Disclaimer I have nothing to disclose. What is CEID? The Hearing - - PDF document

UCSF Developmental Disabilities Conference Communication Options

A Bay Area Model Program: Family Centered Early Intervention

Jill Ellis, M.Ed. Founder Center for Early Intervention on Deafness .

Disclaimer

I have nothing to disclose.

What is CEID?

The Hearing Society & First Congregational Church

 Student photos

NHS in the 1970’s & 1980’s

Average age of ID: 2.5 years No state NHS 50% unknown etiology 1/2000 babies Body hearing aids No Early Start

 1035 Grayson Street West Berkeley

Services available at CEID

 Home Visits  Parent‐Child Playgroups

 Sign Language  Deaf‐Blind  Listening & Spoken

Language

 Down Syndrome

 Toddler & Preschool Classes  Deaf Mentors  Family Support Activities  Speech Therapy  Occupational Therapy  First 5 – Home Visit (3‐5)  Comprehensive Audiology

 Diagnostic and Dispensing  Community Hearing

Screenings  Pediatric Provider Training  Other Consulting

 Charter Schools  Medical Providers  Early Start Professionals

The CEID Team

Toddler & Preschool Pediatric Residency Training Sunshine Preschool & Childcare

First Step: California NHS Program: Legislation

 AB2780 (passed 1998 – December 2002 full implementation)  NHSP: Assembly Bill 2780, Chapter 310, Statutes of 1998.  Required: Establishment of a comprehensive hearing screening program for the early detection of hearing loss in newborns and infants, with access to diagnostic evaluations and follow‐ up services, and provisions for data collection and reporting.  Department of Health Care Services (DHCS), specifically the Children's Medical Services (CMS), holds responsibility for the implementation and oversight of this program  1‐3‐6 Goals  70% of babies (400,000 of 520,000 births) ** 1993: Early Start implemented in California

California NHSP

Hearing Coordination Center Staff

 Director  Registered Nurse  Audiologist (Paneled)  Administrative Support  Parent Advocate  IT Support

Screen all infants

 FDA approved to screen hearing  Must be capable of detecting

mild hearing loss (30‐40 dB)

Hearing Coordination Centers (HCCs) NHSP: 1‐877‐388‐5301

• Bay Area/Northern Cal

HCC (Region A & B yellow and white) 800‐645‐3616 #3

• Southern California HCC

(Region D ‐ blue) 866‐609‐5439

• South Eastern California

HCC‐ Loma Linda Medical Center (pink) 877‐388‐5301

Referral and Eligibility

 Ages 0‐5 who are deaf or hard of hearing (DHH)

 Any type or degree (including unilateral, mild,

moderate, severe, profound, auditory neuropathy, conductive, sensorineural, mixed, or fluctuating)

 A child who has a severe language delay and needs a visual language  A child who qualifies for IDS with ASL as their home language  A child who is High Risk

Faces at CEID

 8 student faces

Family Support

 Home Visits

 Hearing Support  Early Special Education

 Family Events

 Swimming at Silliman; Day at Crab Cove; Camping; Deaf Plus

Family Picnic; Kindergym; Habitot

 Parent Education

 Sign Classes; Support Groups; Speech and Language Topics  Panels: High School Students, Parents, Deaf Adults  Parenting Strategies; Storytelling; Importance of Play!  Understanding IFSPs and IEPs

Parent‐Identified Essentials of Appropriate Early Intervention

 Contact with other parents  Unbiased information  Time to process information  Skillful and supportive professionals

Parents and Their Deaf Children: The Early Years Kathryn P. Meadow‐Orlans ‐ Marilyn Sass‐Lehrer ‐ Donna M. Mertens – Gallaudet University Press ‐ 2003

DHH Specialized Instruction

Topics

 Understanding hearing loss: cause, prognosis, and impact on the child and family  Reading an audiogram  Decision making regarding communication options  Language instruction services including: teaching American Sign Language (ASL), Signed Exact English (SEE), Cued Speech, and auditory/oral language (IDEA 303.13(b)(12)).  Visual technologies, including alerting systems, safety systems, and communication technologies  Adapting the home to make it a visual environment.

