Direct Service at A.I. Presentation to Board Rochelle - - PowerPoint PPT Presentation

Direct Service at A.I. Presentation to Board

Rochelle Cohen-Schneider M.Ed ( reg. CASLPO) January 30thth, 2017

Aphasia has a serious impact and affects 1/3 of stroke patients

• Based on extrapolation from current stroke stats *, there are 7,864

new cases of aphasia each year in Ontario

• Almost 60,000 people living with long-term impact of aphasia in

Ontario

– This is comparable to/more than prevalence of Parkinson’s and MS

• The impact is much greater given the toll on the whole family

* Heart and Stroke Foundation website * Krueger, H., Koot, J., Hall, R. E., O’Callaghan, C., Bayley, M., & Corbett, D. (2015). Prevalence of Individuals Experiencing the Effects of Stroke in Canada Trends and Projections. Stroke, 46(8), 2226-2231. * Ng, R., Maxwell, C.J., Yates, E.A., Nylen, K., Antflick, J., Jetté, N., Bronskill, S.E. Brain Disorders in Ontario: Prevalence, Incidence and Costs from Health Administrative Data. Toronto, ON: Institute for Clinical Evaluative Sciences; 2015

Changing the Aphasia Narrative (ASHA leader November 2013)

• Traditional definition of aphasia
• Aphasia is a language problem that masks inherent

competence and most dramatically affects conversational interaction

• Conversational interaction is core to the ability to participate

in virtually every realm of adult life

• Without the ability to participate in conversation every

relationship, every life role and almost every life activity is at risk

Aphasia Institute’s Synergy of Service

Direct Service :Guiding philosophies

• Life Participation for Adults with Aphasia
• A-FROM
• Legislation – AODA etc

Life Participation Approach to Aphasia

(See LPAA Project Group, 2001)

• Explicit goal is enhancement of life

participation

• All those affected by aphasia are

entitled to service

• Measures of success include

documented life enhancement changes

• Personal and environmental factors are

targets of intervention

• Emphasis on availability of services as

needed at all stages of aphasia

Life Participation Approach to Aphasia

(See LPAA Project Group, 2001)

Living with aphasia: Framework for

• utcome measurement (A-FROM)

Facts about our programs

• Attendance
• 40 clients in this a.m.
• 17 away
• 17 volunteers
• Schedule
• 9.00 - 9.45

Volunteer preparation ( knowledge and inspiration )

• 9.45 - 11.00 Volunteer led program sessions
• 11.15-12.00

Volunteer –staff debrief

• Staff Communication : Managing the shared client
• Morning “huddle”
• DAR
• Program staff meetings

Fun Facts : Wanna Join In ?

• 4 Conversation Programs
• 2 “Focused” Conversation Groups
• 6 Exercise Programs per week ( different levels)
• 1 Bridge program
• 1 Card Drop in Program
• 1 Book Group
• 1 Debate Club
• 2 Technology Programs – drop in ; regular group
• 1 Living and Learning Program
• 1 Creative Expression Group
• 1 Karaoke Group
• 2 Toastmaster's Group
• 2 Painting Programs
• Volunteer Resource Program

Conversation underlies each of these programs – every volunteer trained in SCA

Your top OR FOODS? 3 favourite EATING OUT ORDERING IN

Do you want to make a ? change Do you want to ? decrease

Yes No

Decrease by ? how much Once a day? Twice a week? Three times a week? Other?

Week

X X

Week

X X X

Week

Yes No

Fries

Burgers Pizza

Bolded key words Pictographs Gestures and ways

• f responding

Multiple Choices

And there is more….

• Outtings
• Outreach Program

Goal for clients of the Aphasia Institute

This is achieved through lowering communication barriers and providing opportunities for full life engagement

Pathway through the Aphasia Institute

• Referral
• Assessment
• Introductory Program
• Community Aphasia Program

Referral

• 95 % referral come from SLP
• CCAC gatekeepers of Adult Day Programs

(ADP)

Assessment

Introductory Program

• 12 week group based, volunteer run psycho-

educational program

• Changing the narrative/ story

– Telling your stories – Listening to stories

• Reframing possibilities

Operational Plan 2016/2017

Area 2 : Maintain high standard of service and continue to align this with agency synergy related to research and education

• Primary Progressive Aphasia (PPA)
• Intensive Partner Training Program
• Your Life

PPA

• Create a manual codifying the program
• Run 1-2 programs for persons with PPA and their

conversation partners

• Successfully received a small one

time grant to hire full time CDA

• Developed a robust model which is in the

process of being codified

• Will run 3 programs by end of fiscal year
• Redesigned the program to meet needs
• Looking at Pathway – talked with Neurology

Program , Alzheimers Society (joint programming)

• Skype program
• Life Story
• To be presented March 2017 at Aphasia Access

Intensive Training

• Codify curriculum
• Write marketing brief
• Offer 1 program
• Completed
• Completed – big job to

articulate what we do and how we are different to

• ther programs
• No uptake this year. Have a

another date to work towards in the next fiscal year

Your LIFE

• Deepen knowledge of product so

we can develop a training

• Train 2-4 volunteers
• Create 10-15 Life Story Books
• Completed
• Trainings directed to Activation

Coordinators

• Training in March 2017
• Completed
• Trained as part of training

program for external participants

• On our way
• Presentation at ASHA Nov 2016

Some factors for consideration : OPS Plan 17/18 Area 2

• Younger referrals
• More PPA referrals
• Focus on Stroke
• Intensive Program