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The GA2LENHAEi ACARE network is a joint initiative by GA2LEN, the Global Allergy and Asthma European Network, and HAEi, the global umbrella organization for the world’s hereditary angioedema patient groups.
May 2020
GA 2 LEN, the Global Allergy and Asthma European Network, and HAEi, - - PowerPoint PPT Presentation
GA 2 LEN, the Global Allergy and Asthma European Network, and HAEi, - - PowerPoint PPT Presentation
The GA 2 LEN HAEi ACARE network is a joint initiative by GA 2 LEN, the Global Allergy and Asthma European Network, and HAEi, the global umbrella organization for the worlds hereditary angioedema patient groups. May 2020 GA 2 LEN Allergy
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GA2LEN
Allergy resear arch, , awar areness, , educat ation
- n, pat
atient c car are an and ad advocac acy
www.ga2len.net
- Disease-specific networks of centers of reference and excellence,
e.g. UCARE (urticaria), ADCARE (atopic dermatitis), and ARIACARE (allergic rhinitis & asthma)
- Projects, registries, interest groups
- Global Forum, conferences, schools, masterclasses, preceptorships
May 2020
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HAEi
- Global umbrella organization for the world’s hereditary angioedema
(HAE) patient groups
- Dedicated to raising awareness of hereditary angioedema around
the world.
- Striving to improve time to diagnosis and facilitate access to and
reimbursement of life-saving HAE therapies, which will enable lifelong health for all patients – no matter where they live. https://haei.org/
May 2020
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The GA2LENHAEi ACARE network
www.acare-network.com
- Aims to provide excellence in angioedema management, to
increase the knowledge of angioedema by research and education, and to promote the awareness of angioedema by advocacy activities.
- ACAREs will serve as referral centers for the diagnosis and
management of angioedema, and thereby complement the current efforts and pathways of health care communities to provide adequate care for patients with angioedema.
- The interaction of GA²LEN/HAEi ACAREs as a network will help to
increase angioedema knowledge and management.
May 2020
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- 1. Provide excellence in angioedema management
- 2. Increase the knowledge of angioedema by
research, studies and education
- 3. Promote the awareness of angioedema by
advocacy activities
Aims of the GA2LENHAEi ACARE network
www.acare-network.com
May 2020
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What does it take to be a GA2LENHAEi ACARE?
Requirements Infrastructure/setup 15 Management of angioedema 9 Clinical & Basic Research 5 Education 1 Advocacy 2 32
www.acare-network.com
May 2020
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Requiremen ts 1 Apply 2 Audit 3 Certification
www.acare-network.com
How to become a GA2LENHAEi ACARE?
May 2020
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www.ga2len-ucare.com
www.acare-network.com
laura.schwenner@charite.de marcus.maurer@charite.de markus.magerl@charite.de
ACARE application form
May 2020
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ACARE application form for UCAREs
www.acare-network.com
laura.schwenner@charite.de marcus.maurer@charite.de markus.magerl@charite.de
May 2020
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The GA2LENHAEi ACARE network
May 2020
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Certified ACAREs:
44
Applicant Centers:
10
Interested Centers:
43
Countries with ACAREs
- Africa:
1
- Asia:
9
- Australia & Oceania:
- Europe:
14
- North America:
- South America:
2 26
The GA2LENHAEi ACARE network
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
www.acare-network.com
May 2020
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The GA2LENHAEi ACARE audit process
May 2020
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The GA2LENHAEi ACARE Office
Laura Schwenner laura.schwenner@charite.de www.acare-network.com
May 2020
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May 2020