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Innovative Special Project of National Significance (SPNS): Fusing Part A, B, C, & D Data for MyCareContinuum Dashboard and Empowering Consumers with an Award-Winning Low-Health- Literacy Patient Portal Milagros Izquierdo, Division Director,


  1. Innovative Special Project of National Significance (SPNS): Fusing Part A, B, C, & D Data for MyCareContinuum Dashboard and Empowering Consumers with an Award-Winning Low-Health- Literacy Patient Portal Milagros Izquierdo, Division Director, City of Paterson Department of Health and Human Services, Ryan White Part A, MAI and HOPWA Patricia H. Virga, PhD., Vice President Consulting Services, New Solutions, Inc. Jesse Thomas, Project Director, RDE System Support Group, LLC Dr. Peter Gordon, MD, Medical Director, New York Presbyterian Hospital Comprehensive Health Program 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

  2. Disclosures The City of Paterson, Department of Human Services, New York Presbyterian Hospital and New Solutions, Inc. have no financial interest to disclose. Jesse Thomas works as Project Director for RDE System Support Group, LLC. This continuing education activity is managed and accredited by Professional Education Services Group in cooperation with HSRA and LRG. PESG, HSRA, LRG and all accrediting organization do not support or endorse any product or service mentioned in this activity. PESG, HRSA, and LRG staff has no financial interest to disclose. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

  3. Learning Objectives At the conclusion of this activity, the participant will be able to: 1. Recognize how a paradigm of fusing disparate data sources across funding silos can enhance quality improvement. 2. Describe how to replicate and adapt strategies and tools to implement novel approaches to impacting the outcomes along the HIV Care Continuum. 3. Identify, analyze and evaluate the pitfalls and benefits of implementing health information exchange, including the adoption of federal Office of the National Coordinator (ONC) standards. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

  4. Introduction Coordinating systems through eHIE The Bergen-Passaic The Bergen-Passaic TGA TGA 1

  5. Introduction City of Paterson Department of Health and Human Resources Ryan White Grants Division  In existence since 1994  Services located across two counties and concentrated in the epicenters of Paterson, Passaic and Hackensack  Ryan White Programs and Providers  16 Ryan White Part A  4 Minority AIDS Initiative (MAI)  6 HOPWA sub-recipients

  6. Our Story Building on SPNS Electronic Exchange of Health Information - Networks of Care Using Data to Impact Process and Health Outcomes

  7. eCOMPAS Interactive Quality Reporting

  8. Agency Alerts

  9. Agency Alerts Drilldown

  10. Email Alerts • Proactive, regular, push notification • Supervisors are more likely to read email

  11. Linked to Exact Screen

  12. Outcomes

  13. QM + Alerts Data entry + charts SPNS Undetectable VL improved 38.6% 2006-2007 prior to SPNS, all medical patients

  14. International Journal of Medical Informatics, August 2012

  15. (from left to right) Denise Coba, Pat Virga, Jesse Thomas, Millie Izquierdo, Jimease Green, Maria Cordova, Doug Mendez, Pricilla Moschella, Jerry Dillard, Ellen McNamara, Larry Rodgers, Blanca Roman, Anthony Fazzinga, Sandra Murillo, Maryann Collins, Irene Panagiotis, Serge Virodov, Chantia Douglas, Kathy Lebron.

  16. SPNS 2014 Program Goal Create a coordinated regional system of HIV/AIDS medical services, joining outreach, HIV testing, early intervention and HIV medical providers to ensure that all individuals at risk for HIV have access to HIV testing, timely disclosure of test results, and rapid linkage to medical care, access to ARV therapy and sustained viral suppression. 1

  17. Objectives • Construct the Regional (RWHAP) and Local HIV Care Continuum as an interactive Continuum that allows the user to view any sub-section desired. • Import data from NJ-DHSTS (Part B) into eCOMPAS • Import data from St. Joseph’s Hospital and Medical Center HIV Services (Part A, C and D) into eCOMPAS

  18. Project Components HIV Care Continuum Stage HIV Care Continuum Stage d d e e e e s s r r e e T T a a s s r r R R C C e e a a r r A A C C n n p p Project Components of Project Components of d d p p i i o o s s n n e e u u t t i i o o b b s s S S e e The Bergen-Passaic The Bergen-Passaic o o i i i i g g t t r r y y n n n n c c a a l l g g e e s s l l k k a a a a t t e e MyCareContinuum SPNS Project MyCareContinuum SPNS Project n n r r e e r r i i i i i i D D R R L L P P V V . . . . . . . . . . 1 1 2 2 3 3 4 4 5 5 1. eHIE 1. eHIE X X X X X X X X X X 2. MyCareContinuum Dashboard 2. MyCareContinuum Dashboard X X X X X X X X X X 3. eP-TAS 3. eP-TAS X X X X 4. Low Health Literacy Patient Portal 4. Low Health Literacy Patient Portal X X X X 5. MyCareContinuum Collaboratives 5. MyCareContinuum Collaboratives X X X X X X X X X X

