Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana - - PDF document

Rutgers, The State University of New Jersey Liberty Plaza, 335 George Street, New Brunswick, NJ 08901 rwjms.rutgers.edu/boggscenter p. 732-235-9300 f. 732-235-9330

Derek Nord, PhD, FAAIDD

Director and Associate Professor Indiana Institute on Disability and Community Indiana University Bloomington, IN

Making Employment a Reality: We’re All Responsible

May 1, 2020

The attached handouts are provided as part of The Boggs Center’s continuing education and dissemination activities. Please note that these items are reprinted by permission from the author. If you desire to reproduce them, please obtain permission from the originator.

4/29/2020 1

Making Employment a Reality: We’re All Responsible

Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN May 1, 2020

Colleen McLaughlin, MEd

Associate Director The Boggs Center on Developmental Disabilities http://rwjms.rutgers.edu/boggscenter/links/COVID-19Resources.html

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Making Employment a Reality: We’re All Responsible

Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN May 1, 2020

4/29/2020 2

Derek Nord, PhD, FAAIDD

Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN

Making Employment a Reality

WE’RE ALL RESPONSIBLE Derek Nord, Ph.D. Director & Associate Professor Indiana Institute on Disability and Community May 1, 2020 Developmental Disabilities Lecture Series

About me

My goals for today

Plan for Today

• Foundations of systems thinking

and functioning

• Historical context
• Systems of support
• Focus on individuals and

families

• Policy
• Wrap and Q/A

Poll #1

Who are you representing today (choose one)?

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International Classification of Functioning

International Classification of Functioning 35 yrs, F, HS, African American Down Syndrome Cognitive impairment Difficulty learning & remembering Unable to get & keep a job Limited supports, guardian

A Movement Grounded in History

From Nothing to Something: Facility Work

Laying the Foundation for Individual Employment

• Shifts in training & perceptions of

people with IDD

• Supported employment first defined in

law: DD Act 1984

• Subsequent laws strengthen

4/29/2020 4

Americans with Disabilities (ADA) Act - 1990

*Language

Disability Rights

• “Many might think it is a tragedy to acquire or be diagnosed with a

disability; it isn’t. The tragedy is when we are denied our civil rights, our dignity and our right to choice. This is what fuels our righteous efforts.” - ADAPT

A Movement Moves – Core Values are Constant

• 1. Innate strengths and capacity.
• 2. Disability does not need fixing.
• 3. Separate is never equal.
• 4. Life in the community is paramount.

Employment Remains Elusive

Poverty 18-34 yrs 35-64 yrs Disability 19.9% 22.5% No disability 9.9% 5.9% Unemployment Disability 12.5% No disability 4.5% Not in Labor Force Disability 57.2% No disability 17.0%

4/29/2020 5 Systems of support

Thought Exercise #1

• 1. Take a moment to imagine a person you know with a significant disability.
• 2. Get specific in your mind.
• 3. Can he/she complete complex tasks?
• 4. Can he/she work in an individual job in the community?

POLL #2

Can the person you imagined work an individual Job in the community?

Movie time!

Thanks to Marc Gold and Associates for access to the video

• Terminology from the 1970s

Reactions?

How does this challenge how you think and work?

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Employment Planning

1.00 0.59 0.35 0.21 0.12 0.00 0.20 0.40 0.60 0.80 1.00 1.20 None Mild Moderate Severe Profound

Odds

Odds of Employment Goal

• No plan – no service.
• Major disparities.
• IDD
• Communication
• Systems are deciding

who deserves.

Nord, et al, 2018

Employment Planning

Individual Job in Community Employment Goal

11X More Likely*

Nord, et al, 2018

Broadening Access to High Impact Practices

Job Search & Placement 4.0X Job Search, Placement, & OJS 16X Job Search 1.4X

Nord & Hepperlan, 2016

All significant at p < .001

Inequities across the lifespan

0.06 0.07 0.08 0.09 0.1 0.11 0.12 0.13 0.14 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Odds of individual job in community Age

Odds = 1 in 17 Odds = 1 in 7

Nord, et al, in-press

0.04 0.06 0.08 0.1 0.12 0.14 0.16 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Odds of individual job in community Age Low Mean High

State Investments Matter

Odds = 1/6

Nord, et al, in-press

Thought Exercise #2

Take a moment to answer a question:

Can everyone work? Why or why not?

