The GA 2 LEN HAEi ACARE network is a joint initiative by GA 2 LEN, the Global Allergy and Asthma European Network, and HAEi, the global umbrella organization for the world’s hereditary angioedema patient groups. May 2020
GA 2 LEN Allergy resear arch, , awar areness, , educat ation on, pat atient c car are an and ad advocac acy • Disease-specific networks of centers of reference and excellence, e.g. UCARE (urticaria), ADCARE (atopic dermatitis), and ARIACARE (allergic rhinitis & asthma) • Projects, registries, interest groups • Global Forum, conferences, schools, masterclasses, preceptorships www.ga2len.net May 2020
HAEi •Global umbrella organization for the world’s hereditary angioedema (HAE) patient groups •Dedicated to raising awareness of hereditary angioedema around the world. •Striving to improve time to diagnosis and facilitate access to and reimbursement of life-saving HAE therapies, which will enable lifelong health for all patients – no matter where they live. https://haei.org/ May 2020
The GA 2 LEN HAEi ACARE network • Aims to provide excellence in angioedema management, to increase the knowledge of angioedema by research and education, and to promote the awareness of angioedema by advocacy activities. • ACAREs will serve as referral centers for the diagnosis and management of angioedema, and thereby complement the current efforts and pathways of health care communities to provide adequate care for patients with angioedema. • The interaction of GA²LEN/HAEi ACAREs as a network will help to increase angioedema knowledge and management. www.acare-network.com May 2020
Aims of the GA 2 LEN HAEi ACARE network 1. Provide excellence in angioedema management 2. Increase the knowledge of angioedema by research, studies and education 3. Promote the awareness of angioedema by advocacy activities www.acare-network.com May 2020
What does it take to be a GA 2 LEN HAEi ACARE? Requirements Infrastructure/setup 15 Management of angioedema 9 Clinical & Basic Research 5 Education 1 Advocacy 2 32 www.acare-network.com May 2020
How to become a GA 2 LEN HAEi ACARE? Requiremen ts 1 Apply 2 Audit 3 Certification www.acare-network.com May 2020
ACARE application form www.ga2len-ucare.com www.acare-network.com laura.schwenner@charite.de marcus.maurer@charite.de markus.magerl@charite.de May 2020
ACARE application form for UCAREs www.acare-network.com laura.schwenner@charite.de marcus.maurer@charite.de markus.magerl@charite.de May 2020
The GA 2 LEN HAEi ACARE network May 2020
The GA 2 LEN HAEi ACARE network Certified ACAREs: 44 Applicant Centers: 10 Interested Centers: 43 Countries with ACAREs ◦ Africa: 1 ◦ Asia: 9 ◦ Australia & Oceania: 0 ◦ Europe: 14 ◦ North America: 0 ◦ South America: 2 26 May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process www.acare-network.com May 2020
The GA 2 LEN HAEi ACARE audit process May 2020
The GA 2 LEN HAEi ACARE Office Laura Schwenner laura.schwenner@charite.de www.acare-network.com May 2020
May 2020
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