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Dr. Bradley E. Cox Brett Ranon Nachman Kerry Thompson Steven Dawson ASHE 2017 Jeff Edelstein Houston, TX Chase Breeden In Search of Actionable Insights Regarding College Students with Autism: A Systematic Literature Review This material is

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www.CollegeAutismNetwork.org In Search of Actionable Insights Regarding College Students with Autism: A Systematic Literature Review

Dr. Bradley E. Cox

Brett Ranon Nachman Kerry Thompson Steven Dawson Jeff Edelstein Chase Breeden ASHE 2017 Houston, TX

This material is based, in part, upon work supported by the National Science Foundation under Grant Number 1612090

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www.CollegeAutismNetwork.org

Our Team

Dr. Bradley E. Cox

Associate Professor of Educational Leadership and Policy Studies Florida State University Brett Ranon Nachman Ph.D. Student, Education Leadership and Policy Analysis University of Wisconsin-Madison Kerry Thompson Ph.D. Candidate, Rehabilitation Psychology University of Wisconsin-Madison Chase Breeden M.A. Higher Education Community Director North Carolina State University Steven Dawson Undergraduate Research Assistant Florida State University Jeff Edelstein M.A. Student, Higher Education: Institutional Research University of Michigan

Ann Arbor

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www.CollegeAutismNetwork.org

Challenges

. 4 3 1 2

Individual Institution System Society

Social, Communication,

Transition

Academic, Independent Living
Lack of data, “someone else’s

problem”

Inefficient coordination across units
IDEA vs ADA legal foundation
Minimal transition planning in

K-12

Misunderstandings; pop-culture assumptions
Stigmatization; low expectations

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www.CollegeAutismNetwork.org

Methods

Journal identification

Interdisciplinary Faculty Team

Education
Communication
Medicine

16 Journals Identified

Article Filtering

13,000 Articles

1/2000 - 9/2015

PRISMA

Keywords
“auti*”, “ASD”,

“Asperger”

“higher

education"

“Colleg*”
“postsecondary”

94 Abstracts

37 removed

Literature Annotation

57 Articles

Annotated in

teams of two or more ○ Undergradua te ○ Graduate

21 removed

○ No mention

f college or

students with autism

Supplementary*

7 Additional Articles

Counterbalance

limitations of initial review

Only included in

discussion

Categorization

36 Articles

Framework of

Actionable Insights

Two authors

○ Third author in case of disputes

One primary

theme

One or more

secondary themes

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Framework

Who are these students? How are they doing in college? What’s happening while they’re in college? Where is there room for improvement? What might we do differently? Are existing efforts effective? What theories shape our interpretation of this population’s experiences? What matters for this population?

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PRIMARY THEMES SECONDARY THEMES

Results:

Distribution Across Framework

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Distribution Across Methods

Notable Trends:

First-world nations
Small sample size
Limited data from

students w/ autism themselves

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www.CollegeAutismNetwork.org

Distribution Across Journals

15 12 3 3 2 1

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Synthesis of Substantive Content

Turbulent transitions from high school to college
Parental dependence
Lack of self-advocacy
Stress
Stigmatization
Lack of institutional change to serve students with autism
Infrequent discussion groups, conversations, workshops
Deficit of engaging with students with autism

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www.CollegeAutismNetwork.org

Holes, Bias, and Imbalance

Holes Imbalance Insight Action

14 “evaluating” “interventions” 11 Insight TOTAL 1 generating theory

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Holes, Bias, and Imbalance

Holes Imbalance (Q2) Experiences & Outcomes (Q1) Prevalence

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Implications for Practice

Personalized Transition Planning and Programs

○ College recruitment and admissions ○ Orientation, FYE/transition coursework

Technological Tools

○ To support communication, self-care, organization ○ To provide virtual tours, trainings, and video modeling

Personal Social Support

○ Professional staff as social coaches or facilitating discussion groups ○ Student peer mentors as supportive guide to engaging with the campus community

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Implications for Research

We can’t wait...

...for national statistics or large-scale quant

surveys to offer updated information

... for educational leaders to find current

literature

...for the development of a consensus

theory to guide our work

...for students with autism to self-advocate

It’s time to...

...conduct studies that examine experiences of

college students with autism

...publish in higher ed journals
...draw from theories associated with other

marginalized populations and creatively adapt them to study students with autism

...actively include students with autism in

studies

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www.CollegeAutismNetwork.org

Conclusions

Students with autism are already at our colleges, so we must glean insight from them to inform appropriate actions.

"they" have now become part of "us"... therefore, WE can't wait.

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www.CollegeAutismNetwork.org

Developing Insight, Taking Action

From Pena, 2014 From Pena, 2014

Cox, B. E., Thompson, K., Anderson, A., Mintz, A., Locks, T. Morgan, L., Edelstein, J., & Wolz, A (2017, 58.1, pp. 71-87). College experiences for students with Autism Spectrum Disorder (ASD): Personal identity, public disclosure, and institutional support. Journal of College Student Development.

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www.CollegeAutismNetwork.org

Moving Forward

Autism-Related Characteristics in College STEM Students: Prevalence, Performance, and Mediation

(1) determine the prevalence of autism-related characteristics among college students entering STEM fields; (2) assess the effect of autism-related characteristics on student performance in gateway STEM courses; (3) evaluate the effect of formal disability accommodations on the classroom performance of STEM students with autism-related characteristics.

A Spectrum of Student Success

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www.CollegeAutismNetwork.org

College Autism Network

Training

Research Advocacy

Dr. Bradley E. Cox

brad@collegeautismnetwork.org We would like to thank the faculty members who helped us identify the 16 journals, and additional students who helped us annotate articles therein. Full Paper, slides, and additional resources available at www.CollegeAutismNetwork.org