Health Data Management DoYou Need to UpdateYour Approach? Sharon - PowerPoint PPT Presentation

Health Data Management DoYou Need to UpdateYour Approach? Sharon Campbell BScHIM MHSM

Data Data outlives facilities, devices and people and is the longest lasting asset in any organisation.

Data governance manages the approach Data governance is defined as ‘a set of processes that ensure that important data assets are formally managed throughout the enterprise’ (Sarsfield 2009, 23)

Governance Principles-Record Keeping The Basics……………. • Compliance • Availability • Accountability • Integrity • Retention • Protection • Disposition • Transparency

Enterprise Information Management (EIM) “The acquisition, organisation, analysis, storage, retrieval, and dissemination of information to support decision-making activities” (Kloss 2016, 45)

Enterprise Information Management (EIM)-Building Blocks for Information Governance Contents and Design and Access and Use Records Capture Management Integrity and Quality Privacy, Confidentiality and Security

Challenges affecting healthcare in 2018……. enough to meet these challenges? Is your health data management robust • Financial challenges • Healthcare reform • Government mandates • Patient Safety and Quality-HACs • Patient satisfaction • Clinician-hospital relations • Population health management • New Technology • Personnel shortages • Implementing accountable care • Legal Challenges • My Health Record

What would happen if you had to face these challenges?........ Phishing attack breaches 38,000 patient records at Legacy Health Third-party vendor error exposes data of 19K patients for 2 months Canadian pharmacist fined for routinely accessing health records of acquaintances NSW Government launch archive audit after confidential medical records found in abandoned building

Legislation • Aged Care Act 1997/2009 • Electronic Transactions Act 1999 • Evidence Act 1995, Evidence Amendment Act 2008 • Human Tissue and Transplantation Act • Mental Health Act • Privacy Act • State Records Act

Privacy and Security Risks 1. Access and Disclosure 1.1 An unauthorised user gains access 1.2 An authorised user violates the appropriate use conditions 2 Information Integrity 2.1 Mislabelling, misfiling 2.2 Degradation, destruction or loss 2.3 Technology obsolescence 3. Fraud 3.1 Insider 3.2 Malware 3.3 Cyber-attack 4. Technology 4.1 Mobile 4.2 Embedded devices 5. Organisational Negligence 6. Human errors and negligence

Privacy and Security Disconnect between businesses complying with their legal privacy legal obligations, and what individuals expect businesses to do with their data.

Trust and Transparency “[Patients are] more likely to give permission to sharetheir data if they understand how their data will beused” - The Consumer’s Health Forum

Trust and Transparency Businesses need to be more transparent about their data handling practices Transparency ensures businesses are clear about their practices and are giving proper consideration to what the customer should expect.

Patient Choice By giving patients the ability to have their say in regard to how their data is handled, businesses are building consumer trust.

Patient Choice Consider what happens at the point of collection of any personal information like health data and ask: − What information are we collecting about our patients? − How do we intend to use that information? − What information of our patients might we share with others and what will they do with it? − What information and choices are we giving our patients about personal information we collect?

Understanding Data Processing Obligations • Personal data • Type of data • Security obligations • Nature and purpose • Release of information • Responsibilities

The cost of poor data quality It costs ten times as much to complete a unit of simple work when the data are flawed in any way compared to when they are accurate. What is the actual ‘source of truth’??

How, What, Where & Why How-Establish an Information Governance Committee Create a charter to support members in their roles What - Set the terms of reference  Clear, consistent and transparent Where-Within your organisations hierarchy – stakeholders  Engage your Executives and leaders Why-Health Data Governance Transparency  Demonstrate clear, consistent secure management of all information & processes

How, What, Where & Why Continued Cre a te a nd Ca pture Po lic ie s, Sto re Sta nda rds a nd K e e p o r a nd Pro te c t De stro y L e g isla tio n F ind, Use a nd Sha re