DHH Specialized Instruction Topics

 Hearing aid care, maintenance, tolerance, monitoring, and troubleshooting  Cochlear implant decision making, candidacy process, preparation, use, care, maintenance, follow‐ up  FM System use, care, decision making  Cognitive development issues related to hearing loss  Emergent literacy in deaf and hard of hearing children  Social–emotional development and identity issues.

Deaf/Hard of Hearing Specialized Instruction Topics

 Deaf culture and communities  Advocacy and empowerment issues related to hearing loss  Current research in deaf education  Special concerns related to mild, unilateral, and conductive hearing losses  The synergistic effect of hearing loss and other disabilities, including visual, motor, social, or cognitive impairments

Communication Possibilities

 Listening and Spoken Language  Cued Speech  American Sign Language (ASL)  Signing Exact English (SEE)  Conceptually Accurate Signed English  Sign Supported Speech  Total Communication (TC)  Bi‐Lingual/Bi‐Cultural

Toddler Class Music Time: Parents and Children in Action

 Video

Deaf Plus & SENSORY INTEGRATION

The ability to take in sensory information from

• ne’s body and the

environment, to organize this information, and to use it to function in daily life A Sensory Diet incorporates: Tactile Proprioceptive Vestibular  Student/class photo

Tactile:

Light Touch:

Deep Touch: Bear hugs; Bouncing a big ball on a child  2 students with different experiences

Accommodations in Classroom and Therapy Sessions Salient Considerations for a child who is Deaf Plus: *

* Positioning/Motor Control Processing Time Attention Eye Contact

Peer Lead Speech Therapy‐ Preschool

 Video with Ron and Izzy

Audiology Services

• Hearing Screenings

– For infants under 3 months old who have been referred

from an initial screening or who have never received a screening

– Preschool students (HeadStart, Private Preschools)

• Diagnostic Hearing Evaluations

– For children and adults

• Hearing Aid Dispensing

– Hearing aids and devices, ear molds, hearing

aid accessories

Alameda Sacramento Butte (158 miles/2hrs 39 mins) San Francisco Calaveras (118 miles/2hrs 3 mins) San Joaquin Contra Costa San Mateo El Dorado (115 miles/1hr 51 mins) Shasta (213 miles/3hrs 8 mins) Fresno (181 miles/2hrs 47mins) Solano Kern (291 miles/4hrs 32mins) Sonoma Lake (133 miles/2hrs 26mins) Stanislaus (89.6 miles/1hr 31mins) Mendocino (155 miles/2hrs 53 mins) Sutter (112 miles/1hr 55mins) Monterey Yolo (77.6 miles/1hr 14mins) Napa Yuba (109 miles/1hr 51mins) Placer

& Rising Harte Wellness Center A Collaborative Model for Alameda County

 School‐linked health center and collaboration serving students at Bret Harte Middle School and Transition Age Youth (young adults, ages 16‐25)  Almost 50% of BHMS students and 87% of transition age youth report experiencing barriers to accessing adequate, affordable, and competent health care.  Screening for key risk factors  Provision of treatment and services  Preventative services and dental examinations  Health education, recreation and social programs  Case management and linkage

CEID Fundraising Activities

Annual Walk‐A‐Thon Benefit Golf Tournament

 Add photo  Add photo

Ron’s Message on Behalf of CEID

 Ron’s personal Bio and video clip

CEID Publications

Pediatric Resource Guide to Infant and Childhood Hearing Loss CI Prep

 DVD  Book  Home Visit Kit  Photo of GUIDE cover

Thank You!

 Photo of 3

References from: Jill Ellis, M.Ed.

