands Perinatal Mortality Tool coming soon
• Over half of baby deaths being classed as unknown
• ELHT found only 17% of stillbirths should have been classed as unexplained

rather than 49% stated on certificates

• Extensive guide for using CODAC on MBRRACE system
• Your trusts statistics can be accessed via the MBRRACE website incl.

comparables

• Every trust should strive to reduce stillbirth no matter how well they
• are performing as EVERY BABY MATTERS

Back to basics

• Do your colleagues know how many babies die in the UK?
• Does your trust believe nothing can be done?
• What is on your risk register?
• - Can you be part of the solution?
• How many stillbirths did your trust have last year?
• Could any have been avoided?
• What investigations took place?
• What were the outcomes?
• What changes were made?

Innovations

Taunton and Somerset reducing stillbirths by:

• Placing cigarette stickers on GROW charts
• Celebrate 100 days without a stillbirth
• Communicate baby deaths with whole team
• Childs voice activated outside maternity unit

Visit our Innovations page for more details

Our Charity

Aims to help babies arrive safely by:

Empowering parents with vital knowledge and education on health in

pregnancy and when to call their maternity team for advice

Supporting healthcare professionals by keeping them up to date with

the latest practices, guidelines and research to provide consistent maternity care including stillbirth prevention presentations

Raising awareness of baby loss and the UK's statistics

Our Partners

lOur website is accredited by Royal College of Midwives (RCM)

We work in partnership with NHS England, Department of Health (DH)

and are members of the International Stillbirth Alliance

We are working with the London Ambulance Service on exemplar resources

for paramedics and community/independent midwives which may be rolled out across the country

Collaborating with RCM on a training module for midwives Stakeholders within DH safer pregnancy messaging and NHS

Saving Babies Lives care bundle

Our website – for midwives

Skill refreshers - training video on accurately measuring SFH Current research and guidelines Study days Midwifery news Join our mailing list

• Positive about pregnancy
• Essential information – no gimmicks
• When to call the midwife
• Babies movements
• Antenatal notes explained
• Awareness on conditions such as diabetes
• Health information such as smoking
• Delayed cord clamping
• Postnatal Depression
• Breastfeeding

Our website – for mums

The steady increase in number of Trusts which have implemented GAP has been mirrored by a year on year drop in ONS stillbirth rates in England

GAP

Made to Measure Campaign

By the end of 2017, 90% of trusts will be signed up to GAP Part of the NHS Saving Babies Lives

Care Bundle.

It's estimated that if all trusts run GAP 1000

babies lives could be saved every year

Continuing to push for all trusts to adopt GAP to

better detect growth restriction and save babies lives

• Is your trust fully implementing GAP?

• Essential information for mums-to-be
• Free to all UK trusts
• Download it in other languages
• Pictorial poster on symptoms to report
• In line with Safer Pregnancy Messaging
• Includes info on RFM

MAMA Leaflets

Wellbeing Wallets

lEmpower mothers with key health information lwherever she goes, given to mothers by their lmidwives at the first appointment lAssist midwives in discussing sensitive topics with lmums such as smoking, signs of preeclampsia and lhow to monitor babies movements lGive mothers permission to call their maternity team with any lconcerns and advises they should be assessed when reporting lreduced movements

Wellbeing Wallets

lInformation forms part of Department of Health and Sands 'Safer

Pregnancy Messaging‘

lAddresses top stillbirth question by Stillbirth Priority

Setting Partnership

A years pilot of 80,000 wallets within 15 trusts reported a significant decrease in stillbirth rates

Wallet Feedback

One mum who self-referred to hospital with fetal movement concerns had an immediate emergency c-section due to pathological CTG, reported that she had rung because she had been prompted by the message on her wallet. She felt she may not have done so if she didn’t have the constant reminder in front of her.

Kettering Hospital

February 2016

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Wallet Feedback

One woman noticed the signs when things were not going well from the information on the wallet, this prompted her to attend labour ward and she had pre-eclampsia.

Lewisham and Greenwich NHS Trust

July 2016

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• Just 55p each + delivery
• Currently distributed within
• 30 trusts nationwide

Collect your samples today!

Wellbeing Wallets

MAMA Champions

Are you passionate about saving babies lives? “Stillbirth Prevention Officers” in every trust to:

• Disseminate current midwifery news & guidelines
• Communicate national stillbirth work
• Work with us on stillbirth prevention ideas
• Receive our posters and leaflets

Get your MAMA Champion badge today!

Join our mailing list Follow us on social media Write articles for our website Display our posters Distribute our leaflets Raise funds for Wellbeing Wallets Raise awareness of stillbirth prevention Keep saving babies lives

Your help

Get in touch

www.mamaacademy.org.uk /mamaacademy @mamaacademy heidi@mamaacademy.org.uk