Hints and Tips for Research for Patient Benefit Application Dr Sue - - PowerPoint PPT Presentation
Hints and Tips for Research for Patient Benefit Application Dr Sue Hinder Lay member Research for Patient Benefit Programme Presented at the NIHR RDS NW Preparing an application for the Research for Patient Benefit Programme Workshop
Presented at the NIHR RDS NW Preparing an application for the Research for Patient Benefit Programme Workshop – 06/11/2009
Service users and carers NHS organisations who will implement Clinicians – including frontline staff Academics – social scientist, research
Statistician Health economist
Going through your project like
Experts in their conditions and their
Tacit knowledge Relevance Analysis and interpretation of findings Spreading the knowledge
Involvement in the DESIGN NOT getting service users and carer’s
Assurance that research is relevant Democratic accountability Making research value for money Information from experts in the
Service user and carer ‘perspective’ Needed for IRAS ethics application
Relevance – important v critical issues Easier implementation- importance of
Small changes can have big effects –
The question you ask determines the
GET A STATI STI CI AN !
Make sure your proposal is clearly written You are writing for people outside your
Committee members have up to 20 proposals
Lack of clarity usually means not thought
In scope for RfPB ? Patient Benefit in approx 5 years Probably not diagnostics Not ‘blue skies’ More suitable for another programme. HTA ? Pilots with a view to the main study OK Methods – fit for peer review? Is it being done elsewhere?
Lay reviewer with experience of
Lay reviewer with general view Researcher in the same field Researcher in similar field Widely differing views
Clinical academics Social scientists 2/3 lay members Pre-reading Lead Assessors – reminder summaries Discussion -different opinions, even
Forgot the statistician ! Lack of a ‘dream team’ Not referencing/discussing important
Too complex – too many assumptions Research methods Project management – is it realistic?
£249,999 – suspicious ! Looks like the project may have been
Acceptable as part of the proposal Updating of literature review What if the research question or
Takes time and money
Multiple views Developing knowledge of research
Developing working relationships Enthusiasts Involvement Portfolio
Self-help groups Individual service users from practice
Very important not to ‘tick the box’ People with direct experience of the
Carers with direct experience of the
Make no assumptions Leaders of community groups – do they
Describe who has been involved and how Has the proposal developed from issues
Describe how they will be involved
Aim for 3 service users on steering group or
Payment offered
Lay members would like this moved to
The Diabetes Patient’s Forum have called for
30 mins discussion Develop the research proposal Brief notes in the RfPB template Feedback Discussion
Dr Sue Hinder RaFT Research and Consulting Lower Hall Downham Clitheroe Lancashire 01200 440912 susan.hinder@virgin,net