1035 Grayson Street, Berkeley, CA www.ceid.org 510‐848‐4800

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doi:10.1016/j.ijporl.2014.01.021 [doi] Alford, R. L., Arnos, K. S., Fox, M., Lin, J. W., Palmer, C. G., Pandya, A., et al. (2014). American college of medical genetics and genomics guideline for the clinical evaluation and etiologic diagnosis of hearing loss. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 16(4), 347-355. doi:10.1038/gim.2014.2 [doi] American Academy of Audiology Clinical Practice Guidelines. (2011). Childhood Hearing Screening Guidelines. [Guidelines]. Retrieved from www.asha.org/Practice-Portal/Professional-Issues/Newborn-Hearing-Screening American Academy of Pediatrics, Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early hearing detection and intervention

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American Academy of Pediatrics. (1995). Joint Committee of Infant Hearing 1994 Position

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American Academy of Pediatrics. (1996). Committee on Genetics, Newborn Screening Fact

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American Speech-Language-Hearing Association. (2008). Guidelines for audiologists providing informational and adjustment counseling to families of infants and young children with hearing loss birth to 5 years of age [Guidelines]. Retrieved from www.asha.org/policy/GL2008-00289/ American Speech-Language-Hearing Association. (2015). Expert panel recommendations on Newborn Hearing Screening. Retrieved from www.asha.org/Topics/Expert-Panel- Recommendations-on-Newborn-Hearing-Screening/#3 Beck, R. (December, 2014). Etiology of Single Sided Deafness in Children with Congenital and Acquired Unilateral Deafness. Presentation at American Cochlear Implant Alliance. Nashville, Tennessee.

Berg, A. L., Prieve, B. A., Serpanos, Y. C., & Wheaton, M. A. (2011). Hearing screening in a well-infant nursery: Profile of automated ABR-fail/OAE-pass. Pediatrics, 127(2), 269-275. Berlin, C., Hood, L., Morlet, T., Wilensky, D., Li, L., Mattingly, K. R., & Frisch, S. A. (2010). Multi-site diagnosis and management of 260 patients with Auditory Neuropathy/Dys- synchrony (Auditory Neuropathy Spectrum Disorder*). International Journal of Audiology, 49 (1): 30-43. Bielecki, I., Horbulewicz, A., & Wolan, T. (2012). Prevalence and risk factors for auditory neuropathy spectrum disorder in a screened newborn population at risk for hearing loss. International Journal of Pediatric Otorhinolaryngology, 76(11), 1668-1670. doi:10.1016/j.ijporl.2012.08.001 [doi] Center for Disease Control and Prevention (2014). Summary of 2012 national CDC EHDI

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Joint Committee on Infant Hearing, Muse, C., Harrison, J., Yoshinaga-Itano, C., Grimes, A., Brookhouser, P. E., et al. (2013). Supplement to the JCIH 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard

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American Society for Deaf Children: www.deafchildren.org The National Dissemination Center for Children with Disabilities (NICHCY) 1825 Connecticut Ave NW, Washington, DC 20009 Phone: 1‐800‐695‐0285 (V/TTY). E‐mail: nichcy@fhi360.org Web site in English: www.nichcy.org. Website in Spanish: nichcy.org/espanol/

California Newborn Hearing Screening (NHSP) Toll Free: 1‐877‐388‐5301

Regions A & B

 Bay Area/Northern California Hearing Coordination Center (BA/NCHCC) 1501 Industrial Road San Carlos, CA 94070 Phone: 800-645-3616, Press #3 Fax Number: 800-866-1074 E-mail: hccnorthern@natus.com

Region C

 South Eastern California Hearing Coordination Center (SECHCC) 1200 California St. Suite 108 Redlands, CA 92374 Phone: 909-793-1291 Fax: (909) 498-7982 Toll Free: 1-877-388-5301 Email: HCCRegionC@natus.com

Region D

 Southern California Hearing Coordination Center (SCHCC) 1 Centerpointe Drive, Suite 410 La Palma, CA 90623 Phone: (661) 591-4300 Fax: (661) 244-2865 Toll Free: (866) 609-5439 E-mail: HCCRegionD@natus.com