Learning from Australia the National Disability Insurance Scheme - - PowerPoint PPT Presentation

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Learning from Australia the National Disability Insurance Scheme - - PowerPoint PPT Presentation

Learning from Australia the National Disability Insurance Scheme The collective and inclusive leadership that led to the creation and initial design of the NDIS Clenton Farquharson, Eddie Bartnik, Bruce Bonyhady, Kirsten Deane, John Walsh,


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Learning from Australia – the National Disability Insurance Scheme

The collective and inclusive leadership that led to the creation and initial design of the NDIS

Clenton Farquharson, Eddie Bartnik, Bruce Bonyhady, Kirsten Deane, John Walsh, Sam Bennett and Caroline Speirs

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Think Local Act Personal and the International Initiative for Disability Leadership

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Welcome and background to this event

Clenton Farquharson MBE Chair of Think Local Act Personal

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Introduction to the International Initiative for Disability Leadership (IIDL)

Eddie Bartnik – International Lead, IIDL

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Cr Crea eating the he Per erfec ect ( t (Disability) S ty) Storm through I Incl clusive C Collect ctive L Leadership

The he collec ective inc nclusi sive l e leader ersh ship t tha hat led t ed to t the c he crea eation and nd ini nitial d desi sign of Australia's 's N National Disa sability I Insur surance S e Schem heme ( e (NDI DIS)

  • Identifier first line
  • Second line
  • Professor Bruce Bonyhady AM
  • Executive Chair and Director, Melbourne Disability Institute
  • 10 September 2020
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NDIS Distinctive Features

The NDIS: 1. Places disability in an insurance, investment and economic framework, not just a social policy or rights framework. As an insurance scheme, it seeks to minimise the cost of supporting people with disability and maximise their opportunities over their lifetimes 2. Provides funding to individuals so they can then harness markets to find the supports that most efficiently and best meet their needs 3. Seeks to build the capacity of communities, through Local Area Coordination, and to make mainstream services inclusive of people with disability, and 4. Is building the best disability data base in the world.

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The Campaign for the NDIS

The NDIS campaign, Every Australian Counts, cost just $4.5 million, and irrevocably changed

  • attitudes. Based on four simple interlocking elements which are universally relevant:

1.Unity. Big reforms require unity and champions and it ended decades of schism because all people with disability could see their place in the Scheme 2.Careful selection of language and the framing of an issue on your terms, which is essential for change. The description of the old disability system as broken and the campaign name, evoking images of people with disability not counting were examples of this, while the terminology of insurance made the NDIS relevant to all Australians 3.Economic analysis is the principle framework for determining public policy in Australia today and the NDIS framed disability as an economic issue for the first time, not just a social policy

  • r human rights issue.

4.Technology and social media were used brilliantly by the campaign

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The Policy Triangle

CONTEXT CONTENT PROCESS ACTORS

  • As individuals
  • As members of groups
  • 1. Gill Walt & Lucy Gilson, “Reforming the health sector in developing countries: the central

role of policy analysis,” Health Policy and Planning, Issue 9(4):353-370 (1994): 354.

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History of Every Australian Counts - Kirsten Deane OAM

It’s been a long journey…how did we get here?

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It’s been a long journey…how did we get here? History of the EAC campaign

2009 – National Disability and Carer Alliance born

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It’s been a long journey…how did we get here? History of the EAC campaign

2010 – Every Australian Counts born

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • Limited or no

understanding of the problems for Australians with disability

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • Limited political

attention or will.

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • The NDIS was a big,

complicated idea that was hard to understand.

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • It wasn’t just big and

complicated – it was also expensive.

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • People with disability

and their families were just surviving day to day – it was hard to find time to do anything else.

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It’s been a long journey…how did we get here? History of the EAC campaign

There were lots of problems when Every Australian Counts started:

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  • We didn’t have any

money to run a big expensive campaign.

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But we did have a secret weapon – people with disabilities and their families

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It’s been a long journey…how did we get here? History of the EAC campaign

What did we do?

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  • People with disability and their

families told their stories.

  • They told their stories to politicians,

friends and neighbours, to anyone who would listen.

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It’s been a long journey…how did we get here? History of the EAC campaign

What did we do?

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People told their stories themselves – we did not tell them. We just gave them some help.

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It’s been a long journey…how did we get here?

What did we do?

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We organised lots of different things so everyone could find a way to get involved.

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It’s been a long journey…how did we get here? History of the EAC campaign

What did we do?

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It’s been a long journey…how did we get here? History of the EAC campaign

What did we do?

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  • We held small events – like morning teas.
  • We held big events – like rallies.
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It’s been a long journey…how did we get here? History of the EAC campaign

What did we do?

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  • We got people to visit their Members of

Parliament in their offices and take a photo.

  • We held events at Parliament House in

Canberra.

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It’s been a long journey…how did we get here? History of the EAC campaign

And we haven’t stopped yet ...

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It’s been a long journey…how did we get here?

So the lessons are …

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  • Get organised – stick

to the 90 per cent

  • Get resources
  • Make social and

economic case

  • Independent research
  • Tell stories
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Learning from Australia - the National Disability Insurance Scheme

Scheme design John Walsh AM

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My background

  • Lived experience with disability
  • Actuary
  • Career in insurance models and government policy
  • Disability investment group - 2008-2009
  • Australian Productivity Commission - 2009-2011
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The NDIS Model (1)

Three tiers of “insurance”

  • Tier 1 - Universal coverage: entitlement to support funding based
  • n need. National Disability Strategy.
  • Tier 2 - Block funded community engagement and linkages for all

people with a disability (5 million) and carers (1 million)

  • Tier 3 - Individual funding for support and/or early intervention for

eligible people (500,000)

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The NDIS Model (2)

  • Annual funding based on an actuarial model of the best available

data

  • Funding to the participant rather than block grant to providers
  • Individual support uses independent assessment of functional

support need and other personal characteristics

  • Choice of use of funding, for best personal utility and outcomes
  • Funding where early investment promises a better lifetime result in

cost and life outcomes

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The NDIS Model (3)

  • Run by independent Agency within a prudential insurance

governance framework

  • Comprehensive longitudinal database of demographics,

disability, funding, service utilisation and cost

  • Goal attainment within an outcomes framework
  • Innovative market solutions and workforce opportunities
  • A second tier of investment in linkages to mainstream and

community supports

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Reflection on the process and framing this for England

Dr Sam Bennett – National Disability Insurance Agency Australia

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Short break – 5 minutes

Please come back for question and answer session

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Q&A

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Thanks and next sessions

Caroline Speirs, Head of TLAP

Next sessions: 1st October 9-11am – How the NDIS operates in practice 29th October 9-11am – Insurance and sustainability principles Sign up to the TLAP Newsletter for more information www.thinklocalactpersonal.org.uk