  19. 7

  20. My CareContinuum Goal 3 Goal 3 eP-TAS People Taking Action, Saving Lives St. Joseph’s Hospital and Medical Center Outreach Data + (Lab Tracker) Linkage Data Testing Data + •Client Level Data Care Data •Bi-Directional Health Information Goal 1 Goal 1 Goal 2 Goal 2 Exchange Expanded Health e2 •Performance Indicators My CareContinuum Information Exchange •Proactive Alerts & Reminders Dashboard (eHIE) •HRSA RSR-Compliant •Cross Agency Electronic Referrals Surveillance Data Full Care Powered by SaaS Continuum eHARS Data Personal Health Record Data Goal 4 Goal 4 18 Medical and Support 18 Medical and Support 18 Medical and Support 18 Medical and Support Low Health Literacy Providers, serving 1,600 18 Medical and Support 18 Medical and Support Providers, serving 1,600 consumers Patient Portal Providers, serving 1,600 consumers consumers Goal 5 Goal 5 My CareContinuum Collaboratives in+care NQC Cross Part New Jersey Dept. of Clients / Patients / Bergen-Passaic Quality Management Team Initiative Collaborative Health Consumers Powerful and successful HIE and Care & Treatment System Outreach, Linkage, Testing, and Surveillance integrated Expanded central, secure data warehouse Bi-monthly aggregate State surveillance data Near real-time data from largest medical provider Partners can access real time data reporting Quality Improvement activities and PDSA enabled

  21. - Past A ,B,C,D Funded - CW User - Labs/Medical data - Part A, HOPWA - eCOMPAS - Part B - All Providers (53) have access - Surveillance Data to data - eHARS System - Care Continuum Data St-Joseph Bergen -Passaic NJ-DHSTS TGA Part A, B, C, D Data - Regional ( NJ-DHSTS ) - RW Only (St Joes + eCOMPAS Data) - Client Drilldowns - Interactive Dashboard (Future Vision) e2 St-Joseph MyCareContinuum Surveillance Data Care Continuum Data Part A, B, C, D Data - Client Demographics eCOMPAS - Case Management - Supportive Services - Referral - LKM v2.2 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT

  22. Goal 1: eHIE – Part C/D provider data import

  23. Objectives • Import data from St. Joseph’s Hospital & Medical Center HIV Services (Part A, B,C and D) into eCOMPAS • Construct the Ryan White HIV Care Continuum for the MyCareContinuum Dashboard • Reduce double data entry

  24. Hi! HIE eHIE

  25. e2St.Joseph’s Send de-identifying Send Identifying Part A Part B,C,D data to data to eCOMPAS eCOMPAS eCOMPAS MyCareContinuum Dashboard

  26. Barriers and mitigation Mitigation Challenges Success • Data exchange delayed - St. • • SPNS team requested sample For the first time, RWHAP Joseph had their biggest data sets from St. Joseph’s as Part B provider agrees to move the hospital has ever a first step. explore sharing CLD with Part seen. A Grantee. • SPNS team is flexible on • St. Joseph’s data system format, detail and • Collaboration with St. (Aviga) was discontinued. timeframes. Joseph’s data team to receive Team was deciding on a new sample client level data. data system. • Care Continuum dashboard prototype built from • With PDE data import, • St. Joseph’s had to migrate aggregate data in parallel. prevent Part A double data historic data to the new data entry. system selected – CAREWare • Current status: Re-use eCOMPAS model System’s • Data sharing and data import • Staff was new to CAREWare CAREWare Data import using design. and had a learning curve. PDE (Provider Data Export) • • Sample CW file received. Approvals and confidentiality • Proposed a win-win idea to agreement. import data into a intermediary site. • Matching algorithms

  27. St. Joseph’s CAREWare Export PDE from CW (Provider Data Export) PDE File (Access File) Updated PDE File Fix data in CW Upload into e2 e2 St.Joseph’s Verify imported Erroneous data Clean data will be will be discarded imported to e2 data under Database client records

  28. Current Status and Next Steps • Meetings/webinars between SPNS team and St. Joseph’s team to finalize PDE template and final specifications. • Data import design has been shared with St. Joseph’s team. • RDE will give St. Joseph’s team access to e2Virginia’s demo site • Once specs are final and agreements in place, implementation will begin and prototype will be deployed for alpha testing

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