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POLL #3 + chat

Can everyone work? Use the Question box to briefly clarify your perspective.

All Means ALL!

If you don’t believe all people can work then:

• You’re part of a systemic problem; and,
• You might be in the wrong field.

Individuals & families matter

Expecting More and Doing Better

Side Note and Apology: The System

• MDs
• Social workers
• Psychiatrists
• Speech therapists
• Job developers
• Teachers
• Personal Care

Assistants

• Financial managers
• Job coaches
• Occupational therapists
• Nutritionists
• Paraprofessionals
• Researchers
• Residential supports
• Vocational rehab.

counselors

• Nurse practitioner
• In-home support

professionals

• Habilitation specialists
• Certified nursing assistants

Bombarded with Decisions

Recall this result

Individual Job in Community Employment Goal

11X More Likely*

Nord, et al, 2018

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Guardianship affects this pathway

Nord, et al, 2018 25% Less Likely*

Guardian

Hamre & Nord, 2019

0.5 1 1.5 2 2.5 3 3.5 Odds

Odds of Employment

Education

• Higher ed – higher
• dds.
• PSE is a reality
• Expect more

Public Benefits

Don’t miss out!

Research has shown

• Skill development
• Relationships
• Self-determination
• Quality of life

$$

Choice- making Lonely Poverty Skills

Don’t fear: It’s not rocket science

• Don’t wait
• Have a vision and a plan
• Families can make it happen
• Take the reigns!

Job search Customized employment Career planning Discovery Job placement Job tryouts Carving Self-employment

Looking outside of formal systems

Esri, 2014

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Rounded Life vs. Service Life

Risk and Human Development

Remarkable times

Poll #4

How would you rate your state in employment policy for people with disabilities?

Employment First Across the Country

Employer-Side Tax Incentives

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The Enforcer

Must not take progress for granted.

Opportunities for the Taking

We all have responsibility in this!

Presume Competence and Capacity & Demand Professionals to do the Same

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Have a Vision for Employment & Set High Expectations

Advocate & Fight When You Face Resistance

Don’t Hesitate to Get Help

• 1. The Boggs Center
• 2. New Jersey Assoc. of People Supporting Employment First (APSE)
• 3. The Arc of NJ
• 4. Many, many more allies locally and nationally

“Opportunity always comes accompanied by… three fundamental obligations. The first obligation implied in opportunity is that you must seize it. You reach out to that opportunity, take in your hands and mold it into a work that brings value to

• thers. To do otherwise is a not just a waist, but a crime against the human spirit.

Squandering what the rest of the world covets is not only foolish. It is immoral. The second obligation with opportunity is that you must live the opportunity. You must carry it on your back all day long… Because even though opportunity, much like freedom itself is born only out of an ideal, it is nurtured only by action. Without action, opportunity and freedom shrivel and fade to a tragic and slow death. Finally the third obligation which inherently comes with opportunity is that you must defend it.“ Robert C. Goizueta

How will you seize this opportunity?

THANK YOU! Derek Nord, Ph.D. Director & Associate Professor dnord@Indiana.edu 812-855-7102

4/29/2020 12

Q & A

Certificates of Attendance for Continuing Education Recognition

To receive a Certificate of Attendance, you must: Be logged onto the webinar from start to finish and Complete the evaluation at the end of the webinar Certificates will be emailed to attendees who meet these requirements next week

Stay on your screen, and if prompted, click CLOSE for the evaluation to pop up. Thank you for attending and completing the evaluation.

Evaluation

References Prepared by Derek Nord, PhD

Hamre, K. & Nord, D. (2019). Supporting decision making of adults with disabilities: A statewide survey of family and professional guardians and related roles in Indiana. Supreme Court of Indiana. Nord, D., Grossi, T., & Andresen, J. (in-press). Employment equity for people with IDD across the lifespan: The effects of state funding. Intellectual and Developmental Disabilities. Nord, D., Hamre, K., Pettingell, S. & Magiera, L., (2018). Effect of employment goals and guardianship on employment settings, Research and Practice for Persons with Severe Disabilities. doi: 10.1177/1540796918785352 Nord, D. & Hepperlen, R. (Dec. 2016). More job services – better employment

• utcomes: increasing job attainment for people with IDD. Intellectual and

Developmental Disabilities, 54(6), pp. 402-411.

Notes

Notes